# https://myositisindia.org/ llms-full.txt
## Myositis India Portal
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/#)
Support · Care · Awareness
# India's Dedicated Home forMyositis Patients
Living with myositis is hard. Finding the right information, doctor, and community shouldn't be. We bring patients, caregivers, and specialists together in one place.
0+Patients Reached
0+Verified Specialists
0+Awareness Events
Welcome • Myositis India
## Empowering Lives Through Awareness & Support
A non-profit organisation dedicated to improving the lives of people affected by myositis in India through awareness, patient support, and medical research.
Welcome to Myositis India, a unit of Madalasa Foundation, a non-profit organisation dedicated to improving the lives of people affected by myositis in India. If you're looking to learn more about Myositis India, our mission is to raise awareness, provide support, and promote research for myositis—a rare and complex autoimmune disease that causes inflammation and weakness in the muscles. We provide a platform for patients, caregivers, and healthcare professionals to connect, share their experiences, and learn from each other. As a dedicated nonprofit for myositis, our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials and treatment options. [Discover our mission](https://myositisindia.org/about)
[**Patient Helpline**\\
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Speak to someone who understands. Our helpline supports you and your caregiver at every step.\\
Contact the helpline](https://myositisindia.org/contact) [**Expert Network**\\
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Find rheumatologists, neurologists, and myositis specialists near you - verified and ready to help.\\
Find experts](https://myositisindia.org/experts) [**Clinical Research**\\
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See which clinical trials are currently open in India - and whether you may be eligible.\\
Find a Clinical Trial](https://myositisindia.org/research)
MYOSITIS INDIA • OUR AMBASSADOR
## Samantha Ruth – Raising Her Voice for Myositis
A leading Indian actress turning her own diagnosis into hope, awareness, and support for people living with myositis.
### Samantha Ruth
Indian actress
Myositis is a rare autoimmune disease that can cause severe muscle weakness and affect everyday life. When Samantha was diagnosed, she chose not to stay silent—she chose to share.
By talking openly about her diagnosis, treatment journey, and emotional ups and downs, she has helped thousands of people feel seen, heard, and less alone.
As Myositis India's brand ambassador, Samantha collaborates with doctors, patient groups, and caregivers to spotlight early diagnosis, access to care, and mental health for those living with myositis.
[Read Samantha's Journey](https://myositisindia.org/ambassador) [Why myositis awareness matters](https://myositisindia.org/awareness)
Together, we aim to change how myositis is understood in India — from a rare, “invisible” condition to a recognised, supported journey.
Real journeys
## Patient Success Stories
Hope, resilience, and recovery from people in our community—read their stories in full.
### Mr. Prashant Verma
Prashant Verma’s Myositis Journey: From Struggle to Strength
[Read full story](https://myositisindia.org/success-stories/mr-prashant-verma)
### Mr. Saurabh Sarin
Saurabh’s Myositis Journey: From Misdiagnosis to Hope
[Read full story](https://myositisindia.org/success-stories/mr-saurabh-sarin)
### Mr. Chintan Shinde
Chintan’s Polymyositis Journey: Living Strong Since Childhood
[Read full story](https://myositisindia.org/success-stories/mr-chintan-shinde)
### Mr. Sunil
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope
[Read full story](https://myositisindia.org/success-stories/mr-sunil)
[Explore all patient stories](https://myositisindia.org/success-stories)
Clinical Governance
## Medical Advisory Board
Year-wise expert advisory panel supporting evidence-led care pathways and community trust.
[View Full Board](https://myositisindia.org/medical-advisory-board?term=2024-2025)
### Dr. Anushka Aggarwal
Medical Advisor
Location: New Delhi
MBBS from Maulana Azad Medical College, Delhi MD Medicine from Lady Hardinge Medical College, Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital, Delhi Committed to Myositis care and awareness in India. Actively involved in academic and clinical aspects of Myositis research
[View advisor profile](https://myositisindia.org/medical-advisory-board/dr-anushka-aggarwal)
### Dr. Chengappa Kg
Medical Advisor
Location: Mysuru
Rheumatologist with over eight years of experience. I have been working at a tertiary care hospital that caters to many patients with idiopathic inflammatory myositis and overlap myopathies. My core areas of interest are outcome measures in myositis and in understanding the damage progression because of muscle inflammation in myositis.
[View advisor profile](https://myositisindia.org/medical-advisory-board/dr-chengappa-kg)
### Dr. Liza Rajasekhar
Medical Advisor
Location: Hyderabad
She has more than 25 years of experience as teacher and clinician in the field of rheumatology. She has been associated with Nizam’s Institute of Medical Sciences, Hyderabad for all her professional life after training at the Post Graduate Institute of Medical Education and Research, Chandigarh in Internal Medicine and for Laboratory Immunology at the Chang Gung Memorial Hospital, Taichung, Taiwan.
[View advisor profile](https://myositisindia.org/medical-advisory-board/dr-liza-rajasekhar)
### Dr. Mahabalehwar
Medical Advisor
Location: Mysore
Asst Professor of Rheumatology, JSS Academy of Higher Education & Research, Mysore MBBS, MD Medicine, DM Rheumatology and Clinical Immunology, Madras Medical College. Member of many Rheumatology Organisations with active participation in research work. Currently working on a project on Juvenile Dermatomyositis.
[View advisor profile](https://myositisindia.org/medical-advisory-board/dr-mahabalehwar)
Leadership & Team
## Meet Our Team
Structured team profiles with role clarity across board, core operations, and volunteer ecosystem.
### Aniket
Volunteer
[Volunteers](https://myositisindia.org/about/team/volunteers)
A final year medical student with a passionate commitment to becoming a compassionate and well-equipped doctor My journey in medicine has been driven by a deep empathy for those battling diseases and a fervent desire
[View profile](https://myositisindia.org/about/team/member/aniket)
### Anushka Wahile
Volunteer
[Volunteers](https://myositisindia.org/about/team/volunteers)
Currently a MBBS student pursuing my degree in the Philippines from Davao Medical School Foundation I'm very much very much dedicated to my studies but I also am very enthusiastic about my cocurriculars I am
[View profile](https://myositisindia.org/about/team/member/anushka-wahile)
### Chaitanya Ghadge
Volunteer
[Volunteers](https://myositisindia.org/about/team/volunteers)
Intern Doctor at Sassoon General Hospitals balancing medicine with badminton and guitar and through Myositis India I m learning to make my verse count in the story of care
[View profile](https://myositisindia.org/about/team/member/chaitanya-ghadge)
### Dr. Anushka Aggarwal
Director and MAB Liaison
[Board Members](https://myositisindia.org/about/team/board-members)
MBBS from Maulana Azad Medical College Delhi MD Medicine from Lady Hardinge Medical College Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital Delhi Committed to Myositis care and awareness in India Actively involved in academic
[View profile](https://myositisindia.org/about/team/member/dr-anushka-aggarwal)
[Explore full team](https://myositisindia.org/about/team)
KNOWLEDGE HUB • MYOSITIS INDIA
## Latest Insights & Medical Updates
Editorial-grade perspectives on patient education, treatment pathways, and specialized medical research.
Insight
### [Understanding Myositis: A Comprehensive Guide to Symptoms, Diagnosis, and Treatment Options](https://myositisindia.org/blog/understanding-myositis-a-comprehensive-guide-to-symptoms-diagnosis-and-treatment-options)
Myositis is a rare autoimmune disease that causes muscle inflammation and weakness, often making everyday tasks increasingly difficult. Learn about its symptoms, diagnosis, treatment options, and how early recognition and specialist care can help people manage the condition and improve quality of life.
Aug 11, 2026Read story →
Insight
### [Living with Myositis: Personal Stories and Insights from Patients in India](https://myositisindia.org/blog/living-with-myositis-personal-stories-and-insights-from-patients-in-india)
Living with myositis is about more than managing symptoms. Through real patient stories from across India, discover the challenges of delayed diagnosis, treatment, recovery, and the importance of specialist care, rehabilitation, and community support in living well with this rare disease.
Aug 11, 2026Read story →
Insight
### [Autoimmune Diseases in India: A Closer Look at Myositis and Its Impact](https://myositisindia.org/blog/autoimmune-diseases-in-india-a-closer-look-at-myositis-and-its-impact)
Delve into the complexities of autoimmune diseases in India, with a special emphasis on myositis and its profound effects on individuals and communities.
Aug 6, 2026Read story →
Insight
### [The Contribution of Healthcare NGOs in India to Myositis Research and Support](https://myositisindia.org/blog/the-contribution-of-healthcare-ngos-in-india-to-myositis-research-and-support)
Learn about the significant contributions of healthcare NGOs in India towards myositis research and the support they provide to improve patient outcomes.
Aug 4, 2026Read story →
[Explore Knowledge Hub](https://myositisindia.org/blog)
Activities
## Photo Gallery
Moments from our programmes and community events—tap any photo for full screen.
[View full gallery](https://myositisindia.org/activities/gallery)
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Research & Innovation
## Ongoing Clinical Trials
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Sponsorship support
## Common Questions from the Community
Find quick answers to some of the most common questions from our community.
What is myositis?
Myositis is a rare autoimmune disease that causes chronic inflammation of the muscles. It leads to progressive muscle weakness, fatigue, and can sometimes affect other organs like the skin or lungs. Early diagnosis and proper medical care are crucial for managing symptoms effectively.
What does Myositis India do for patients and caregivers?
Myositis India serves as a comprehensive support system. We connect patients with specialised doctors, provide access to support groups, share the latest research updates, and advocate for better healthcare policies. We strive to create a community where no one has to face myositis alone.
Do you provide one-on-one patient support?
Yes. While we facilitate large community groups, we also understand the need for personal guidance. Our dedicated helpline and volunteer ambassadors are available to offer one-on-one support, answer specific concerns, and help navigate treatment options with experts.
Is Myositis India a hospital or a clinic?
No, Myositis India is strictly a non-profit patient advocacy organisation. We do not provide direct medical treatment or operate as a medical facility. Instead, we act as a bridge connecting patients to verified medical professionals, specialists, and hospitals that understand myositis.
How can doctors or organisations collaborate with you?
We actively welcome collaborations with rheumatologists, neurologists, researchers, and healthcare institutions. Doctors can join our medical directory or expert network. Organisations can partner with us for awareness campaigns, fundraising, or clinical trials. Please reach out via our Contact page to get started.
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Support
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about#)
About Myositis India
# Empowering lives with Limitless Care & Support.
A unit of Madalasa Foundation, creating a vibrant ecosystem for awareness, education, and groundbreaking advocacy for myositis.
[Join Community](https://myositisindia.org/register) [Contact Us](https://myositisindia.org/contact)
The Path Forward
## Our Journey & Impact
Welcome to Myositis India — a unit of Madalasa Foundation, dedicated to improving the lives of individuals affected by myositis across India.
Our mission is to raise awareness, provide comprehensive support, and promote research for myositis—a rare and complex autoimmune disease that causes inflammation and weakness in the muscles. We strive to be a reliable source of information for individuals and families navigating this journey.
At Myositis India, we strive to be a reliable source of information and support for individuals and families affected by myositis.
We provide a platform for patients, caregivers, and healthcare professionals to connect, share experiences, and learn from each other. Our website offers a wealth of resources, including educational materials, support groups, and information on clinical trials.
One of our primary goals is to raise awareness. Despite being a relatively rare disease, myositis has a significant impact; many patients struggle to get a timely and accurate diagnosis. By increasing understanding, we hope to improve outcomes and provide autoimmune support for those facing these challenges.
We actively support research effort both in India and globally, and are committed to advocating for the needs of the myositis community, ensuring patient voices are heard and that they receive the care they deserve.
### A Trusted Compass
Providing a trusted source of information and support for individuals and families affected by myositis, connecting patients with healthcare professionals.
### Increased Awareness
Many struggle for timely diagnosis. By increasing awareness and education, we aim to improve outcomes for patients across the nation.
### Scientific Research
Promoting collaboration between researchers and healthcare organisations to advance scientific understanding and treatment of muscle diseases.
Our Foundation
## Core Aspirations
01
#### Empathy
Understanding the patient journey deeply.
02
#### Innovation
Driving scientific healthcare breakthroughs.
03
#### Community
Building a global support ecosystem.
04
#### Advocacy
Voicing the needs of rare disease patients.
## Start your myositis support journey with us.
Explore our team, mission, and patient services designed to support families across India.
[Join the Community](https://myositisindia.org/register) [Meet Our Team](https://myositisindia.org/about/team)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Mission
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/mission-vision#)
About Myositis India
# Supporting the MyositisCommunity inIndia
A unit of Madalasa Foundation dedicated to raising awareness, supporting patients and caregivers, and advancing research for myositis and related autoimmune muscle diseases.
Myositis India is a patient-first initiative focused on improving the lives of people affected by myositis — a rare autoimmune disease that causes inflammation and weakness in the muscles.
Our platform connects patients, caregivers, healthcare professionals, and researchers to share knowledge, experiences, and resources that help people navigate the challenges of living with myositis.
By increasing awareness and understanding of this rare disease, we aim to improve early diagnosis, access to care, and long-term outcomes for patients across India.
Through education, advocacy, and collaboration with global medical experts, Myositis India works toward a future where patients receive better treatment, support, and hope.
[Join the Community](https://myositisindia.org/register)
### Community Support
Bringing together patients, caregivers, and professionals to build a strong and compassionate support network.
### Education & Awareness
Providing educational resources and organizing events to improve awareness of myositis among patients and medical professionals.
### Research Promotion
Supporting research efforts and collaborating with institutions worldwide to advance understanding and treatment of myositis.
## Advocating for Patients
We ensure the voices of myositis patients and families are heard by promoting awareness, research initiatives, and patient-centric healthcare policies.
Providing guidance, resources, and support networks for patients and families navigating life with myositis.
Promoting education, awareness, and research to improve diagnosis and treatment outcomes.
Vision
## A future where every person with myositis in India receives timely diagnosis, informed care, and sustained community support.
We envision an ecosystem where patients, caregivers, clinicians, and researchers work together to improve outcomes and quality of life across every stage of the myositis journey.
## Help us expand access and awareness nationwide.
Partner with Myositis India to improve early diagnosis, patient support, and long-term outcomes.
[Partner With Us](https://myositisindia.org/register) [Contact Our Team](https://myositisindia.org/contact)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## About Myositis Overview
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/myositis/about-myositis#)
Educational Resource
# Understanding Myositis & Muscle Health.
A comprehensive guide to the complexities of myositis—from initial symptoms to the path toward diagnosis and long-term management.
[Join Community](https://myositisindia.org/register) [Get Support](https://myositisindia.org/contact)
Defining the Condition
## What is Myositis?
Myositis simply means inflammation of muscle. 'Myo' refers to muscle and 'itis' refers to inflammation.
The term "myositis" encompasses a broad range of conditions characterized by swelling and inflammation of the muscles. One common cause is autoimmune muscle disease, where the body's immune system mistakenly attacks its own muscle tissue.
It can also result from infections, medication-related muscle injury, hereditary diseases, or imbalanced electrolytes.
The exact cause of myositis is still unknown, but researchers believe that certain individuals may have a genetic vulnerability triggered by environmental factors like infections or toxins.
Idiopathic inflammatory myopathy (IIM) is the most common chronic form, classified into types such as Dermatomyositis (DM), Polymyositis (PM), and Necrotizing Myopathy (NM).
Juvenile forms (JM) and sporadic inclusion body myositis (sIBM) further illustrate the diversity of this rare condition. Because it is highly diverse, personalized diagnosis is essential.
