Clinical Research

Advancing the science of Myositis Care.

Stay informed about the latest research, publications, and clinical trials shaping the future of myositis diagnosis and treatment.

Latest Publications

Featured Research

Heterogeneity in nomenclature and abbreviation usage for anti-synthetase syndrome: a scoping review

Anushka Aggarwal, Tanya Chandra, Parth Ladha, Srijan Mittal, Saloni Haldule, Simran Nirmal, Namratha Edpuganti, Nakul Jain, Lorenzo Cavagna, Giovanni Zanframundo, Sara Faghihi-Kashani, Rohit Aggarwal

Abstract:Anti-synthetase syndrome constitutes a dynamically evolving subset of Idiopathic Inflammatory Myopathy, however, the nomenclature and abbreviations for this syndrome are plagued by heterogeneity, leading to lack of consistency in literature. The objective of this study is to evaluate existing diversity in disease names and abbreviations, with a future goal to develop consensus on the nomenclature. A scoping review format was used for analysis.

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Myositis India: Early lessons from a patient support group in a resource-limited setting

Anushka Aggarwal, Narendra Kumar Bagri, Chengappa Kavadichanda, Sundeep Upadhyaya, Saloni Haldule, Parth Ladha, Neeraj Jain, Himanshu Pathak, Parthajit Das, Srijan Mittal, Rutvij Amol Tope, Aniket Ajay Nikale, Simran Nimal, Pankti Mehta, Kunal Chandwar, Rajkiran Dudam, Sourabh Malviya, Vijay K R Rao, Sunil Singh, Vanshaj Sharma, Namratha Edpuganti, Rishi Nalkande, Swaraj Salunke, Ujjwal Madan, Vanshita Batra, Rohit Aggarwal

Abstract:Patient support groups play a pivotal role in managing chronic diseases, especially in resource-limited settings. This study outlines the initial experiences and lessons learned from establishing Myositis India, highlighting its impact on patient education, emotional support, and raising awareness for myositis.

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Consensus nomenclature and abbreviation for anti-synthetase syndrome: an IMACS project

Anushka Aggarwal, Tanya Chandra, Shiri Keret, John D Pauling, Ejaz A Shamim, Francesco Bonella, Fredrick W Miller, Andrew Mammen, Gianluca Sambataro, Teerin Liewluck, Anthony P Fernandez, Elena Bartoloni, Samuel Katsuyuki Shinjo, Santos Castañeda, Victoria Werth, Mazen M Dimachkie, Yasuhiro Katsumata, Raquel Campanilho-Marques, Manabu Fujimoto, James B Lilleker, Albert Selva-O'Callaghan, Tahseen Mozaffar, Harsha Gunawardena, Herman Mann, Jorge Rojas Serrano, Lorenzo Cavagna, Siamak Moghadam-Kia, Chester V Oddis, Parth Ladha, Srijan Mittal, Saloni Haldule, Namratha Edpuganti, Shreya Sridhar, Rutvik Savaliya, Vanshita Batra, Rohit Aggarwal

Abstract:Objectives: The lack of uniform terminology and abbreviations for anti-synthetase syndrome has led to significant challenges in research and clinical practice. This study aimed to establish an international consensus on a standardized nomenclature and abbreviation among a diverse group of global myositis experts and patient representatives.

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