Mr. Prashant Verma
Prashant Verma’s Myositis Journey: From Struggle to Strength
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India's Dedicated Home for Myositis Patients
Living with myositis is hard. Finding the right information, doctor, and community shouldn't be. We bring patients, caregivers, and specialists together in one place.
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Welcome • Myositis India
Empowering Lives Through Awareness & Support
A non-profit organisation dedicated to improving the lives of people affected by myositis in India through awareness, patient support, and medical research.
Welcome to Myositis India, a unit of Madalasa Foundation, a non-profit organisation dedicated to improving the lives of people affected by myositis in India. If you're looking to learn more about Myositis India, our mission is to raise awareness, provide support, and promote research for myositis—a rare and complex autoimmune disease that causes inflammation and weakness in the muscles. We provide a platform for patients, caregivers, and healthcare professionals to connect, share their experiences, and learn from each other. As a dedicated nonprofit for myositis, our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials and treatment options. Discover our mission
Patient Helpline
Speak to someone who understands. Our helpline supports you and your caregiver at every step.
Contact the helplineExpert Network
Find rheumatologists, neurologists, and myositis specialists near you - verified and ready to help.
Find expertsClinical Research
See which clinical trials are currently open in India - and whether you may be eligible.
Find a Clinical TrialMYOSITIS INDIA • OUR AMBASSADOR
Samantha Ruth – Raising Her Voice for Myositis
A leading Indian actress turning her own diagnosis into hope, awareness, and support for people living with myositis.
Samantha Ruth
Indian actress
Myositis is a rare autoimmune disease that can cause severe muscle weakness and affect everyday life. When Samantha was diagnosed, she chose not to stay silent—she chose to share.
By talking openly about her diagnosis, treatment journey, and emotional ups and downs, she has helped thousands of people feel seen, heard, and less alone.
As Myositis India's brand ambassador, Samantha collaborates with doctors, patient groups, and caregivers to spotlight early diagnosis, access to care, and mental health for those living with myositis.
Together, we aim to change how myositis is understood in India — from a rare, “invisible” condition to a recognised, supported journey.
Real journeys
Patient Success Stories
Hope, resilience, and recovery from people in our community—read their stories in full.
Mr. Saurabh Sarin
Saurabh’s Myositis Journey: From Misdiagnosis to Hope
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Mr. Chintan Shinde
Chintan’s Polymyositis Journey: Living Strong Since Childhood
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Mr. Sunil
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope
Read full storyResearch & Innovation
Ongoing Clinical Trials
Explore active locations across India where dedicated professionals are conducting world-class Myositis research and trials.
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Clinical Governance
Medical Advisory Board
Year-wise expert advisory panel supporting evidence-led care pathways and community trust.
Dr. Anushka Aggarwal
Medical Advisor
Location: New Delhi
MBBS from Maulana Azad Medical College, Delhi MD Medicine from Lady Hardinge Medical College, Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital, Delhi Committed to Myositis care and awareness in India. Actively involved in academic and clinical aspects of Myositis research
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Dr. Chengappa Kg
Medical Advisor
Location: Mysuru
Rheumatologist with over eight years of experience. I have been working at a tertiary care hospital that caters to many patients with idiopathic inflammatory myositis and overlap myopathies. My core areas of interest are outcome measures in myositis and in understanding the damage progression because of muscle inflammation in myositis.
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Dr. Liza Rajasekhar
Medical Advisor
Location: Hyderabad
She has more than 25 years of experience as teacher and clinician in the field of rheumatology. She has been associated with Nizam’s Institute of Medical Sciences, Hyderabad for all her professional life after training at the Post Graduate Institute of Medical Education and Research, Chandigarh in Internal Medicine and for Laboratory Immunology at the Chang Gung Memorial Hospital, Taichung, Taiwan.
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Dr. Mahabalehwar
Medical Advisor
Location: Mysore
Asst Professor of Rheumatology, JSS Academy of Higher Education & Research, Mysore MBBS, MD Medicine, DM Rheumatology and Clinical Immunology, Madras Medical College. Member of many Rheumatology Organisations with active participation in research work. Currently working on a project on Juvenile Dermatomyositis.
View advisor profileLeadership & Team
Meet Our Team
Structured team profiles with role clarity across board, core operations, and volunteer ecosystem.
Gokul
Content Distribution
Core TeamHello everyone, I am Dr. Gokulkrishna Nambiar, an MBBS graduate from B.J. Medical College, Pune, with a passion for digital outreach and patient advocacy.
Kshitij Kanuga
Webinars
Core TeamHey I am Kshitij Kanuga from NHLMMC Ahmedabad
Rishi
Patient Services
Core TeamIntern Doctor at BJGMC and Sassoon General Hospital Pune Volunteer at Myositis India since Golfer footballer film enthusiast
Rutvij Tope
Content Creation
Core TeamDoctor at BJGMC and Sassoon Hospital Pune I've been volunteering for Myositis India since Avid reader writer tennis player and amateur pianist
KNOWLEDGE HUB • MYOSITIS INDIA
Latest Insights & Medical Updates
Editorial-grade perspectives on patient education, treatment pathways, and specialized medical research.
While myositis cannot always be prevented, certain lifestyle choices and health practices can help reduce risk and support overall muscle health.
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Living with myositis can be challenging, but the right diet, lifestyle, and daily care routine can help manage symptoms and improve overall well-being.
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Recognizing early signs of myositis can help in timely diagnosis and treatment, preventing severe muscle damage and complications.
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Myositis is a rare autoimmune condition that causes muscle inflammation, weakness, and fatigue. This guide explains its causes, symptoms, and effective treatment options to help patients manage the condition better.
Read story →
Common Questions from the Community
Find quick answers to some of the most common questions from our community.
Myositis is a rare autoimmune disease that causes chronic inflammation of the muscles. It leads to progressive muscle weakness, fatigue, and can sometimes affect other organs like the skin or lungs. Early diagnosis and proper medical care are crucial for managing symptoms effectively.
Myositis India serves as a comprehensive support system. We connect patients with specialised doctors, provide access to support groups, share the latest research updates, and advocate for better healthcare policies. We strive to create a community where no one has to face myositis alone.
Yes. While we facilitate large community groups, we also understand the need for personal guidance. Our dedicated helpline and volunteer ambassadors are available to offer one-on-one support, answer specific concerns, and help navigate treatment options with experts.
No, Myositis India is strictly a non-profit patient advocacy organisation. We do not provide direct medical treatment or operate as a medical facility. Instead, we act as a bridge connecting patients to verified medical professionals, specialists, and hospitals that understand myositis.
We actively welcome collaborations with rheumatologists, neurologists, researchers, and healthcare institutions. Doctors can join our medical directory or expert network. Organisations can partner with us for awareness campaigns, fundraising, or clinical trials. Please reach out via our Contact page to get started.