Despite being rare, inflammatory myopathies are severe conditions that require prompt and aggressive management to prevent significant disability.
### Common Symptoms
Gradual weakness and muscle pain. Patients often struggle with daily tasks like rising from chairs, climbing stairs, or dressing.
### Diagnostic Path
Diagnosing myositis is complex due to its rarity. It requires specialized blood tests, EMGs, and often muscle biopsies to confirm.
### Prompt Management
Early diagnosis is critical. Aggressive management can lead to remission and significant improvement in quality of life.
Clinical Classification
## Major Types of Myositis
### Dermatomyositis
DM
A form that can affect any age, more commonly seen in women. Characterized by muscle weakness in limbs closest to the core, such as shoulders and hips.
### Polymyositis
PM
Prevalent in adult women. Causes gradual muscle weakness starting near the trunk (neck, hips, back). Significant muscle pain is common.
### Necrotizing Myopathy
NAM
Also known as NAM or IMNM. Once considered rare, it is now recognised as a prevalent form of severe muscle inflammation and tissue destruction.
### Juvenile Myositis
JM
Affects children under 18, marked by weakness and skin rashes. JDM is the most common form and is not typically linked to cancer.
### Inclusion Body Myositis
sIBM
Acquired myopathy mostly affecting individuals over 50, more common in men. Distinct clinical presentation compared to other forms.
The Path to Clarity
## How myositis is diagnosed
### History: The First Clue
Providing comprehensive information helps your physician navigate the deductive reasoning process effectively.
- Medical, personal and family health history
- Timing and triggers of skin rashes or weakness
- Impact of food, activities, or weather
- Recent infections or medication use (e.g., statins)
Initial diagnosis is driven by history and physical examination by specialists in Rheumatology, Neurology, or Dermatology.
### Physical Examination
Clinical Observations
#### Selective Weakness
Myositis affects muscles unequally. For instance, finger flexors are specifically weak in sIBM, guiding precise diagnosis.
#### Core Impact
PM & DM mostly target core muscles near the trunk—shoulders, hips, and back.
The Dermatological Clue: Patients with DM exhibit characteristic rashes, a vital differentiator for preliminary diagnosis.
The Diagnostic Toolbox
## Advanced Investigative Tests
### Blood Test Analysis
The primary step involves identifying elevated muscle enzymes. Creatine Kinase (CK) is the critical marker; high levels typically signal muscle damage or inflammation.
Beyond enzymes, physicians look for Myositis-specific antibodies, which are increasingly vital for precise diagnostic classification.
Crucial Indicator
### Electromyography (EMG)
Comprising Nerve Conduction (NCS) and needle studies, the EMG records electrical patterns in nerves and muscles.
It identifies inflammatory patterns and assists in determining the most accurate site for a future muscle biopsy.
Operator skill varies; second opinions may require repeating the test.
### Muscle MRI Imaging
MRI has become an indispensable diagnostic tool, providing high-resolution visualization of the extent and location of muscle damage. This allows physicians to target the most active disease sites for a definitive biopsy.
### Biopsy: The Gold Standard Evidence.
Muscle & Skin Biopsy
Often needed for a definitive diagnosis, a biopsy provides the most reliable evidence to distinguish myositis from diseases with similar symptoms.
Pathologists examine the tissue under a microscope using specialized chemical stains to reveal inflammatory patterns.
The Procedure:
- Incision Method: Small incision under local anaesthesia; provides larger sample.
- Needle Method: Requires only a small skin puncture; less invasive.
- Screening: Newly diagnosed patients are screened for cancer or lung disease (ILD).
### Laboratory Data Reference
#### Standard Panels
CBCBlood Count
ESRSedimentation
CRPC-Reactive Protein
CKCreatine Kinase
AldolaseMuscle Enzyme
LDHLactate Dehydro
ASTTransaminase
ALTLiver/Muscle
#### Enzyme: CK (CPK)
Present in skeletal/heart tissue. Levels spike when muscle tissue is damaged. Often significantly elevated in active myositis.
Discrepancy: CK levels can lag behind clinical symptoms or be affected by daily activity.
#### Liver Enzymes: ALT/AST
Commonly found in muscle and liver cells alike. Elevated levels in a sample often signal muscle cell leakage rather than primary liver disease.
Molecular Indicators
## Myositis Specific Antibodies (MSAs)
To further aid in the diagnosis, patients can undergo testing for myositis-specific autoantibodies (MSAs) and myositis-associated autoantibodies (MAAs).
These antibodies are found in about 50-70% of myositis patients and serve as a reliable indicator of the disease. Their presence provides vital information on the potential course of the disease and tailored treatment strategies.
These antibodies are specific to myositis and almost never appear in individuals without the condition, making them a valuable tool in confirming the diagnosis.
Additionally, they may indicate the presence of potential complications, allowing for earlier intervention and better clinical outcomes for the patient.
| Autoantibody | Clinical Features & Associations |
| --- | --- |
| Anti-ARS | Antisynthetase syndrome with moderate to severe muscle weakness, elevated muscle enzyme levels, Raynaud's phenomenon, mechanic's hands, fevers, arthritis, and interstitial lung disease (ILD) |
| Anti-Jo-1 | Chronic and continuous disease course; 65% five-year survival rate, usually due to ILD; antisynthetase syndrome features |
| Anti-PL-7 / PL-12 | Antisynthetase syndrome with significantly higher frequency of ILD |
| Anti-EJ / OJ / Zo | Strong association with Dermatomyositis and Interstitial Lung Disease (ILD) |
| Anti-SRP | Acute onset necrotizing myopathy with severe weakness, elevated CK levels, and potential cardiac involvement; often treatment-resistant |
| Anti-Mi-2 | Adult & Juvenile DM with hallmark cutaneous disease; milder myositis with excellent response to treatment |
| TIF1-γ (Anti-p155/140) | Cancer-associated myositis in adult DM; severe cutaneous disease in both adult and juvenile forms |
| Anti-MDA5 | Clinically amyopathic dermatomyositis; highly associated with rapidly progressive ILD |
| Anti-NXP-2 | Predominantly JDM with subcutaneous edema and calcinosis; increased cancer risk in some adult DM studies |
| Anti-HMGCR | Necrotizing myopathy; often associated with statin use; severe proximal weakness |
| cN-1A (NT5c1A) | Occurs in 40-60% of Inclusion Body Myositis (IBM) patients; linked to higher mortality risk and more severe disease |
ARSAminoacyl-tRNA Synthetase
ILDInterstitial Lung Disease
SRPSignal Recognition Particle
MDA5Melanoma-Differentiation Gene
SAESUMO Activating Enzyme
CAMCancer-Associated Myositis
Therapeutic Strategy
## Treatment & Management Overview
Myositis is highly individual; no single approach works for everyone. Treatment often involves a delicate combination of medications and therapies tailored to specific needs.
While certain types like IBM currently lack fully successful curative treatments, most patients can effectively manage their condition through open communication and dynamic adjustment of clinical protocols.
### The Multimodal Approach
Medications are only one aspect. Successful management integrates physical therapy, lifestyle adjustments, and consistent monitoring to ensure long-term stability.
SteroidsImmunosuppressantsBiologicsIVIg
### 1\. Steroids (Corticosteroids)
First-Line Treatment
Rapid Immune Suppression
Medications like Prednisone are used for rapid symptomatic relief. They suppress the immune system to diminish inflammation in muscles, skin, and organs, restoring strength and easing pain.
Dosage is adjusted based on body weight and disease severity, often starting high (40–80mg/day) and gradually tapering as symptoms improve.
Never stop or reduce your dose without medical consultation; tapering must be slow to allow your body to resume natural cortisol production.
#### Potential Side Effects
Brittle Bones (Osteoporosis)
Cataracts & Glaucoma
Weight Gain & Mood Swings
Diabetes Risk
Adrenal Insufficiency
Cushing's Syndrome
### 2\. Immunosuppressive Arsenal
Second-line treatments used in conjunction with steroids to reduce side effects and provide long-term improvement.
#### Methotrexate
First-Line (DM/JDM)
Initially for RA, now a primary choice for moderate-to-severe DM. Taken weekly (15-25mg). Effective within 3 months.
#### Azathioprine
Best for ILD
Often used for patients with lung involvement. Requires a TPMT enzyme test first to avoid bone marrow toxicity.
#### Mycophenolate (CellCept)
Skin & Lung Specialist
Shows high efficacy for difficult skin rashes and interstitial lung disease when combined with steroids.
### Immunoglobulins (IVIg)
Derived from human plasma, IVIg is highly effective for treatment-resistant DM skin symptoms and severe NM. Delivered intravenously based on weight (typically 2g/kg over 2–5 days).
Effective for moderate-to-severe JDM and swallowing difficulties in sIBM.
### Biological Drugs
Next-gen molecules targeting specific immune pathways. Rituximab (Rituxan) is currently a vital option for SRP NM and antisynthetase syndrome.
Takes up to 3 months for improvement; effects last 6-18 months.
Vital Support
## The Power of Exercise in Recovery.
Physical therapy isn't just secondary—it's a core pillar of treatment. Regular aerobic activity decreases inflammation, boosts energy levels, and reverses muscle exhaustion.
It significantly lowers the risk of chronic comorbidities like Type 2 diabetes, osteoporosis, and heart disease.
Energy Boost
Inflammation ↓
Strength Restore
Quality of Life
## The Sun Protocol
Sun protection is non-negotiable. Even brief exposure can trigger a 20% worsening of symptoms in myositis patients. Follow these elite safety measures rigorously.
### Barrier Protection
- SPF 50+ indoors and outdoors, year-round.
- Reapply 30 mins before exit and every 2 hours.
- Hats, sunglasses, gloves, and long sleeves.
- Special UV-protective clothing (Double Layer).
### Environment Control
- Use heavy curtains/coatings for home windows.
- Replace regular lightbulbs with LED bulbs.
- Avoid direct sun between 11 AM and 4 PM.
- Use laundry detergent with UV protection.
### Reflective Risks
UV rays reflect off surfaces you might not expect. Stay vigilant around these unexpected sources:
Metallic RocksWaterCarsGlass Surfaces
## Need guidance on diagnosis and next steps?
Connect with our support team and explore practical resources to navigate life with myositis.
[Join Support Community](https://myositisindia.org/register) [View Diagnosis Guide](https://myositisindia.org/about/myositis/diagnosis)
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## Myositis Complications Overview
English
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Clinical Awareness
# Complications of Myositis.
Understanding the systemic impact and secondary symptoms of myositis is essential for proactive medical management and functional stability.
Expert-Led Protocols
**Interstitial lung disease (ILD):** A significant complication in inflammatory myopathies, ILD can cause breathlessness, dry cough, and reduced exercise tolerance. Early screening and pulmonary follow-up are essential.
**Swallowing complications (dysphagia):** Weakness in throat muscles may lead to choking, aspiration, poor nutrition, and weight loss. Prompt speech-and-swallow assessment helps prevent serious outcomes.
**Cardiac involvement:** Some patients may develop rhythm disturbances, myocarditis, or reduced cardiac function. Cardiac monitoring is important when symptoms such as chest discomfort or palpitations appear.
**Calcinosis and skin ulceration:** Especially in juvenile dermatomyositis, calcium deposits and chronic skin damage can cause pain, stiffness, and recurrent infections.
**Medication-related complications:** Long-term corticosteroid or immunosuppressant therapy can increase risk of osteoporosis, infections, metabolic issues, and mood changes, requiring preventive care.
**Cancer association in select subtypes:** Adult dermatomyositis can carry increased malignancy risk in some patients. Appropriate age- and risk-based cancer screening should be discussed with treating physicians.
**Functional and mental health impact:** Chronic pain, fatigue, and mobility limitations can affect work, relationships, and emotional well-being. Psychosocial support is an important part of long-term care.
### Proactive Monitoring
Managing the complications of myositis requires a vigilant and comprehensive approach. By recognizing these systemic symptoms early and working closely with your healthcare team, you can effectively mitigate risks and maintain functional independence.
Clinical Vigilance
Global Medical Standards
Evidence-Led Advocacy
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## Myositis Diagnosis Details
English
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Clinical Roadmap
# Diagnosis of Myositis & Clinical Path.
Initial diagnosis is built upon the synthesis of medical history and precise physical examination by specialized Rheumatologists and Neurologists.
Expert-Led Diagnosis
Advanced Laboratory Profiling
The First Indicators
## Initial Examination & History
### History
Providing detailed info on medical, personal, and family health histories. Timing and triggers of symptoms are vital clues for deductive reasoning.
### Examination
Observing muscle weakness patterns (e.g. finger flexors in sIBM vs proximal muscles in PM/DM) and identifying characteristic skin rashes.
Confirming the Diagnosis
## Advanced Investigative Suite
### Serum Biomarkers
Identifying elevated muscle enzymes like Creatine Kinase (CK) and specific Myositis antibodies (MSAs) for precise classification.
### Electromyography
Nerve conduction studies and needle studies record electrical patterns to identify inflammatory disease signatures.
### Muscle MRI
Providing high-resolution visualization of damage extent and location, guiding physicians to the optimal biopsy site.
### Muscle & Skin Biopsy
The Gold Standard evidence. Often needed for a definitive diagnosis, a biopsy provides the most reliable evidence to distinguish myositis from diseases with similar symptoms.
Incision MethodNeedle PuncturePathological Review
Molecular Indicators
## Myositis Specific Antibodies.
Antibodies are found in 50-70% of patients and serve as critical indicators for disease course, treatment response, and potential complications.
| Autoantibody | Clinical Associations |
| --- | --- |
| Anti-ARS | Antisynthetase syndrome, Raynaud's, mechanic's hands, ILD. |
| Anti-Jo-1 | Chronic course; 65% survival (ILD-related); antisynthetase features. |
| Anti-SRP | Acute onset necrotizing myopathy; severe weakness; treatment-resistant. |
| Anti-Mi-2 | Hallmark cutaneous disease; milder myositis; good treatment response. |
| TIF1-γ | Cancer-associated myositis in adults; severe skin disease in children/adults. |
| Anti-MDA5 | Clinically amyopathic dermatomyositis; rapidly progressive ILD. |
| Anti-NXP-2 | Juvenile DM with calcinosis; potential cancer risk in adults. |
| Anti-HMGCR | Necrotizing myopathy; statin-associated; severe weakness; IVIg responsive. |
| cN-1A | sIBM marker (40-60%); associated with more severe disease in inclusion body myositis. |
Therapeutic Strategy
## Strategic Management of Myositis.
Myositis management is highly individual; no single approach works for everyone. Successful outcomes rely on a multimodal clinical protocol.
First-Line: Corticosteroids
### Rapid Results & Suppression.
Medications like Prednisone suppress the immune system to diminish inflammation in muscles, skin, and organs, restoring strength and easing pain.
- High initial doses (40-80mg/day) based on severity.
- Gradual tapering is essential for natural cortisol recovery.
- Intravenous administration for severe presentations.
#### Clinical Safety Monitor
OsteoporosisBrittle bones risk
MetabolicWeight gain & Diabetes
Mood & VisionSwings, Cataracts/Glaucoma
AdrenalCushing's & Insufficiency
#### Methotrexate
First-Line (DM/JDM)
Weekly administration. Effective within 3 months for moderate studies. Popular for JDM/DM.
#### Azathioprine
ILD Specialist
Requires TPMT enzyme test. Essential for patients with interstitial lung disease (ILD).
#### Mycophenolate
Skin/Lung Efficacy
High success in difficult skin and lung cases. Often combined with prednisone.
#### Rituximab
Targeted Biologic
Next-gen molecule for SRP antibodies and antisynthetase. Effects last 12+ months.
