About us
About us
Welcome to Myositis India, A unit of Madalasa Foundation, a non-profit organization dedicated to improving the lives of people affected by myositis in India. Our mission is to raise awareness, provide support, and promote research for myositis, a rare and complex autoimmune disease that causes inflammation and weakness in the muscles.
At Myositis India, A unit of Madalasa Foundation, we strive to be a reliable source of information and support for individuals and families affected by myositis.
We provide a platform for patients, caregivers, and healthcare professionals to connect, share their experiences, and learn from each other. Our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials and treatment options.
One of our primary goals is to raise awareness about myositis in India. Despite being a relatively rare disease, myositis can have a significant impact on the lives of those affected. Many people with myositis struggle to get a timely and accurate diagnosis, leading to delays in treatment and a reduced quality of life. By increasing awareness and understanding of myositis, we hope to improve outcomes for patients and reduce the burden of this disease.
We also recognize the importance of research in advancing our understanding of myositis and developing more effective treatments. That's why we actively support and promote research efforts in India and collaborate with other organizations worldwide to advance the field of myositis research.
Finally, we are committed to advocating for the needs of myositis patients and their families. We work to ensure that the voices of the myositis community are heard and that patients receive the support and care they need to live fulfilling lives.
Whether you are a patient, caregiver, or healthcare professional, we invite you to join us in our mission to improve the lives of people affected by myositis in India. Together, we can make a difference and bring hope to those living with this challenging disease.
Our vision
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What is the vision of Myositis India?
Our vision is to be the leading organization dedicated to providing comprehensive support and assistance to Myositis patients worldwide. We strive to reach as many individuals as possible, empowering them to live their lives to the fullest through education, advocacy, research, and access to resources. In pursuit of our mission, we are committed to enhancing the quality of life for those affected by Myositis through our dedication to education and awareness. We recognize that knowledge is key in the fight against this debilitating condition, and we work tirelessly to expand our understanding of Myositis, its symptoms, and potential treatments. Through our efforts, we aim to equip patients and their caregivers with the tools necessary to effectively manage their condition and achieve a greater sense of control.
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What is the mission of Myositis India?
Our mission also includes providing unwavering support and resources to those who need it most. We believe that building a community of individuals united in their fight against Myositis is essential to success. Therefore, we have developed a network of compassionate volunteers who are eager to lend an ear, provide emotional support, and act as a source of guidance for those navigating the challenges of Myositis. Further, we are committed to promoting research into Myositis and related conditions. We believe that through advancing scientific knowledge, we can improve diagnoses, treatments, and ultimately, quality of life for patients. By partnering with leading researchers and investing in cutting-edge technology, we aim to drive progress in the understanding and management of Myositis. Finally, we see it as our responsibility to act as advocates for the Myositis community, using our voice to raise awareness of the condition, as well as promote patient-centric policies, research initiatives, and philanthropic support. We want to be a catalyst for positive change in the lives of those affected by Myositis, paving the way for a future of better treatments, understanding, and support.
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How does Myositis India raise awareness about myositis?
Myositis India raises awareness about myositis by organizing educational events, sharing information and resources on its website and social media channels, collaborating with other organizations and healthcare professionals, and engaging with the media to increase visibility and understanding of the disease.
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How does Myositis India support patients and their families?
Myositis India provides a variety of support services to patients and their families, including online support groups, educational materials, information on treatment options and clinical trials, and referrals to healthcare professionals. The organization also hosts events and activities that allow patients and families to connect and share their experiences.
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What is Myositis India role in promoting research for myositis?
Myositis India supports and promotes research efforts in India by providing funding for research projects, collaborating with researchers and institutions, and advocating for increased research funding and support. The organization also facilitates the sharing of research findings and promotes collaboration among researchers and healthcare professionals.
What people are saying
"I went to several doctors, but no one could figure out what was wrong with me. Finally, I was referred to a specialist who diagnosed me with myositis - an autoimmune disease that attacks the muscles."
"At first, I was scared and overwhelmed by the diagnosis. I had never heard of myositis before and didn't know what to expect. But my doctor was incredibly kind and patient, taking the time to "
"I started on a regimen of medication and physical therapy to help manage my symptoms. It wasn't easy - there were days when I felt completely drained and unable to do anything "
