India's Dedicated Home for Myositis Patients
Living with myositis is hard. Finding the right information, doctor, and community shouldn't be. We bring patients, caregivers, and specialists together in one place.
Empowering Lives Through Awareness & Support
A non-profit organisation dedicated to improving the lives of people affected by myositis in India through awareness, patient support, and medical research.
Welcome to Myositis India, a unit of Madalasa Foundation, a non-profit organisation dedicated to improving the lives of people affected by myositis in India. If you're looking to learn more about Myositis India, our mission is to raise awareness, provide support, and promote research for myositis—a rare and complex autoimmune disease that causes inflammation and weakness in the muscles. We provide a platform for patients, caregivers, and healthcare professionals to connect, share their experiences, and learn from each other. As a dedicated nonprofit for myositis, our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials and treatment options. Discover our mission
Patient Helpline
Speak to someone who understands. Our helpline supports you and your caregiver at every step.
Contact the helplineExpert Network
Find rheumatologists, neurologists, and myositis specialists near you - verified and ready to help.
Find expertsClinical Research
See which clinical trials are currently open in India - and whether you may be eligible.
Find a Clinical TrialSamantha Ruth – Raising Her Voice for Myositis
A leading Indian actress turning her own diagnosis into hope, awareness, and support for people living with myositis.
Samantha Ruth
Indian actress
Myositis is a rare autoimmune disease that can cause severe muscle weakness and affect everyday life. When Samantha was diagnosed, she chose not to stay silent—she chose to share.
By talking openly about her diagnosis, treatment journey, and emotional ups and downs, she has helped thousands of people feel seen, heard, and less alone.
As Myositis India's brand ambassador, Samantha collaborates with doctors, patient groups, and caregivers to spotlight early diagnosis, access to care, and mental health for those living with myositis.
Together, we aim to change how myositis is understood in India — from a rare, “invisible” condition to a recognised, supported journey.
Ongoing Clinical Trials
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Strengthening care through collaboration
Organisations that stand with us to improve access to information, specialist networks, and dignified support for people affected by myositis across India.
Sponsorship support
Common Questions from the Community
Find quick answers to some of the most common questions from our community.