#### IVIg Therapy
Plasma Derived
High-dose human plasma antibodies. Effective for severe NM and swallowing issues.
#### Exercise
Vital Recovery
Aerobic activity decreases inflammation and fatigue, while strength training helps restore muscle function and quality of life.
Vital Pillars
## Physical Therapy.
Physical therapy is a crucial pillar of treatment. Engaging in activity has been proven to decrease inflammation, boost aerobic capacity, and enhance quality of life while mitigating chronic risks associated with treatment.
Inflammation ↓
Exhaustion ↓
Muscle Power ↑
Chronic Risk ↓
Holistic Management
## Strategic Lifestyle Protocols.
Beyond clinical intervention, the choices made in daily life play a significant role in managing chronic muscle inflammation.
#### Energy Conservation
Frequent rest breaks and avoiding heavy exertion (like stair climbing) helps manage weakness.
#### Strategic Nutrition
A nutrient-dense, balanced diet supports tissue repair and counteracts metabolic side-effects.
#### Sleep Optimization
Quality sleep is critical for cellular regeneration and managing the fatigue of autoimmune disease.
### The Collaborative Conclusion
Myositis is a rare and complex autoimmune disorder that requires a comprehensive approach. A combination of medications, physical therapy, and lifestyle modifications can help control symptoms, improve muscle strength, and promote overall health and well-being.
Healthcare team partnership is essential
"The physician will make the most accurate diagnosis based on history, blood tests, EMG, MRI scans, and biopsy—guided by the latest therapeutic research."
Enterprise Clinical Standards
Patient-Centered Design
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## Myositis Treatment Overview
English
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Therapeutic Roadmap
# Treatment & Disease Management.
Effective myositis care combines medicines, rehabilitation, and lifestyle planning. With timely treatment and regular follow-up, many people can lead healthy and fulfilling lives.
Expert-Led Protocols
Treatment plans are personalized based on disease subtype, organ involvement, and day-to-day function. The clinical goal is to control inflammation early, preserve muscle strength, and reduce long-term complications.
The treatment of myositis typically involves a combination of medications, physical therapy, and lifestyle modifications. The goals of treatment are to control inflammation, reduce muscle damage, and improve muscle strength and function.
Medications are the **primary treatment** for myositis. The most commonly used drugs are corticosteroids, such as prednisone, which reduce inflammation and suppress the immune system. However, long-term use of corticosteroids can cause significant side effects, such as weight gain, osteoporosis, and increased risk of infection. Other immunosuppressant drugs, such as methotrexate, azathioprine, and mycophenolate, may be used to reduce inflammation and help reduce the need for high doses of corticosteroids.
In addition to medication and physical therapy, lifestyle modifications can also be helpful in managing myositis. For example, avoiding activities that worsen muscle weakness, such as carrying heavy loads or climbing stairs, and conserving energy by taking frequent rest breaks can help reduce symptoms. Eating a healthy, well-balanced diet and getting enough sleep can also support overall health and well-being.
### Key Takeaway
Myositis is a rare and complex autoimmune disorder that requires a comprehensive approach to treatment and disease management. A combination of medications, physical therapy, and lifestyle modifications can help control symptoms, improve muscle strength, and promote overall health and well-being. Working closely with a healthcare team is essential to ensure the best possible outcomes for individuals with myositis.
Patient-Centered Care
Global Medical Standards
Evidence-Led Advocacy
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## Types of Myositis
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/myositis/type-of-myositis#)
Clinical Classifications
# Identifying the Variants of Myositis.
There are a few different forms of myositis. Review each of the conditions below to learn the unique differences and similarities among the clinical subtypes.
DermatomyositisPolymyositisNecrotizing MyopathyInclusion Body MyositisJuvenile Myositis
Clinical Variant
### Dermatomyositis (DM)
Dermatomyositis (DM) is a form of myositis that can affect individuals of any age and gender, but is more commonly seen in women. It is characterized by muscle weakness, which develops gradually over time and is typically seen in the limbs closest to the core, such as the shoulders and hips. Elevated levels of creatine kinase (CK) in the blood are a common indication of muscle breakdown, but normal levels of CK can also be seen in some cases. One of the easiest forms of myositis to recognize, DM often presents with a visible skin rash caused by inflammation of blood vessels under the skin.
[Diagnostic Support](https://myositisindia.org/contact) [Community Hub](https://myositisindia.org/register)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Team
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team#)
About Myositis India
# Meet our team
Explore leadership and operational teams with transparent role movement and category-based structure.
[Back to About](https://myositisindia.org/about)
[Board Members\\
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View category members and role details.\\
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Active members: 9\\
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+6 more](https://myositisindia.org/about/team/board-members) [Core Team\\
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Active members: 6\\
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+3 more](https://myositisindia.org/about/team/core-team) [Ex-Members\\
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View category members and role details.\\
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Active members: 7\\
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+4 more](https://myositisindia.org/about/team/ex-members) [Volunteers\\
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View category members and role details.\\
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Active members: 17\\
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+14 more](https://myositisindia.org/about/team/volunteers)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Board Members
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/board-of-members#)
Team
# Board Members
Meet the Board of Members leading governance and strategic direction at Myositis India.
[Back to all team categories](https://myositisindia.org/about/team)
## Dr. Anushka Aggarwal
Director and MAB Liaison
MBBS from Maulana Azad Medical College Delhi MD Medicine from Lady Hardinge Medical College Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital Delhi Committed to Myositis care and awareness in India Actively involved in academic
[View profile](https://myositisindia.org/about/team/member/dr-anushka-aggarwal)
## Dr. Parth Ladha
Director and Senior Manager
Hello I m Dr Parth Ladha based in Pune India Engaging with patients and managing volunteers has been a rewarding journey for me as I coordinate activities within our patient organization This role has provided
[View profile](https://myositisindia.org/about/team/member/dr-parth-ladha)
## Dr. Rohit
Counsultant
Dr Aggarwal is a professor of medicine and medical director at a major medical center and myositis center of excellence in Pittsburgh USA He specializes in studying and treating inflammatory muscle diseases or myositis
[View profile](https://myositisindia.org/about/team/member/dr-rohit)
## Dr. Shreya Sridhar
Director and Senior Manager
Hey everyone This is Dr Shreya Sridhar an intern at SIMSRC Bangalore Working with Myositis India has been a wholesome experience I dance during my free time and wish to pursue Residency in the United
[View profile](https://myositisindia.org/about/team/member/dr-shreya-sridhar)
## Mr. Chintan Shinde
Director
Chintan Shinde is an entrepreneur passionate about impact research and innovation As someone who was diagnosed with polymyositis at the age of Chintan has a keen interest in developing assistive technologies
[View profile](https://myositisindia.org/about/team/member/mr-chintan-shinde)
## Mr. Prashant Varma
Director
I am Prashant Varma from Chhatrapati Sambhaji Nagar formarly known as Aurangabad Maharashtra By Profession I am Post Graduate in Civil Engineering and holding following responsibilities in profession and Social organizations
[View profile](https://myositisindia.org/about/team/member/mr-prashant-varma)
## Mr. Rahul Aggarwal
Executive Director
Rahul Aggarwal is a Chartered Accountant from the Institute of Chartered Accountants of India and holds an MBA from Alliance Manchester Business School UK He holds more than years of experience in Business Advisory Services
[View profile](https://myositisindia.org/about/team/member/mr-rahul-aggarwal)
## Mr. Saurabh
Marketing Expert
Saurabh is a highly experienced digital marketing expert with a proven track record of driving success for businesses of all sizes He is a valuable asset to Myositis India a leading company that provides top-notch
[View profile](https://myositisindia.org/about/team/member/mr-saurabh)
## Ms. Dollma Rana
Director & Head of Communications
Dollma is a seasoned professional with a strong background in operations management With a keen eye for detail and a commitment to operational excellence she is well-equipped to lead and optimize our day-to-day operations at
[View profile](https://myositisindia.org/about/team/member/ms-dollma-rana)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Team
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/core-team#)
Team
# Core Team
Meet the core operations team of Myositis India.
[Back to all team categories](https://myositisindia.org/about/team)
## Gokul
Content Distribution
PrimaryACTIVE
Hello everyone, I am Dr. Gokulkrishna Nambiar, an MBBS graduate from B.J. Medical College, Pune, with a passion for digital outreach and patient advocacy.
[Learn More](https://myositisindia.org/about/team/member/gokul)
## Kshitij Kanuga
Webinars
PrimaryACTIVE
Hey I am Kshitij Kanuga from NHLMMC Ahmedabad
[Learn More](https://myositisindia.org/about/team/member/kshitij-kanuga)
## Rishi
Patient Services
PrimaryACTIVE
Intern Doctor at BJGMC and Sassoon General Hospital Pune Volunteer at Myositis India since Golfer footballer film enthusiast
[Learn More](https://myositisindia.org/about/team/member/rishi)
## Rutvij Tope
Content Creation
PrimaryACTIVE
Doctor at BJGMC and Sassoon Hospital Pune I've been volunteering for Myositis India since Avid reader writer tennis player and amateur pianist
[Learn More](https://myositisindia.org/about/team/member/rutvij-tope)
## Sartaj Akhtar
IT Head
PrimaryACTIVE
Web developer & digital marketing expert passionate about creating user-friendly experiences.
[Learn More](https://myositisindia.org/about/team/member/sartaj-akhtar)
## Vanshaj
Academics
PrimaryACTIVE
I’m Dr. Vanshaj Sharma, Director, Academics and Research at Myositis India and a practicing physician at Shri Mahant Indiresh Hospital, Dehradun.
[Learn More](https://myositisindia.org/about/team/member/vanshaj)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis Case Presentations
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/case-presentation#)
# Casepresentation
Clinical education through structured case presentations—recognising excellence and building a shared learning archive for the myositis community.
[**Competition winners** \\
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View winners and runners-up by year, including our latest 2025 competition.\\
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Explore winners →](https://myositisindia.org/activities/case-presentation/winners) [**Presentation videos** \\
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Watch case presentation recordings from our programmes on YouTube.\\
\\
Watch videos →](https://myositisindia.org/activities/case-presentation/cases)
## Published years
- [2025](https://myositisindia.org/activities/case-presentation/winners/2025)
- [2023](https://myositisindia.org/activities/case-presentation/winners/2023)
Ask Us · Book AppointmentMyositis Chatbot
## Myositis Case Presentations
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/case-presentation/cases#)
# Case Presentation Videos
- 
Case presentation
### Clinical Trials In Myositis \| Webinar \| \#myositis \#health \#webinar \#india
Ask Us · Book AppointmentMyositis Chatbot
## Case Presentation Winners
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/case-presentation/winners#)
# Case Presentation Winners
2025
## Case Presentation Competition 2025 Winners
[View details →](https://myositisindia.org/activities/case-presentation/winners/2025)
- 
Winner
### Dr. Pridhivi Bhargavi
Senior Resident
Department of Medicine
AIIMS New Delhi
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1ST RUNNER UP
### Dr. Nidhi Goel
1st year SR
Army Hospital (Research and Referral)
New Delhi
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2ND RUNNER UP
### Dr. Israrul Haque
Ex Senior Resident Rheumatology, AIIMS New Delhi
DM resident Clinical Immunology and Rheumatology
IPGMER, Kolkata
2023
## Case Presentation Competition 2023 Winners
[View details →](https://myositisindia.org/activities/case-presentation/winners/2023)
- 
Winner
### Dr. Alekhya Amudalapalli
DM Resident
Department of Clinical Immunology and Rheumatology
Institute of Medical Sciences and SUM Hospital, Bhubaneswar
- 
RUNNER UP
### Dr. Hiren Kalyani
DrNB Trainee (2022-2025)
Department of Rheumatology
Max Super Speciality Hospital, Saket, New Delhi
- 
RUNNER UP
### Dr. Harsh Jain
3rd year resident
Department of Rheumatology
Army Hospital, Delhi
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India Gallery
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/gallery#)
# PhotoGallery
Browse photos from our events and programmes by year. Tap any image for a full-screen view.
2025
## iracon 2025
4 photos
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2024
## iracon 2024
4 photos
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2023
## iracon 2023
5 photos
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Ask Us · Book AppointmentMyositis Chatbot
## Myositis India Newsletter
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/newsletter#)
# Newsletter
Community updates, programme highlights, and news from Myositis India—available to read online or download as PDF.
Newsletter issues will appear here soon.
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Myositis Webinars
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/webinars#)
# Webinars& Recordings
Recorded sessions from our education programmes. Tap play to watch—videos load only when you choose, so this page stays fast.
Webinar recordings will appear here once published by our team.
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Patient Ambassador Stories
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/ambassador#)
Patient Ambassador
# A Voice of Strength - Mr. Prashant Verma
Real patient leaders sharing their journeys to inspire, guide, and support the myositis community.
## Featured Patient Ambassadors
### Mr. Prashant Verma
Prashant Verma’s Myositis Journey: From Struggle to Strength
[Read Full Story](https://myositisindia.org/success-stories/mr-prashant-verma)
### Mr. Saurabh Sarin
Saurabh’s Myositis Journey: From Misdiagnosis to Hope
[Read Full Story](https://myositisindia.org/success-stories/mr-saurabh-sarin)
### Mr. Chintan Shinde
Chintan’s Polymyositis Journey: Living Strong Since Childhood
[Read Full Story](https://myositisindia.org/success-stories/mr-chintan-shinde)
[Get Involved](https://myositisindia.org/contact) [View All Success Stories](https://myositisindia.org/success-stories)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Myositis Awareness Page
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/awareness#)
Myositis Awareness
# Why awareness matters for every myositis family
Earlier recognition of symptoms leads to earlier diagnosis, more timely treatment, and better long-term outcomes.
Myositis is rare and often under-recognised. Many families spend months searching for clear answers because early symptoms can look like other conditions.
Awareness helps patients, caregivers, and frontline clinicians spot warning signs sooner, seek specialist evaluation earlier, and avoid delays in care.
At Myositis India, awareness also means building a stronger support ecosystem through education, peer community, and access to credible resources.
[Request Support](https://myositisindia.org/contact) [Explore Clinical Trials](https://myositisindia.org/clinical-trials)
Ask Us · Book AppointmentMyositis Chatbot
## Myositis Care Centers
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/centres-of-excellence#)
Our Healthcare Professionals
# Centres ofExcellence
Dedicated care for myositis patients, nationwide — partner hospitals with rheumatologists who understand your condition. Find a specialist by city, then book with confidence.
Nationwide centresMyositis specialistsPartner hospitals
DelhiLucknowKolkataMumbai
Care network
4 cities · live
Myositis India — Centres Directory8 of 8 rows · 4 states
fx
All statesDelhiMaharashtraUttar PradeshWest Bengal
Sort:CityDoctorHospital / CentreDepartmentOPD DaysA→Z
Filter:AllDelhi3Maharashtra1Uttar Pradesh2West Bengal2
DelhiIndia3 doctors· Cities: Delhi· AIIMS Delhi
1
CityDelhi
DoctorDr. Narendra BagriAdditional Professor – Pediatric Rheumatology
Hospital / CentreAIIMS Delhi
DepartmentDepartment of Pediatrics
OPD DaysMonday / Thursday
Timings · Room
Room No. 217, New RAK OPD
Contact & Book
[drnarendrabagri@gmail.com](mailto:drnarendrabagri@gmail.com "drnarendrabagri@gmail.com")
2
CityDelhi
DoctorDr. Siddharth Jain
Hospital / CentreAIIMS Delhi
DepartmentMedicine
OPD DaysMon and Thu
Timings · Room
Room No. A219, New RAK OPD
Contact & Book
[01126594560](tel:01126594560) [aiims.siddharth@gmail.com](mailto:aiims.siddharth@gmail.com "aiims.siddharth@gmail.com") [Book online](https://www.aiims.edu/index.php/en/2015-01-23-06-34-59/2021-02-02-05-34-28)
3
CityDelhi
DoctorDr. Vishnu VY
Hospital / CentreAIIMS Delhi
DepartmentDepartment of Neurology
OPD DaysTuesday and Friday
Timings · Room
Room No. 5, CN Centre AIIMS New Delhi
Contact & Book
[vishnuvy16@yahoo.com](mailto:vishnuvy16@yahoo.com "vishnuvy16@yahoo.com")
MaharashtraIndia1 doctor· Cities: Mumbai· Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute
4
CityMumbai
DoctorDr. Jyotsna Oak
Hospital / CentreKokilaben Dhirubhai Ambani Hospital and Medical Research Institute
Department—
OPD Days—
Timings · Room—
Contact & Book
[jyotsna.oak@kokilabenhospitals.com](mailto:jyotsna.oak@kokilabenhospitals.com "jyotsna.oak@kokilabenhospitals.com")
Uttar PradeshIndia2 doctors· Cities: Lucknow· King George's Medical University (KGMU)
5
CityLucknow
DoctorDr. Mukesh MauryaIn-charge · Assistant Professor
Hospital / CentreKing George's Medical University (KGMU)
DepartmentClinical Immunology and Rheumatology
OPD DaysEvery Wednesday
Timings · Room
OPD No. 12
Contact & Book
[+91 8127758999](tel:+918127758999) [drmukesh2921@gmail.com](mailto:drmukesh2921@gmail.com "drmukesh2921@gmail.com")
6
CityLucknow
DoctorDr. Rajat Kumar SahooCo-incharge · Assistant Professor
Hospital / CentreKing George's Medical University (KGMU)
DepartmentClinical Immunology and Rheumatology
OPD DaysEvery Wednesday
Timings · Room
OPD No. 12
Contact & Book
[+91 8093273012](tel:+918093273012)
West BengalIndia2 doctors· Cities: Kolkata· IPEGMER Hospital – Myositis Expert OPD
7
CityKolkata
DoctorDr. Geetabali Sircar
Hospital / CentreIPEGMER Hospital – Myositis Expert OPD
DepartmentDept of Rheumatology
OPD DaysMonday, Wednesday & Friday
Timings · Room
9:00 AM – 2:00 PM
Room No. 3
Contact & Book
—
8
CityKolkata
DoctorDr. Subhankar Haldar
Hospital / CentreIPEGMER Hospital – Myositis Expert OPD
DepartmentDept of Rheumatology
OPD DaysMonday, Wednesday & Friday
Timings · Room
9:00 AM – 2:00 PM
Room No. 3
Contact & Book
—
| # | ACity | BDoctor | CHospital / Centre | DDepartment | EOPD Days | FTimings · Room | GContact & Book |
| --- | --- | --- | --- | --- | --- | --- | --- |
| DelhiIndia3 doctors· Cities: Delhi· AIIMS Delhi |
| 1 | Delhi | Dr. Narendra Bagri
Additional Professor – Pediatric Rheumatology | AIIMS Delhi | Department of Pediatrics | Monday / Thursday | Room No. 217, New RAK OPD | [drnarendrabagri@gmail.com](mailto:drnarendrabagri@gmail.com "drnarendrabagri@gmail.com") |
| 2 | Delhi | Dr. Siddharth Jain | AIIMS Delhi | Medicine | Mon and Thu | Room No. A219, New RAK OPD | [01126594560](tel:01126594560) [aiims.siddharth@gmail.com](mailto:aiims.siddharth@gmail.com "aiims.siddharth@gmail.com") [Book online](https://www.aiims.edu/index.php/en/2015-01-23-06-34-59/2021-02-02-05-34-28) |
| 3 | Delhi | Dr. Vishnu VY | AIIMS Delhi | Department of Neurology | Tuesday and Friday | Room No. 5, CN Centre AIIMS New Delhi | [vishnuvy16@yahoo.com](mailto:vishnuvy16@yahoo.com "vishnuvy16@yahoo.com") |
| MaharashtraIndia1 doctor· Cities: Mumbai· Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute |
| 4 | Mumbai | Dr. Jyotsna Oak | Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute | — | — | — | [jyotsna.oak@kokilabenhospitals.com](mailto:jyotsna.oak@kokilabenhospitals.com "jyotsna.oak@kokilabenhospitals.com") |
| Uttar PradeshIndia2 doctors· Cities: Lucknow· King George's Medical University (KGMU) |
| 5 | Lucknow | Dr. Mukesh Maurya
In-charge · Assistant Professor | King George's Medical University (KGMU) | Clinical Immunology and Rheumatology | Every Wednesday | OPD No. 12 | [+91 8127758999](tel:+918127758999) [drmukesh2921@gmail.com](mailto:drmukesh2921@gmail.com "drmukesh2921@gmail.com") |
| 6 | Lucknow | Dr. Rajat Kumar Sahoo
Co-incharge · Assistant Professor | King George's Medical University (KGMU) | Clinical Immunology and Rheumatology | Every Wednesday | OPD No. 12 | [+91 8093273012](tel:+918093273012) |
| West BengalIndia2 doctors· Cities: Kolkata· IPEGMER Hospital – Myositis Expert OPD |
| 7 | Kolkata | Dr. Geetabali Sircar | IPEGMER Hospital – Myositis Expert OPD | Dept of Rheumatology | Monday, Wednesday & Friday | 9:00 AM – 2:00 PM
Room No. 3 | — |
| 8 | Kolkata | Dr. Subhankar Haldar | IPEGMER Hospital – Myositis Expert OPD | Dept of Rheumatology | Monday, Wednesday & Friday | 9:00 AM – 2:00 PM
Room No. 3 | — |
8 rows · 4 statesGrouped by state · Click column headers to sort within each stateGrouped by state · Use sort controls above on mobile
Growing network
We are actively partnering with hospitals and specialists across India to add more centres of excellence. New locations will be listed here as they are confirmed. To suggest a centre or get updates, write to [info@myositisindia.org](mailto:info@myositisindia.org) for updates.
Your journey
## How to reach a centre
1. Locate
2. Book
3. Prepare
4. Get help
1/4
Step 1 · Locate
### Find your nearest centre
Use search or expand a city above. Note the hospital, consultant, and OPD details.
Patient support
## Need help choosing?
Living with myositis can feel isolating. Our patient support team can help you pick the right centre, book confidently, and connect with others who understand your journey.
[info@myositisindia.org](mailto:info@myositisindia.org)
[Contact Patient Support](mailto:info@myositisindia.org)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Myositis Clinical Trials
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/clinical-trials#)
Clinical Trials
# Hope Through Clinical Research
For people living with myositis, clinical trials can open access to newer therapies while helping improve future care standards.
Check Eligibility
In a myositis clinical trial, doctors first assess eligibility through medical evaluation and basic tests. Eligible participants then receive either the study medicine or placebo alongside standard-of-care treatment, with close follow-up over the trial period. Researchers track outcomes such as muscle strength, fatigue, rashes, pain, and day-to-day functioning.
Participation is voluntary, and each study follows strict ethical and safety protocols. When patients choose to participate, they help accelerate better treatments for the entire myositis community.
## Active Clinical Trials
Live ongoing studies across India
### Myositis Clinical Trial on Anifrolumab
Live Active
HyderabadKolkataLucknowMumbaiMysuruSecunderabad
Recruiting in multiple locations [View Details](https://clinicaltrials.gov/study/NCT06455449)
### Myositis Clinical Trial on Medicine (PF-06823859)
Live Active
GurugramKochiKolkataErnakulam
Recruiting in multiple locations [View Details](https://clinicaltrials.gov/study/NCT05895786)
### Myositis Clinical Trial on Tofacitinib
Live Active
MumbaiNew DelhiVelloreKozhikodeBhubaneswarAhmedabadHyderabadLucknowJaipurBengaluruSurat
Recruiting in multiple locations [View Details](https://ctri.nic.in/Clinicaltrials/pubview.php)
### Explore More Trials
Search ongoing trials across India.
Register [Search ClinicalTrials.gov](https://clinicaltrials.gov/search?query=myositis&locStr=India)
Research & Innovation
## Ongoing Clinical Trials
Explore active locations across India where dedicated professionals are conducting world-class Myositis research and trials.
[+](https://myositisindia.org/clinical-trials# "Zoom in") [−](https://myositisindia.org/clinical-trials# "Zoom out")
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Ask Us · Book AppointmentMyositis Chatbot
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## Contact Myositis India
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/contact#)
Connectivity
# Get in Touch.
### Mailing Address
B-12, Sir Ganga Ram Hospital Marg,
Old Rajinder Nagar, New Delhi-110060
### Phone Numbers
+91 9350646454
+91 9899982900
### Email Addresses
[info@myositisindia.org](mailto:info@myositisindia.org)
#### Response Policy
Clinical and general inquiries are typically addressed within 2-3 business days. We appreciate your patience.
## Send a Message
Fields marked with \* are required for medical intake
First Name\*
Last Name\*
Address
Mobile\*
Country
State
City
Questions/Comments
Send Message
### National Headquarters
Coordinate with our central hub in New Delhi for pan-India advocacy efforts and clinical research participation.
Ask Us · Book AppointmentMyositis Chatbot
## Donate to Myositis
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/donate#)
Ways to give
# Ways to give
Myositis India offers multiple ways for you to contribute. We accept donations through various methods, including online options, ensuring your support reaches us conveniently.
[Make an online donation](https://myositisindia.org/donate#donation-methods) [Need help?](https://myositisindia.org/contact)
What your support enables
Patient and caregiver guidance
Community programs and education
Support for research and collaboration
Thank you
Every contribution, big or small, makes a meaningful difference.
### Mail a cheque
Make your cheque payable to“Myositis India” and mail to:
Address:
B-12, Sir Ganga Ram Hospital Marg, Old Rajinder Nagar, New Delhi-110060
[Make an Online Donation](https://myositisindia.org/donate/online)
#### Payment options
100% secure payment by:
Coordination Portal
### Need Help?
Send Message
Private & Confidential Transmission
Ask Us · Book AppointmentMyositis Chatbot
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## Online Donation Portal
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/donate/online#)
[Back to Donation Options](https://myositisindia.org/donate)
Online Donation
# 🌟 Donate 🌟
Thank you for your support! Every contribution makes a difference. 🙌
## 💳 Bank Transfer Details
🏦Bank Name
IndusInd Bank Limited
📌Account No
201024503355
🔢IFSC Code
INDB0000012
📍Branch
M-56 Greater Kailash II, (Main Market) New Delhi - 110048
📱
## 📲 Scan & Pay via UPI
Scan the QR code using any UPI app to donate instantly.
🙏 Thank you for your support!
Ask Us · Book AppointmentMyositis Chatbot
## Myositis Expert Network
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/experts#)
Expert Network
# Connecting You With Specialists
We are actively building a nationwide directory of rheumatologists, neurologists, and healthcare professionals who specialize in Myositis care. This feature will be launching very soon!
[Return Home](https://myositisindia.org/) [Notify Me When Live](https://myositisindia.org/contact)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Myositis Support Links
[Visit main website](https://myositisindia.org/)
- [Our Website](https://myositisindia.org/links/go/cmpchw9j400006hvyo61lx0kd)
- [Register for Support](https://myositisindia.org/links/go/cmpcimhcs00006h6tiltj1sas)
- [Donate to Support Us](https://myositisindia.org/links/go/cmpciurjx00006h3578q5wmxp)
- [Clinical Trials \| Myositis India](https://myositisindia.org/links/go/cmpcivibg00016h35qqhr00vi)
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Medical Advisory Board
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board#)
About Myositis India
# Medical Advisory Board
Meet our expert advisory members and switch tenure years to view evolving board composition across periods.
[2024-2025](https://myositisindia.org/medical-advisory-board?term=2024-2025) [2023-2024](https://myositisindia.org/medical-advisory-board?term=2023-2024)
## Dr. Anushka Aggarwal
Medical Advisor
Location: New Delhi
MBBS from Maulana Azad Medical College, Delhi MD Medicine from Lady Hardinge Medical College, Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital, Delhi Committed to Myositis care and awareness in India. Actively involved in academic and clinical aspects of Myositis research
[Learn More](https://myositisindia.org/medical-advisory-board/dr-anushka-aggarwal)
## Dr. Chengappa Kg
Medical Advisor
Location: Mysuru
Rheumatologist with over eight years of experience. I have been working at a tertiary care hospital that caters to many patients with idiopathic inflammatory myositis and overlap myopathies. My core areas of interest are outcome measures in myositis and in understanding the damage progression because of muscle inflammation in myositis.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-chengappa-kg)
## Dr. Liza Rajasekhar
Medical Advisor
Location: Hyderabad
She has more than 25 years of experience as teacher and clinician in the field of rheumatology. She has been associated with Nizam’s Institute of Medical Sciences, Hyderabad for all her professional life after training at the Post Graduate Institute of Medical Education and Research, Chandigarh in Internal Medicine and for Laboratory Immunology at the Chang Gung Memorial Hospital, Taichung, Taiwan.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-liza-rajasekhar)
## Dr. Mahabalehwar
Medical Advisor
Location: Mysore
Asst Professor of Rheumatology, JSS Academy of Higher Education & Research, Mysore MBBS, MD Medicine, DM Rheumatology and Clinical Immunology, Madras Medical College. Member of many Rheumatology Organisations with active participation in research work. Currently working on a project on Juvenile Dermatomyositis.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-mahabalehwar)
## Dr. Neeraj Jain
Medical Advisor
Location: New Delhi
Dr Neeraj Jain DNB, FACR, FRCP (Edin) Professor, GRIPMER, Vice Chairman and Senior Consultant, Department of Rheumatology & Clinical Immunology, Sir Ganga Ram Hospital, New Delhi , India. He did his Fellowship in Rheumatology from Royal National Hospital for Rheumatic Disease, Bath, UK and King Edward Memorial Hospital, Mumbai.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-neeraj-jain)
## Dr. Pankti Mehta
Medical Advisor
Location: Toronto
MBBS, MD Medicine from Seth GS Medical College and KEM hospital, Mumbai. DM Clinical Immunology and Rheumatology from Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-pankti-mehta)
## Dr. Sundeep Kumar Upadhyana
Medical Advisor
Location: New Delhi
MBBS, MD Medicine, DM Clinical Rheumatology and Immunology, Senior Consultant Rheumatology, Professor AHER, Faculty DrNB National (Rheumatology).
[Learn More](https://myositisindia.org/medical-advisory-board/dr-sundeep-kumar-upadhyana)
## Dr. Vishnu
Medical Advisor
Location: New Delhi
Academic neurologist working as associate Professor at AIIMS New Delhi. In charge of AIIMS Comprehensive Neuromuscular Disorders clinic where they manage both acquired and inherited Neuromuscular disorders. Also, a faculty fellow of MRC funded ICGNMD (International centre for Genomic Medicine in Neuromuscular diseases). Actively involved in research activities and patient care.
[Learn More](https://myositisindia.org/medical-advisory-board/dr-vishnu)
Ask Us · Book AppointmentMyositis Chatbot
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## Privacy Policy
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/privacy-policy#)
Confidential Document
# Privacy Policy
Your privacy is of extreme importance to us. This document outlines how we handle and protect your data within the Myositis India ecosystem.
## 1\. DATA COLLECTION
We collect information you provide directly to us, such as when you create an account, register for a clinical trial, or contact us for support. This may include your name, email address, phone number, and medical interests.
## 2\. USE OF INFORMATION
We use the information we collect to provide, maintain, and improve our services, to connect patients with clinical trials, and to communicate with you about our advocacy and support programs.
## 3\. DATA SHARING
We do not share your personal information with third parties except as described in this policy, such as with your consent or to comply with legal obligations. We may share anonymized, aggregated data for research purposes.
## 4\. YOUR CHOICES
You have the right to access, update, or delete your personal information at any time. You can manage your communication preferences through your account settings or by contacting us directly.
## 5\. SECURITY
We take reasonable measures to protect your personal information from loss, theft, misuse, and unauthorized access. However, no internet transmission is ever fully secure or error-free.
Ask Us · Book AppointmentMyositis Chatbot
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## Patient Support Session
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/request-support-session#)
# One-on-One Patient Support
Use this form to request a personalized support session. Our team will review your details and contact you for scheduling.
GenderMaleFemaleOther
Verify: 9 + 4 =
Request One-on-One Support
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis Research Page
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/research#)
Clinical Research
# Advancing the science of Myositis Care.
Stay informed about the latest research, publications, and clinical trials shaping the future of myositis diagnosis and treatment.
Latest Publications
## Featured Research
### Heterogeneity in nomenclature and abbreviation usage for anti-synthetase syndrome: a scoping review
Anushka Aggarwal, Tanya Chandra, Parth Ladha, Srijan Mittal, Saloni Haldule, Simran Nirmal, Namratha Edpuganti, Nakul Jain, Lorenzo Cavagna, Giovanni Zanframundo, Sara Faghihi-Kashani, Rohit Aggarwal
Abstract:Anti-synthetase syndrome constitutes a dynamically evolving subset of Idiopathic Inflammatory Myopathy, however, the nomenclature and abbreviations for this syndrome are plagued by heterogeneity, leading to lack of consistency in literature. The objective of this study is to evaluate existing diversity in disease names and abbreviations, with a future goal to develop consensus on the nomenclature. A scoping review format was used for analysis.
[Read Full Article](https://pubmed.ncbi.nlm.nih.gov/39212691/)
### Myositis India: Early lessons from a patient support group in a resource-limited setting
Anushka Aggarwal, Narendra Kumar Bagri, Chengappa Kavadichanda, Sundeep Upadhyaya, Saloni Haldule, Parth Ladha, Neeraj Jain, Himanshu Pathak, Parthajit Das, Srijan Mittal, Rutvij Amol Tope, Aniket Ajay Nikale, Simran Nimal, Pankti Mehta, Kunal Chandwar, Rajkiran Dudam, Sourabh Malviya, Vijay K R Rao, Sunil Singh, Vanshaj Sharma, Namratha Edpuganti, Rishi Nalkande, Swaraj Salunke, Ujjwal Madan, Vanshita Batra, Rohit Aggarwal
Abstract:Patient support groups play a pivotal role in managing chronic diseases, especially in resource-limited settings. This study outlines the initial experiences and lessons learned from establishing Myositis India, highlighting its impact on patient education, emotional support, and raising awareness for myositis.
[Read Full Article](https://pubmed.ncbi.nlm.nih.gov/39304342/)
### Consensus nomenclature and abbreviation for anti-synthetase syndrome: an IMACS project
Anushka Aggarwal, Tanya Chandra, Shiri Keret, John D Pauling, Ejaz A Shamim, Francesco Bonella, Fredrick W Miller, Andrew Mammen, Gianluca Sambataro, Teerin Liewluck, Anthony P Fernandez, Elena Bartoloni, Samuel Katsuyuki Shinjo, Santos Castañeda, Victoria Werth, Mazen M Dimachkie, Yasuhiro Katsumata, Raquel Campanilho-Marques, Manabu Fujimoto, James B Lilleker, Albert Selva-O'Callaghan, Tahseen Mozaffar, Harsha Gunawardena, Herman Mann, Jorge Rojas Serrano, Lorenzo Cavagna, Siamak Moghadam-Kia, Chester V Oddis, Parth Ladha, Srijan Mittal, Saloni Haldule, Namratha Edpuganti, Shreya Sridhar, Rutvik Savaliya, Vanshita Batra, Rohit Aggarwal
Abstract:Objectives: The lack of uniform terminology and abbreviations for anti-synthetase syndrome has led to significant challenges in research and clinical practice. This study aimed to establish an international consensus on a standardized nomenclature and abbreviation among a diverse group of global myositis experts and patient representatives.
[Read Full Article](https://pubmed.ncbi.nlm.nih.gov/40286313/)
## Participate in Clinical Trials
By participating in clinical trials, you can help researchers find better treatments and a cure for myositis. Find active trials near you.
[View Clinical Trials](https://myositisindia.org/clinical-trials)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis Success Stories
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
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[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories#)
## Mr. Prashant Verma
Prashant Verma’s Myositis Journey: From Struggle to Strength
Ambassador [Know More](https://myositisindia.org/success-stories/mr-prashant-verma)
## Mr. Saurabh Sarin
Saurabh’s Myositis Journey: From Misdiagnosis to Hope
Ambassador [Know More](https://myositisindia.org/success-stories/mr-saurabh-sarin)
## Mr. Chintan Shinde
Chintan’s Polymyositis Journey: Living Strong Since Childhood
Ambassador [Know More](https://myositisindia.org/success-stories/mr-chintan-shinde)
## Mr. Sunil
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope
[Know More](https://myositisindia.org/success-stories/mr-sunil)
## Mrs. Damchen
Polymyositis Warrior Story: Damchen’s Journey of Strength & Resilience
[Know More](https://myositisindia.org/success-stories/mrs-damchen)
## Shally Puri
Myositis Survivor Story: From Misdiagnosis to Recovery & Hope
[Know More](https://myositisindia.org/success-stories/shally-puri)
## Mr. Ajay
Ajay’s Myositis Story: From Misdiagnosis to Recovery
[Know More](https://myositisindia.org/success-stories/ajay)
Ask Us · Book AppointmentMyositis Chatbot
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## Terms of Use
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/terms-and-conditions#)
Legal Document
# Terms of Use
Please read these terms and conditions carefully before using the Myositis India platform. By accessing this site, you agree to be bound by these rules.
By accessing and using The Myositis India website (“Site”), you agree to comply with and be bound by the following terms and conditions (“Terms of Use”). If you do not agree to these terms, please refrain from using the Site.
## 1\. GENERAL
The Myositis India (“TMI”) provides the Site to you subject to these Terms of Use. These Terms of Use apply to all services, content, data, images, information, and other materials posted on or available through the Site.
## 2\. NO MEDICAL ADVICE
The Site is intended for educational purposes only and not for providing medical advice. Any individual variances in myositis cases require the consultation of a physician to make sound medical decisions. The information provided on the Site is not intended to replace the advice of a physician. It is important to consult your doctor before altering anything in your treatment plan. The Myositis India does not endorse any medications, products, equipment, or treatments for myositis.
## 3\. USE OF THE SITE
The Myositis India grants you a non-exclusive license to use the Site solely for your personal, non-commercial use. By using the Site, you warrant that you will not use it for any purpose that is unlawful or prohibited by these Terms of Use. You may not reverse engineer, deconstruct, disassemble, or decompile any software or technology underlying the Site or provided through the Site, except to the extent permitted by applicable law. Your authorization to use this Site shall automatically terminate if you breach any of these Terms of Use. You may download content from the Site to any single computer for temporary use, provided you keep intact all copyright, trademark, and other proprietary notices. Any other use of the materials on any other website or networked computer environment for any purpose is prohibited.
## 4\. OWNERSHIP
The Site is owned and operated by The Myositis India, a unit of Madalasa Foundation (“TMI,” “the Association,” “we,” “us,” or “our”). All services, content, data, information, and other materials on or directly accessible from the Site are owned by MIF, its subsidiaries, affiliates, licensors, and/or vendors. Any rights not expressly granted by these Terms of Use or any other agreement with MIF are reserved by the Association and/or its vendors and licensors. Any copies that you make of material or other content provided through the Site must contain the same copyright and other proprietary notices that appear with the material or content.
## 5\. WARRANTY DISCLAIMER
The Site, including any content or information contained within it or any site-related service, is provided “as is,” with all faults, with no representations or warranties of any kind, either expressed or implied, including but not limited to, the implied warranties of merchantability, fitness for a particular purpose, quiet enjoyment, quality of information, and title/noninfringement. You assume total responsibility and risk for your use of this Site, site-related services, and hyperlinked websites. No oral or written information or advice given by MIF or the Association’s authorized representatives shall create a warranty or in any way increase the scope of this warranty.
## 6\. LIMITATION OF LIABILITY
The Myositis India, A unit of Madalasa Foundation, its affiliates, vendors, licensors, and other third parties mentioned on the site shall not be responsible or liable for any direct, indirect, incidental, consequential, special, exemplary, punitive, or other damages arising out of or relating in any way to the site, site-related services and products, content or information contained within the site, and/or any hyperlinked website. These damages include, but are not limited to, lost profits, lost data, or business interruption. Such damages may be based on warranty, contract, tort, or other legal theory, regardless of whether or not the possibility of such damages has been advised. Your sole remedy for dissatisfaction with the site, site-related services, and/or hyperlinked websites is to stop using them.
## 7\. ACCURACY AND INTEGRITY OF INFORMATION
The Myositis India endeavors to ensure the integrity and accuracy of the site, but it does not guarantee the correctness or accuracy of the site. The site may contain typographical errors, inaccuracies, or other errors. If any inaccuracy arises, please notify The Myositis India to correct it. Information on the site may be changed or updated without notice.
## 8\. YOUR LICENSE TO THE Myositis India, A unit of Madalasa Foundation
Any Communications or material of any kind that you e-mail, post, or transmit through the Site, social media handles including, questions, comments, suggestions, and other information will be treated as non-confidential and non-proprietary. You grant The Myositis India a non-exclusive, royalty-free, perpetual, world-wide, irrevocable license to reproduce, transmit, display, disclose, and otherwise use your Communications on the Site or elsewhere for our business purposes. The Myositis India is free to use any ideas, concepts, techniques, know-how in your Communications for any purpose, including, but not limited to, the development and use of products and services based on the Communications.
## 9\. YOUR COMMUNICATIONS
The Myositis India may monitor or review any areas of the Site where user Communications may be made available, including, but not limited to, chat rooms, bulletin boards, social media handles and other user forums. The Myositis India will not have liability related to the content of any such Communications, whether or not arising under the laws of copyright, defamation, privacy, obscenity, or otherwise. The Myositis India retains the right to remove/delete, in its sole discretion, Communications that violate any of the terms and conditions outlined herein or otherwise especially including those in Section 11 below.
## 10\. YOUR ACCOUNT
Upon completion of the site's registration process, you will receive a login and password. It is your responsibility to maintain the confidentiality of your password and ensure that no unauthorized person has access to your account. You are fully responsible for any activity that occurs through the use of your account and agree to immediately notify The Myositis India of any unauthorized use of your password or account or any other breach of security. You must exit your account at the end of each session. The Myositis India shall not be liable for any loss or damage arising from your failure to comply with these obligations. You must control the dissemination and use of your passwords and authorize, monitor, and control access to and use of your MIF account(s) and password(s). You shall promptly inform MIF if you wish to change your password(s). You grant MIF and all other entities involved in the operation of the TMI Site the right to transmit, monitor, retrieve, store, and use your information for the operation of the TMI Site. MIF cannot assume any responsibility or liability for any information you submit to the Site or for your or third parties' use or misuse of information transmitted or received using the Site.
## 11\. ACCEPTABLE USE POLICY
You may not transmit any material on or through the Site that restricts any other user's enjoyment of the Site, is unlawful, threatening, abusive, libelous, defamatory, pornographic, profane, or otherwise offensive, constitutes or encourages criminal conduct, gives rise to civil liability, or otherwise violates any law (including without limitation the antitrust laws), violates or infringes the rights of any third party including, without limitation, patent, copyright, trademark, privacy or any other proprietary right, contains a virus or other harmful component, contains false or misleading indications of origin or statements of fact, impersonates another user, or contains any solicitation for any cause or organisation (for-profit or nonprofit) other than MIF. The Myositis India reserves the right to disclose any information as necessary to satisfy any law, regulation, government request, court order, subpoena, or other legal process, or to edit or remove any information, in whole or in part, that is objectionable, disruptive to the Site or in violation of these Terms and Conditions. The Myositis India may immediately suspend your access to the Site in the event of any violation of this provision
## 12\. LINKS OR POINTERS TO OTHER SITES
The Myositis India makes no representations whatsoever about any other Web site that you may access through this Site. When you access a non-MIF site, please understand that it is independent from The Myositis India, A unit of Madalasa Foundation, and that The Myositis India has no control over the content on that Web site. In addition, a hyperlink to a non-MIF Web site does not mean that The Myositis India endorses or accepts any responsibility for the content, or the use, of the linked site. You are solely responsible for taking precautions to ensure that whatever you select for your use or download is free of viruses and other items of a destructive nature. If you decide to access any of the third-party sites linked to this Site, you do so entirely at your own risk.
## 13\. ENTIRE AGREEMENT
Except as provided below, these Terms and Conditions constitute the entire agreement between The Myositis India and you pertaining to the subject matter hereof. The Myositis India may, in its sole discretion, revise these Terms and Conditions by updating this posting from time to time. You should periodically visit this page to review the current Terms and Conditions to be aware of any revisions to which you are bound. Certain provisions of these Terms and Conditions may be superseded.
### Questions about our legal terms?
Our support team is here to help clarify any points of concern.
[Contact Support](https://myositisindia.org/contact)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis Blog Insights
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/blog#)
Editorial
[**Understanding Myositis: A Comprehensive Guide to Symptoms, Diagnosis, and Treatment Options**](https://myositisindia.org/blog/understanding-myositis-a-comprehensive-guide-to-symptoms-diagnosis-and-treatment-options)
Myositis is a rare autoimmune disease that causes muscle inflammation and weakness, often making everyday tasks increasingly difficult. Learn about its symptoms, diagnosis, treatment options, and how early recognition and specialist care can help people manage the condition and improve quality of life.
[Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Aug 11, 2026•5 MIN
Editorial
[**Living with Myositis: Personal Stories and Insights from Patients in India**](https://myositisindia.org/blog/living-with-myositis-personal-stories-and-insights-from-patients-in-india)
Living with myositis is about more than managing symptoms. Through real patient stories from across India, discover the challenges of delayed diagnosis, treatment, recovery, and the importance of specialist care, rehabilitation, and community support in living well with this rare disease.
[Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Aug 11, 2026•7 MIN
Editorial
[**Autoimmune Diseases in India: A Closer Look at Myositis and Its Impact**](https://myositisindia.org/blog/autoimmune-diseases-in-india-a-closer-look-at-myositis-and-its-impact)
Delve into the complexities of autoimmune diseases in India, with a special emphasis on myositis and its profound effects on individuals and communities.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases) [Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Aug 6, 2026•6 MIN
Editorial
[**The Contribution of Healthcare NGOs in India to Myositis Research and Support**](https://myositisindia.org/blog/the-contribution-of-healthcare-ngos-in-india-to-myositis-research-and-support)
Learn about the significant contributions of healthcare NGOs in India towards myositis research and the support they provide to improve patient outcomes.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases) [Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Aug 4, 2026•6 MIN
Editorial
[**Living with Myositis: Patient Stories and Coping Strategies**](https://myositisindia.org/blog/living-with-myositis-patient-stories-and-coping-strategies)
Read about the challenges and triumphs of living with Myositis through patient narratives. Gain practical coping strategies to help in your journey.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases)
Jul 30, 2026•6 MIN
Editorial
[**Navigating the Treatment Landscape for Myositis: Insights and Innovations**](https://myositisindia.org/blog/navigating-the-treatment-landscape-for-myositis-insights-and-innovations)
Explore the latest insights and innovations in myositis treatment. Navigate the complex landscape of therapies to find the best options for your health.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases)
Jul 28, 2026•5 MIN
Editorial
[**The Role of Autoimmune Diseases in Muscle Weakness: Exploring Myositis and Its Impact**](https://myositisindia.org/blog/the-role-of-autoimmune-diseases-in-muscle-weakness-exploring-myositis-and-its-impact)
Discover how autoimmune diseases like myositis contribute to muscle weakness. Explore the symptoms, causes, and treatment options for better management.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases)
Jul 23, 2026•5 MIN
Editorial
[**The Role of Early Diagnosis in Managing Myositis: Key Symptoms to Watch For**](https://myositisindia.org/blog/the-role-of-early-diagnosis-in-managing-myositis-key-symptoms-to-watch-for)
Early diagnosis is crucial in myositis management. Explore key symptoms to identify and enhance your understanding of this condition.
[Autoimmune Diseases](https://myositisindia.org/blog?category=autoimmune-diseases) [Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Jul 14, 2026•6 MIN
Editorial
[**Advances in Research: What’s New in the Study of Myositis?**](https://myositisindia.org/blog/advances-in-research-whats-new-in-the-study-of-myositis)
Explore the latest breakthroughs in myositis research, innovative treatments, and diagnostics aiming to improve patient outcomes and foster community hope.
[Prevention & Awareness](https://myositisindia.org/blog?category=prevention-awareness)
Jul 10, 2026•5 MIN
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## Myositis India Resources
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## Myositis Overview Guide
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Understanding Myositis
## **Understanding Myositis: A Comprehensive Guide to Symptoms, Diagnosis, and Treatment Options**
Muscle weakness is something many people dismiss at first. It is often blamed on stress, ageing, lack of exercise, or nutritional deficiencies. But what if that weakness slowly begins to interfere with climbing stairs, lifting your arms, getting up from a chair, or even swallowing food?
In some cases, these symptoms may point to myositis, a rare autoimmune condition that often goes undiagnosed for months because its signs overlap with many other illnesses. Understanding the disease, recognising its symptoms, and seeking timely medical care can make a significant difference to a patient's quality of life.
### **What is Myositis?**
Myositis refers to a group of rare autoimmune diseases in which the body's immune system mistakenly attacks healthy muscle tissue, leading to inflammation and progressive muscle weakness. Depending on the type of myositis, patients may also experience skin rashes, joint pain, lung involvement, fatigue, or difficulty swallowing.
There are several forms of myositis, including dermatomyositis, polymyositis, inclusion body myositis, immune-mediated necrotising myopathy, antisynthetase syndrome, and juvenile myositis. Each presents differently, which is one reason diagnosis can sometimes be challenging.
Although myositis is considered a rare disease, its impact on daily life can be profound. Without treatment, muscle weakness may gradually worsen, making routine activities increasingly difficult.
### **Common Symptoms of Myositis**
Symptoms often develop gradually, although some patients may experience a more rapid onset.
In many forms of myositis, the characteristic symptom is weakness of the proximal muscles, particularly around the shoulders and hips. Patients may notice difficulty climbing stairs, lifting objects overhead, standing up from low chairs, or walking long distances.
Other symptoms may include:
- Persistent muscle pain or tenderness
- Unusual fatigue that does not improve with rest
- Difficulty swallowing food or liquids
- Shortness of breath if respiratory muscles are affected
- Skin rashes, especially in dermatomyositis
- Joint pain or stiffness
- Unexplained weight loss or fever in some patients
Because these symptoms overlap with several other conditions, many people are initially treated for unrelated problems before receiving the correct diagnosis.
### **Why Early Diagnosis Matters**
One of the biggest challenges surrounding myositis is delayed diagnosis. Since the disease is uncommon, many patients consult several healthcare professionals before reaching a rheumatologist or another specialist familiar with inflammatory muscle diseases.
Diagnosis does not rely on a single test. Instead, doctors evaluate a combination of medical history, physical examination, blood investigations, imaging studies, and specialised laboratory tests.
The sooner myositis is identified, the sooner treatment can begin. For many autoimmune forms of myositis, timely diagnosis allows treatment to begin earlier, helping control disease activity and potentially limiting loss of muscle function and organ complications.
### **How is Myositis Diagnosed?**
Diagnosing myositis is often described as putting together pieces of a puzzle. Doctors gather information from multiple sources before confirming the condition.
Common diagnostic tools include:
- **Blood tests:** Muscle enzymes such as Creatine Kinase (CK) may be elevated when muscles are inflamed. Doctors may also order autoimmune antibody tests that can help identify specific subtypes of myositis.
- **MRI scans:** Magnetic Resonance Imaging helps detect muscle inflammation and can guide further investigations.
- **Electromyography (EMG):** This test measures electrical activity within muscles and helps distinguish muscle disorders from nerve disorders.
- **Muscle or skin biopsy:** Examining a small sample of muscle or skin tissue under a microscope remains one of the most important methods of confirming certain types of myositis.
Doctors may also recommend lung function tests, heart evaluations, or swallowing assessments if symptoms suggest involvement beyond the muscles. Since myositis can overlap with other autoimmune diseases, additional investigations are often needed to rule out similar conditions.
### **Treatment Options for Myositis**
There is currently no definitive cure for the idiopathic inflammatory myopathies. However, many forms can be controlled with treatment, and some patients achieve substantial improvement or remission. The course of IBM is different and is typically slowly progressive.
Treatment plans are individualised according to the type of myositis, disease severity, and organs involved.
Common treatment approaches include:
- **Medications:** Corticosteroids are often the first medications prescribed to quickly reduce inflammation. Depending on the patient's response, immunosuppressive medicines, intravenous immunoglobulin (IVIG), or biologic therapies may also be recommended.
- **Physiotherapy:** Carefully supervised exercise programmes help preserve muscle strength, improve flexibility, and reduce disability. Rest alone is no longer considered the best long-term strategy for most patients.
- **Occupational and speech therapy:** Some patients benefit from occupational therapy to improve daily functioning or speech and swallowing therapy if throat muscles are affected.
- **Regular monitoring:** Follow-up appointments allow doctors to assess disease activity, monitor treatment response, and identify any medication side effects early.
Successful treatment usually combines medication with rehabilitation, lifestyle modifications, and ongoing communication between patients and their healthcare team.
### **Living Well with Myositis**
Receiving a diagnosis of myositis can feel overwhelming, but many people continue to lead fulfilling and productive lives.
Managing the condition involves more than medication alone. Eating a balanced diet, following prescribed physiotherapy, maintaining good sleep habits, avoiding smoking, protecting the skin from excessive sunlight where appropriate, and attending regular medical appointments all contribute to better long-term health.
Equally important is emotional wellbeing. Connecting with patient support groups and others living with myositis often provides reassurance, practical advice, and encouragement during difficult periods.
### **The Role of Myositis India**
Living with a rare disease often means searching for reliable information, experienced specialists, and people who truly understand the journey. Myositis India works to bridge these gaps by supporting patients, caregivers, and healthcare professionals through awareness programmes, educational webinars, patient communities, clinical information, and advocacy.
By promoting awareness and connecting families with appropriate resources, the organisation aims to improve access to timely diagnosis and quality care for people living with myositis across India.
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## Myositis Patient Stories
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[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/blog/living-with-myositis-personal-stories-and-insights-from-patients-in-india#)
## **Living with Myositis: Personal Stories and Insights from Patients in India**
Myositis is a rare autoimmune muscle disease, but its impact goes far beyond muscle weakness. It changes routines, careers, relationships, and confidence. In India, where awareness of rare diseases is still growing, many people spend months or even years searching for answers before receiving the right diagnosis. For many families, the journey begins with confusion, repeated consultations, and uncertainty.
The encouraging part is that every diagnosis also marks the beginning of hope. With the right myositis diagnosis, timely myositis treatment, physiotherapy, and a strong support system, many people learn to manage the condition and regain their independence. The stories of patients across India remind us that while the disease is challenging, no one has to face it alone.
### **Living with Myositis in India**
One of the biggest challenges for people living with autoimmune muscle disease is that the symptoms often resemble more common conditions. Muscle weakness may be mistaken for nutritional deficiencies, fatigue, ageing, post-viral weakness, or stress. Skin rashes may be treated as allergies or eczema. This often delays specialist referral and appropriate treatment.
The emotional burden can be just as difficult. Many patients find themselves explaining an illness that even friends and relatives have never heard of. Everyday tasks such as climbing stairs, getting dressed, swallowing food, typing on a keyboard, or standing up from a chair may slowly become difficult. Since these changes usually happen gradually, people often push themselves to continue until their symptoms become severe.
Receiving the correct diagnosis is often a turning point. Rheumatologists use a combination of clinical examination, blood tests, imaging, antibody testing, and sometimes muscle biopsy to confirm the disease. Once treatment begins, patients usually work with a multidisciplinary team that may include physiotherapists, occupational therapists, speech therapists, and other specialists depending on their symptoms.
The experiences of patients across India also highlight another important lesson. Recovery rarely happens overnight. Progress is often measured through small victories that slowly add up over time.
### **Ajay's Story: Finding Answers After Months of Misdiagnosis**
Ajay's journey began in 2019 with what seemed like a simple facial rash. Within days, muscle weakness followed. Basic activities such as combing his hair, getting dressed, and preparing meals became increasingly difficult.
His search for answers was frustrating. The skin rash was initially treated as acne, while muscle weakness was attributed to osteoporosis. Neither explanation matched what he was experiencing, and his condition continued to worsen.
Everything changed when he met a rheumatologist who immediately recognised the pattern of symptoms and diagnosed myositis. For the first time, Ajay understood what had been happening to his body.
The road ahead was not easy. Shortly after his diagnosis, a fall caused by severe muscle weakness resulted in a brain hematoma. Recovery required hospitalisation and a year of high-dose steroid treatment.
Today, Ajay has returned to a largely normal life. He continues regular follow-ups with his medical team and follows his treatment plan carefully. Looking back, he believes that getting the right diagnosis changed everything.
His message is simple. Never ignore persistent symptoms, and never hesitate to seek another medical opinion if something does not feel right.
### **Shally Puri: Trusting Her Instincts Changed Everything**
Shally Puri's journey is a reminder that patients often know when something isn't right, even when the answers are not immediately obvious.
Her health problems began after recovering from COVID-19 in 2020. She developed severe shoulder stiffness, weakness, and unexplained weight loss. Doctors initially attributed everything to post-COVID effects and nutritional deficiencies. She was advised to take supplements and wait for recovery.
Although some symptoms improved, the weakness never truly went away.
Life became even more challenging during her pregnancy in 2021. She experienced several complications, including liver cholestasis, gestational diabetes, pre-eclampsia, and the premature birth of her daughter, who thankfully recovered after spending time in the NICU. Even after delivery, her muscle weakness continued to worsen.
When she found it increasingly difficult to stand up from a chair, Shally began researching her symptoms herself. She suspected myositis and requested specific investigations, even though the possibility was initially dismissed. Eventually, an abnormal EMG and blood tests confirmed that she was right.
Following diagnosis, she received high-dose steroid therapy and began appropriate treatment. Combined with medication, exercise, and lifestyle changes, her condition gradually improved.
Today, Shally encourages others to trust their bodies and seek further evaluation if symptoms continue despite treatment. She says, "Listen to your body. Get the right diagnosis. Mental health is just as important as medication. Recovery is possible when you don't give up."
Her story reflects a reality faced by many people living with rare autoimmune diseases in India. Diagnosis often takes time, but asking questions, seeking specialist care, and staying mentally strong can make a meaningful difference.
### **Sunil's Story: Fighting Through Uncertainty**
At just 25 years old, Sunil's life changed unexpectedly in 2023.
It began with muscle pain, skin rashes, fatigue, rapid weight loss, and increasing weakness. Like many patients, he initially believed it was temporary. Despite several consultations and medications, his symptoms kept getting worse.
Simple activities became exhausting. Swallowing food was difficult. Inflamed fingers made typing almost impossible. Riding his motorcycle and performing routine daily tasks gradually became out of reach. Eventually, he was referred to a rheumatologist who ordered specialised investigations. The diagnosis confirmed myositis.
Treatment included corticosteroids, immunosuppressive medication, IVIG therapy, and later Rituximab. The journey was physically demanding and emotionally overwhelming. Hospitalisation, feeding tubes, muscle biopsies, medication side effects, and regular medical visits became part of everyday life.
Throughout this period, Sunil continued working whenever possible and remained determined not to let the disease define him.
Today, he actively contributes to the Myositis India community by helping create awareness for other patients. His experience has convinced him that early diagnosis and patient education can make a meaningful difference for others beginning the same journey.
### **Damchen's Story: Choosing Strength Every Day**
Damchen was diagnosed with polymyositis in 2012 after consulting several doctors and undergoing numerous investigations.
Living with the disease meant dealing with repeated flare-ups, medication changes, and their side effects. Everyday activities gradually became difficult. Standing up, walking, and even eating required increasing effort. At one stage, her weight dropped dramatically to just 36 kilograms.
Despite these setbacks, Damchen refused to give up. Instead of allowing the disease to define her, she continued pursuing activities she loved. Remarkably, she even went on hikes and treks while living with polymyositis.
Her story reminds patients that resilience does not mean pretending life is easy. It means continuing to move forward despite the obstacles. Small improvements, consistent treatment, and a positive outlook helped her regain confidence and continue living an active life.
### **Lessons Shared by Every Journey**
Although every patient's experience is unique, these stories reveal several common themes.
Early diagnosis changes outcomes. Delays in recognising symptoms often prolong suffering and allow muscle damage to progress.
The right specialist matters. Rheumatologists play an important role in identifying different forms of myositis and planning appropriate treatment.
Recovery takes patience. Improvement usually happens gradually through medication, physiotherapy, exercise tailored to individual ability, and regular follow-up.
Support makes a difference. Family members, caregivers, healthcare professionals, and patient communities provide emotional strength during difficult periods.
Mental resilience is equally important. Living with a chronic illness brings uncertainty, but maintaining hope helps patients cope with long treatment journeys.
### **The Role of Myositis India**
For many people, receiving a diagnosis is only the beginning of the journey. Questions about treatment, daily life, physiotherapy, clinical trials, financial concerns, and emotional wellbeing often follow.
This is where Myositis India has become an important source of support. The organisation connects patients, caregivers, doctors, researchers, and volunteers through educational programmes, awareness initiatives, webinars, patient communities, and guidance on available treatment options.
Equally important, it helps people realise they are not facing this disease alone. Listening to someone who has walked a similar path often provides reassurance that no textbook can offer.
If you are living with myositis, caring for someone who is, or simply wish to support the rare disease community, consider becoming a part of Myositis India. Every patient, caregiver, volunteer, healthcare professional, and well-wisher helps strengthen a community built on knowledge, compassion, and hope.
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## Insight on Myositis
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/blog/autoimmune-diseases-in-india-a-closer-look-at-myositis-and-its-impact#)
A Closer Look at Myositis and Its Impact
Autoimmune diseases are becoming an increasingly important public health concern in India. Conditions such as rheumatoid arthritis, lupus, multiple sclerosis, and inflammatory bowel disease are now being diagnosed more frequently than before. Among these conditions lies a lesser-known but equally significant disease called **myositis**, a rare autoimmune disorder that can profoundly affect a person's mobility, independence, and quality of life.
Despite advancements in medicine, awareness about myositis remains limited. Many patients spend months or even years searching for answers before receiving the correct diagnosis. Understanding this disease and recognising its early signs can make a significant difference in patient outcomes.
**Understanding Autoimmune Diseases in India**
An autoimmune disease occurs when the body's immune system mistakenly attacks its own healthy tissues instead of protecting them from infections.
India is witnessing a steady rise in autoimmune disorders due to a combination of factors, including:
- Improved diagnostic facilities
- Greater awareness among physicians
- Environmental influences and lifestyle changes
- Better reporting and research in immune-mediated diseases
Although exact numbers are difficult to estimate because of underreporting, autoimmune diseases affect millions of Indians. Yet rare disorders such as myositis continue to remain largely under-recognised.
**What is Myositis Disease?**
So, **what is myositis disease?**
In this blog, myositis refers to a group of rare immune-mediated conditions known as idiopathic inflammatory myopathies. These conditions primarily cause muscle weakness and may also affect the skin, lungs, joints or swallowing muscles, depending on the subtype. The immune system attacks skeletal muscles, leading to progressive weakness and, in some cases, involvement of the skin, lungs, joints, heart, and digestive system.
Myositis is not a single disease but a spectrum of conditions that includes:
**Dermatomyositis (DM)**
Characterised by muscle weakness along with distinctive skin rashes such as Gottron's papules, heliotrope rash, and rashes over the chest and shoulders.
**Anti-synthetase Syndrome (ASS)**
Often associated with interstitial lung disease, joint pain, Raynaud's phenomenon, and a condition known as "mechanic's hands."
**Immune-Mediated Necrotising Myopathy (IMNM)**
Typically presents with severe muscle weakness and markedly elevated muscle enzymes.
**Inclusion Body Myositis (IBM)**
Usually affects older adults and progresses slowly. It often involves weakness of hand grip and leg muscles and tends to respond poorly to conventional treatment.
**Myositis Symptoms: The Signs That Should Not Be Ignored**
One of the biggest challenges with myositis is that the symptoms often appear gradually and resemble many other common conditions.
Some of the most common **myositis symptoms** include:
- Persistent muscle weakness, especially in the shoulders and hips
- Difficulty climbing stairs
- Trouble getting up from a chair or lifting objects
- Frequent falls
- Difficulty combing hair or raising the arms
- Fatigue and body aches
- Difficulty swallowing
- Skin rashes in certain subtypes
- Shortness of breath due to lung involvement
Many patients initially believe that these symptoms are simply due to ageing, stress, vitamin deficiency, or lack of exercise.
Unfortunately, delayed recognition can result in progressive muscle damage and complications.
**Why Myositis Diagnosis is Often Delayed in India**
Because myositis is a rare disease, patients often consult multiple doctors before reaching the correct diagnosis.
The journey to diagnosis can be particularly difficult because symptoms overlap with:
- Hypothyroidism
- Vitamin deficiencies
- Neurological disorders
- Fibromyalgia
- Muscular dystrophies
- Other autoimmune diseases
A proper **myositis diagnosis** generally requires several components.
**Clinical Assessment**
Doctors carefully assess the pattern of muscle weakness and associated symptoms.
**Blood Tests**
Muscle enzymes such as Creatine Kinase (CK or CPK) are often elevated, indicating muscle inflammation or damage.
**Autoantibody Testing**
Myositis-specific antibodies help identify disease subtypes and predict complications such as lung involvement.
**MRI of Muscles**
MRI helps detect muscle inflammation and guides biopsy selection.
**Electromyography (EMG)**
This test evaluates muscle electrical activity and helps distinguish muscle disease from nerve disorders.
**Muscle or Skin Biopsy**
In many cases, biopsy remains an important tool for confirming the diagnosis.
Diagnosis is rarely based on a single test. Instead, physicians combine clinical findings, laboratory investigations, imaging, and biopsy results.
**The Physical and Emotional Impact of Myositis**
The effects of myositis extend far beyond muscle weakness.
**Loss of Independence**
Activities that were once simple, such as climbing stairs, dressing, cooking, or carrying groceries, can become difficult.
**Impact on Employment**
Many patients struggle to continue working because of fatigue and physical limitations.
**Mental Health Challenges**
Living with a chronic and rare illness often leads to anxiety, frustration, and feelings of isolation.
**Financial Burden**
Long-term treatment, investigations, physiotherapy, and specialist consultations can place considerable strain on families.
In India, where awareness of rare diseases is still developing, many patients also face social misunderstandings regarding their condition.
**Myositis Treatment: A Multidisciplinary Approach**
Although there is currently no cure for myositis, early treatment can significantly improve outcomes and quality of life.
**Corticosteroids**
Steroids remain the first line of treatment and rapidly reduce inflammation.
**Immunosuppressive Medicines**
Depending on disease severity and organ involvement, medications such as:
- Methotrexate
- Azathioprine
- Mycophenolate mofetil
- Tacrolimus
may be prescribed.
**Advanced Therapies**
In severe or refractory cases, treatments such as:
- Intravenous Immunoglobulin (IVIG)
- Rituximab
- Emerging biologic therapies
may be considered.
**Physiotherapy**
Exercise and rehabilitation are now recognised as essential components of treatment. Structured physiotherapy helps preserve muscle strength, improve mobility, and prevent disability.
**Management of Complications**
Patients with lung disease, swallowing difficulties, or cardiac involvement often require additional specialist care.
**The Need for Greater Awareness in India**
Rare diseases frequently remain invisible until they affect someone personally.
Greater awareness about myositis is needed among:
- The general public
- Primary care physicians
- Allied healthcare professionals
- Policy makers
Early recognition can shorten the diagnostic journey and reduce complications.
Patient advocacy groups and organisations such as **Myositis India** have played an important role in improving awareness, supporting patients and caregivers, organising educational initiatives, and helping individuals navigate complex treatment decisions.
These efforts are gradually building a stronger support system for patients living with inflammatory muscle diseases in India.
**Looking Ahead**
The understanding of autoimmune diseases has expanded significantly over the past two decades, and myositis is no exception. Improved antibody testing, better imaging techniques, multidisciplinary care, and ongoing research are changing the outlook for patients.
However, awareness remains one of the greatest unmet needs.
For many patients, an early diagnosis means preserving mobility, reducing complications, and maintaining a better quality of life.
Recognising that persistent muscle weakness is not always "normal fatigue" may be the first step towards timely treatment and better outcomes.
**Frequently Asked Questions**
**1\. What is myositis disease?**
Myositis is a group of rare autoimmune diseases in which the immune system attacks healthy muscles, leading to inflammation, muscle weakness, fatigue, and sometimes involvement of the skin, lungs, or other organs.
**2\. What are the early symptoms of myositis?**
Early symptoms may include difficulty climbing stairs, trouble lifting the arms, frequent fatigue, muscle pain, difficulty swallowing, and skin rashes in certain forms of the disease.
**3\. Is myositis curable?**
Currently, there is no permanent cure for myositis. However, many patients achieve good disease control and improved quality of life through medications, physiotherapy, and regular monitoring.
**4\. How is myositis diagnosed?**
Diagnosis usually involves a combination of medical history, physical examination, blood tests, muscle enzyme levels, autoantibody testing, MRI scans, electromyography, and sometimes muscle biopsy.
**5\. Can people with myositis lead a normal life?**
Many patients are able to maintain an active and fulfilling life with early diagnosis, appropriate treatment, physiotherapy, and ongoing support from healthcare professionals and caregivers.
**6\. Why is awareness about myositis important in India?**
Awareness is essential because the disease is often mistaken for more common conditions, leading to delayed diagnosis and treatment. Better awareness can help patients receive timely care and reduce long-term complications.
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## NGOs and Myositis Support
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/blog/the-contribution-of-healthcare-ngos-in-india-to-myositis-research-and-support#)
Contribution of Healthcare NGOs in Myositis
Rare diseases often exist in the shadows of public healthcare conversations. Among them is **myositis**, a group of autoimmune muscle diseases that remains largely unfamiliar to many people in India. For patients and families, the journey often begins with unexplained muscle weakness, repeated consultations, delayed diagnosis, and feelings of isolation.
In this landscape, healthcare non-governmental organisations have emerged as an important source of support. Their role goes far beyond awareness campaigns. They are helping patients find answers, connect with specialists, participate in research initiatives, and build communities that make living with a rare disease less lonely.
**Understanding Myositis and Why Awareness Matters**
Many people still ask, **what is myositis?**
Myositis refers to a group of rare autoimmune disorders in which the body's immune system mistakenly attacks healthy muscles, leading to inflammation and weakness. Common forms include:
- Dermatomyositis
- Polymyositis
- Inclusion Body Myositis (IBM)
- Anti-synthetase Syndrome
- Immune-Mediated Necrotising Myopathy
Symptoms can vary significantly, but common signs include:
- Persistent muscle weakness, particularly in the shoulders and hips
- Difficulty climbing stairs or getting up from a chair
- Trouble swallowing
- Skin rashes in certain subtypes
- Fatigue and body aches
- Breathlessness in cases involving lung disease
Because these symptoms can resemble many other conditions, patients frequently experience delayed diagnosis. Studies from different countries have shown that rare disease patients often spend years searching for an accurate diagnosis, and India faces similar challenges due to limited awareness and a shortage of specialised centres.
This makes **rare disease awareness** particularly important.
**The Growing Role of Healthcare NGOs in India**
Healthcare NGOs in India have historically played a major role in diseases such as cancer, HIV, thalassaemia, and mental health. Increasingly, they are also becoming essential partners in the rare disease ecosystem.
For conditions like myositis, NGOs help bridge several gaps:
**Creating Awareness**
Public understanding of autoimmune diseases remains limited in India. Many patients initially attribute symptoms to ageing, nutritional deficiencies, stress, or overwork.
Through educational webinars, patient stories, social media campaigns, and community events, NGOs help people recognise that persistent muscle weakness may indicate an underlying **autoimmune muscle disease** rather than ordinary fatigue.
Awareness also helps reduce stigma and encourages earlier medical consultation.
**Supporting Patients and Families**
Living with myositis affects every aspect of daily life. Patients may struggle with mobility, employment, emotional wellbeing, and financial stress.
Healthcare NGOs often provide:
- Information on the disease and treatment options
- Guidance regarding specialist centres and physicians
- Emotional support through patient communities
- Caregiver education and counselling resources
- Opportunities to connect with others facing similar challenges
For many families, speaking with another patient who understands the condition can be deeply reassuring.
**Improving Access to Reliable Information**
Rare diseases are often surrounded by misinformation.
Patients frequently encounter conflicting advice regarding diets, alternative therapies, or unverified cures. NGOs play an important role in ensuring that information shared with patients is medically accurate and based on current scientific understanding.
This becomes particularly valuable in diseases like myositis, where treatment plans can be complex and may involve rheumatologists, neurologists, pulmonologists, physiotherapists, and dermatologists.
**NGOs and Rare Disease Research**
Research in rare diseases depends heavily on collaboration between doctors, researchers, patients, and advocacy groups.
Healthcare NGOs contribute to research by:
**Building Patient Registries**
Patient registries help researchers understand:
- Disease prevalence
- Different clinical presentations
- Treatment outcomes
- Long-term complications
Such information is particularly important in India because reliable epidemiological data on myositis remains limited.
**Encouraging Participation in Clinical Research**
Clinical trials are essential for developing better treatments.
However, many patients remain unaware of ongoing studies or are hesitant due to misconceptions regarding research participation.
NGOs can:
- Educate patients about clinical trials
- Explain consent processes
- Help identify suitable research centres
- Connect patients with investigators
This contributes to faster progress in understanding and treating rare autoimmune diseases.
**Supporting Collaboration**
Patient advocacy organisations often facilitate conversations between clinicians, researchers, pharmaceutical companies, and policy makers.
These collaborations can ultimately improve access to new therapies and strengthen rare disease policies in India.
**The Role of Myositis India**
Among organisations working in this field, **Myositis India** has emerged as a significant support system for patients and caregivers.
As a patient advocacy organisation dedicated to myositis, it works to increase awareness, provide educational resources, connect patients with experts, and encourage informed decision-making.
Its efforts include:
- Conducting patient and physician webinars
- Providing information about treatment options and clinical trials
- Building patient support communities
- Facilitating dialogue between patients and specialists
- Promoting awareness regarding early diagnosis and multidisciplinary care
For many individuals living with myositis, finding a community that understands the disease can make an enormous difference. Organisations like Myositis India help patients realise that they are not alone in their journey.
**Why India Needs Stronger Rare Disease Advocacy**
India's National Policy for Rare Diseases has brought much-needed attention to conditions that were previously neglected. Yet significant challenges remain.
These include:
- Limited awareness among the general public
- Delayed diagnosis
- Unequal access to specialised care
- Financial burden of long-term treatment
- Insufficient epidemiological data
Healthcare NGOs can play a crucial role in addressing these gaps.
By amplifying patient voices and advocating for better healthcare systems, these organisations help move rare diseases from the margins into mainstream healthcare discussions.
**Looking Ahead**
The future of myositis care in India depends not only on medical advances but also on community support, awareness, and advocacy.
Every awareness campaign, patient webinar, support group meeting, and research initiative contributes to a larger goal: ensuring that no patient spends years searching for answers alone.
Healthcare NGOs have shown that meaningful change often begins with information, empathy, and collective action.
For patients living with myositis and other rare autoimmune conditions, these organisations provide something equally important as treatment: hope, understanding, and a sense of belonging.
**Frequently Asked Questions**
**1\. What is myositis?**
Myositis is a group of rare autoimmune diseases in which the immune system attacks healthy muscles, causing inflammation, muscle weakness, fatigue, and sometimes skin, lung, or swallowing problems.
**2\. What are the common causes of muscle weakness in myositis?**
The muscle weakness in myositis occurs because ongoing inflammation damages muscle fibres. Weakness usually affects muscles near the shoulders, hips, neck, and thighs, making everyday activities difficult.
**3\. Why is myositis often diagnosed late in India?**
Symptoms such as tiredness, pain, and weakness can resemble many other conditions. Limited awareness and the rarity of the disease often lead to delays in recognising and diagnosing myositis.
**4\. How do healthcare NGOs help patients with myositis?**
Healthcare NGOs provide education, emotional support, information about specialists and treatments, patient communities, awareness campaigns, and guidance regarding research and clinical trials.
**5\. What does Myositis India do?**
Myositis India works to improve awareness and support for patients and caregivers through educational initiatives, patient advocacy, community building, and by helping individuals access reliable information about myositis and its management.
**6\. Can patients contribute to myositis research?**
Yes. Patients can contribute by participating in registries, surveys, awareness initiatives, and clinical studies when appropriate. Patient participation is vital for improving understanding and treatment of rare diseases.
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## Myositis Patient Insights
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Living with Myositis
For many people, muscle weakness, constant fatigue, or unexplained skin rashes are often dismissed as stress, ageing, vitamin deficiencies, or overwork. Yet for some, these seemingly ordinary symptoms become the beginning of a long and difficult journey towards understanding a rare autoimmune condition called myositis.
So, what is Myositis disease? Myositis is a group of rare autoimmune diseases in which the body's immune system mistakenly attacks healthy muscles, causing inflammation, weakness, pain, and in some cases, involvement of the skin, lungs, or swallowing muscles. Conditions such as dermatomyositis, polymyositis, and inclusion body myositis fall under this umbrella.
Although awareness of autoimmune diseases in India is slowly improving, myositis diagnosis still remains challenging. Many patients spend months or even years moving between doctors before receiving the right answers. Yet, behind every diagnosis lies a story of resilience, hope, and adaptation.
**The Emotional Reality of Living with Myositis**
Living with myositis is not only a physical battle. It affects every aspect of daily life. Simple tasks that most people perform without thinking, climbing stairs, getting up from a chair, combing hair, swallowing food, or even walking short distances, can become exhausting challenges.
Many patients also experience uncertainty and frustration during the early stages of the disease. Since myositis symptoms often resemble other conditions, patients are frequently told that their problems are psychological, stress-related, or temporary.
This delay can lead to worsening symptoms and emotional distress.
The stories of patients living with myositis remind us that behind every medical term is a person learning to rebuild their life.
**Mr. Prashant Verma: Learning to Live Again**
In August 2020, Mr. Prashant Verma began noticing unusual soreness and pain in his muscles. Once physically active, he suddenly found himself struggling with everyday movements. Gradually, the weakness worsened.
Sitting down and standing up became difficult. Swallowing food became nearly impossible, and whatever little he managed to eat was often vomited immediately afterward.
The timing made things even more complicated. During the COVID-19 pandemic, several of his symptoms were initially investigated from a different perspective. Multiple consultations and tests failed to provide answers. For months, his condition continued to deteriorate.
Finally, after changing several doctors, a physician checked his Creatine Kinase (CK) levels and suspected myositis. In December 2020, nearly four months after his first symptoms appeared, he finally received a diagnosis.
His story reflects a reality experienced by many patients in India. Delayed myositis diagnosis remains one of the biggest challenges in managing rare autoimmune diseases. Today, Mr. Verma continues to advocate for awareness and support for patients living with this condition.
**Mr. Chintan Shinde: Growing Up with Myositis**
Mr. Chintan Shinde's journey began much earlier. Diagnosed in 1991 at the age of seven, he remembers becoming exhausted after walking only a few hundred metres. Muscle cramps and weakness gradually became a part of everyday life.
At that time, information about myositis in India was extremely limited. His family consulted numerous doctors before receiving a diagnosis. Treatment involved long courses of steroids, physiotherapy sessions, and various supportive therapies.
Despite physical difficulties, Mr. Shinde continued with school and academics. He even pursued activities such as cycling and Taekwondo, although they often caused pain and fatigue. One aspect of his journey that stands out is his determination to maintain normalcy. He also experienced occasional brain fog and concentration difficulties but developed his own coping mechanisms through repeated revision and mental exercises. Years later, he entered a phase of remission and continued physiotherapy to maintain his strength and mobility.
His story highlights an important message. A diagnosis of myositis does not mean life comes to a standstill. With appropriate care, adaptation, and support, patients can continue pursuing education, careers, and personal goals.
**Mr. Saurabh Sarin: Finding Strength Through Community**
Like many patients with rare diseases, Mr. Saurabh Sarin's journey involved uncertainty, emotional challenges, and the need to continuously adapt to changing circumstances. Living with a chronic autoimmune illness often means accepting that good days and difficult days may alternate. Treatment plans evolve, symptoms fluctuate, and emotional resilience becomes just as important as physical recovery.
Mr. Sarin's experience also reflects the significance of patient communities. Rare diseases like Myositis can often feel isolating. Connecting with other patients who truly understand the challenges of fatigue, muscle weakness, and uncertainty can provide immense emotional support.
For many individuals living with myositis, finding a community becomes an essential part of healing.
**Coping Strategies for Living with Myositis**
Although there is currently no definitive cure for myositis, many patients learn effective ways to manage their condition and improve their quality of life.
**1\. Accepting That Recovery Takes Time:** Improvement is often gradual. Muscle strength may return slowly, and setbacks can occur. Setting realistic expectations helps reduce frustration and anxiety.
**2\. Following Treatment Consistently:** Myositis treatment often includes corticosteroids, immunosuppressive medications, physiotherapy, and regular monitoring. Adhering to treatment plans is crucial for controlling disease activity.
**3\. Staying Physically Active Within Limits:** Complete rest is no longer recommended in most cases. Gentle exercises and supervised physiotherapy can help maintain mobility and reduce muscle stiffness.
**4\. Seeking Emotional Support:** Living with a chronic illness can feel emotionally exhausting. Family support, counselling, patient groups, and conversations with others living with myositis can make a significant difference.
**5\. Learning to Pace Daily Activities:** Fatigue is one of the most common symptoms of myositis. Patients often benefit from planning their day, taking adequate rest, and avoiding overexertion.
**Hope Beyond Diagnosis**
The understanding of autoimmune diseases in India has improved significantly over the last decade. Better awareness, improved diagnostic tools, and newer treatment approaches are helping patients receive earlier interventions and better outcomes.
The journeys of Mr. Prashant Verma, Mr. Chintan Shinde, and Mr. Saurabh Sarin remind us that myositis is not defined solely by muscle weakness or medical reports.
It is also a story of resilience. It is about families who refuse to give up, doctors who continue searching for answers, and patients who learn to adapt and find hope despite uncertainty.
Living with myositis may change the course of life, but it does not take away the possibility of leading a meaningful and fulfilling one.
**FAQs**
**1\. What is Myositis disease?**
Myositis is a group of rare autoimmune diseases in which the immune system attacks healthy muscles, causing inflammation, weakness, fatigue, and sometimes skin or lung involvement.
**2\. What are the early myositis symptoms?**
Common symptoms include muscle weakness, difficulty climbing stairs, trouble lifting objects, fatigue, skin rashes, muscle pain, and difficulty swallowing.
**3\. How is myositis diagnosed?**
Diagnosis usually involves a combination of medical history, physical examination, blood tests such as CK levels, MRI scans, autoantibody testing, EMG, and sometimes muscle biopsy.
**4\. Is there a cure for myositis?**
There is currently no complete cure, but many patients achieve good disease control through medications, physiotherapy, and long-term monitoring.
**5\. Can people with myositis lead normal lives?**
Yes. Although adjustments may be necessary, many patients continue their education, careers, and personal activities with appropriate treatment and support.
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## Myositis Treatment Insights
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Treatment landscape for Myositis
Treating myositis is not like treating most autoimmune diseases. For patients and families first asking what is myositis disease, the answer often arrives years after symptoms have already done their damage. The condition is rare enough that randomized controlled trials are hard to run at scale, which means a lot of clinical decision-making still rests on small studies, case series, and physician experience rather than the kind of evidence base that guides treatment in rheumatoid arthritis or lupus. That gap between what clinicians know and what they can prove shapes almost every aspect of how myositis diagnosis and management proceed.
Corticosteroids are still where myositis treatment starts. High-dose prednisone, typically 1mg per kilogram of body weight per day, remains the standard induction therapy for polymyositis and dermatomyositis despite decades of use and a side effect profile that nobody would describe as acceptable for long-term management. Bone density loss, adrenal suppression, hyperglycemia, infection susceptibility: the list is long, and patients on chronic steroids accumulate these problems over years. The goal has always been to taper as quickly as the disease allows, which in practice means as quickly as the muscle enzymes and clinical symptoms permit, and that varies enormously between patients. Catching myositis symptoms early enough to intervene before significant muscle damage has accumulated is difficult; the proximal weakness tends to be gradual, easy to attribute to deconditioning or stress.
Because steroids alone aren't sufficient for most patients, steroid-sparing immunosuppressants get added early. Methotrexate and azathioprine are the most commonly used, both with decades of data behind them in myositis even if that data is thinner than anyone would like. Mycophenolate mofetil has become increasingly favored, particularly in patients with interstitial lung disease as a complication, where some evidence suggests it may be better tolerated and at least as effective. Choosing between these agents often comes down to a combination of the patient's other conditions, their tolerance for monitoring requirements, and the rheumatologist's clinical experience.
Intravenous immunoglobulin has crossed an important threshold. The ProDERM trial, published in 2021, was the landmark randomized controlled trial that confirmed IVIG produces meaningful functional improvement in dermatomyositis patients who haven't responded adequately to steroids and conventional immunosuppressants. That trial was consequential not just scientifically but regulatorily: the FDA subsequently approved Octagam 10% specifically for adult dermatomyositis, converting what had been off-label practice into a therapy with an explicit indication. Insurance authorization has meaningfully improved as a result, though it hasn't disappeared as a problem entirely. Patients at infusion centers without streamlined prior authorization processes still encounter delays, and access remains uneven across health systems. The approval helped; it did not solve the infrastructure problem.
The JAK inhibitor story has moved faster than most people anticipated. Early case series and small studies suggested tofacitinib and baricitinib could benefit refractory dermatomyositis patients by blocking the interferon signaling pathways that drive inflammation in that subtype, and for several years the field was watching cautiously while larger trials got underway. Those trials have now reported. The Phase 3 VALOR study for brepocitinib, a dual JAK1/TYK2 inhibitor, was the longest and largest placebo-controlled interventional trial ever conducted in dermatomyositis, and its results were sufficiently strong that the FDA accepted the New Drug Application and granted Priority Review in early 2026. Brepocitinib is sitting on the edge of becoming the first targeted oral therapy specifically approved for dermatomyositis. That is not a small development for a disease that has relied on decades-old immunosuppressants and borrowed biologics. The field did not just watch; it arrived somewhere.
Complement inhibition offers a different kind of lesson. The biological logic seemed sound: immune-mediated necrotizing myopathy, driven by anti-HMGCR and anti-SRP antibodies, involves severe complement-mediated myofiber destruction, and zilucoplan, a C5 complement inhibitor, had already shown efficacy in generalized myasthenia gravis through a related mechanism. Trials in necrotizing myopathy proceeded on that basis. They failed. Zilucoplan did not produce meaningful clinical improvement or significant reductions in creatine kinase levels in IMNM patients, and UCB Pharma subsequently halted the development program for myositis entirely. It is a useful reminder that mechanistic plausibility does not equal clinical efficacy, and that rare disease biology has a way of confounding hypotheses that look airtight on paper.
Physical rehabilitation sits alongside pharmacologic treatment rather than after it. The old clinical caution about exercise worsening myositis inflammation has been largely overturned by a body of evidence showing that supervised resistance training during stable disease periods improves strength and function without triggering flares. Getting that message to patients consistently is still a work in progress; some patients arrive at physical therapy years into their diagnosis having been told to rest.
What the treatment landscape for myositis reflects is a field working hard against the constraints of rarity. Small patient populations make trials difficult and slow. In countries like India, where autoimmune diseases frequently go unrecognised at the primary care level and specialist rheumatology access outside major cities remains limited, the gap between trial evidence and patient benefit is even wider. Heterogeneity between subtypes complicates pooling data. Progress is real but uneven: IVIG now has regulatory backing where it once had only clinical consensus, a JAK inhibitor is approaching approval after the largest trial the disease has ever seen, and complement inhibition failed despite having every reason on paper to succeed. That mix of advance and setback, more than any single result, is probably the most accurate picture of where the science stands.
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## Myositis and Muscle Weakness
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Most people who notice persistent muscle weakness assume they've overdone it at the gym, or they're not sleeping enough, or they're just getting older. Some of them are right. Myositis rarely appears on the list of likely muscle weakness causes in a standard clinical workup, which is part of why the disease takes so long to identify. But a small, often-overlooked group has something else going on entirely: their own immune system is quietly destroying the tissue that makes movement possible.
What is myositis, exactly? It is a group of inflammatory autoimmune muscle diseases in which the immune system mistakenly attacks muscle fibres, and in certain subtypes, the skin, internal organs, and the tissues responsible for swallowing and breathing. It's rare enough that most primary care physicians see only a handful of cases across their careers, which partly explains why diagnosis takes so long. The average time from first symptom to confirmed diagnosis sits somewhere between two and seven years, depending on the subtype. By that point, a lot of damage has already accumulated.
Myositis encompasses five recognised subtypes: dermatomyositis, polymyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and juvenile myositis. They behave differently enough to be almost separate conditions. Dermatomyositis announces itself with a distinctive violet-tinged rash across the eyelids or knuckles, giving physicians a visible clue before the bloodwork comes back; it also carries a notable association with internal organ involvement and, in adult patients, an elevated cancer risk. Polymyositis doesn't come with that warning sign; the patient just notices, over weeks or months, that climbing stairs has become harder, or that their arms tire out lifting groceries. Immune-mediated necrotizing myopathy, associated with anti-HMGCR or anti-SRP autoantibodies, produces some of the most severe muscle destruction of any subtype, often alongside markedly elevated creatine kinase levels and rapid functional decline. Inclusion body myositis, the most common type in people over 50, tends to follow an asymmetric pattern and responds poorly to the immunosuppressants that help the others, which makes it particularly difficult to treat. Juvenile myositis affects children and adolescents and most commonly presents as juvenile dermatomyositis; one distinctive feature is calcinosis, calcium deposits that form beneath the skin, a painful complication rarely seen in adult-onset disease.
What's happening at the cellular level depends heavily on the subtype. In polymyositis and inclusion body myositis, autoreactive cytotoxic T cells directly infiltrate muscle tissue, surrounding and destroying healthy muscle fibers alongside macrophages. Dermatomyositis, however, utilizes a completely different path: it is a complement-mediated attack that targets the small blood vessels supplying the muscle. This damages the microvasculature, cutting off capillary blood flow and causing muscle fibers to starve and degrade from lack of oxygen.
The systemic effects extend well past the muscles themselves. Roughly 30% of dermatomyositis and polymyositis patients develop interstitial lung disease, which is far and away the most serious complication and a significant driver of mortality. Oesophageal dysfunction affects swallowing in some patients, raising the risk of aspiration pneumonia. Cardiac involvement, when it occurs, includes arrhythmias and myocarditis. None of this is inevitable, but all of it is possible, and that's what makes myositis difficult to manage even after a diagnosis finally lands.
Diagnosis relies on a combination of elevated muscle enzymes, with creatine kinase being the most common marker, along with electromyography, MRI imaging of affected muscles, and in many cases a biopsy. Autoantibody testing has improved substantially over the past decade; anti-Jo-1 antibodies are associated with a syndrome involving both myositis and lung disease, while anti-MDA5 antibodies correlate with a higher risk of rapid-onset pulmonary complications. These markers don't just confirm diagnosis; they increasingly predict how a patient's disease will progress.
Treatment is still imperfect. Corticosteroids remain the first-line option for most subtypes, though the long-term side effects of chronic steroid use, including bone loss, weight gain, and glucose dysregulation, are real costs that have to be weighed against the benefits. Steroid-sparing agents like methotrexate, azathioprine, and mycophenolate are commonly added to reduce that burden. For refractory cases, intravenous immunoglobulin has shown consistent efficacy in dermatomyositis specifically. Newer biologic therapies targeting specific immune pathways are in various stages of trial.
Physical and occupational therapy are not optional additions to treatment; they're central to it. Supervised exercise in myositis has gone from being considered potentially harmful, on the concern that exercise might worsen inflammation, to being understood as genuinely beneficial during stable disease periods. The evidence supports resistance training for improving function without triggering flares, though the quality of that evidence is still catching up to clinical practice.
What makes myositis particularly difficult for patients to manage is the unpredictability. Flares come without obvious triggers, remission isn't guaranteed, and the functional losses that accumulate during active disease don't always fully reverse. A patient who spent six months unable to raise their arms above their head may regain most of that function with treatment, or they may not. The literature on long-term outcomes is somewhat sobering: a meaningful proportion of patients retain significant disability even with aggressive management.
Autoimmune muscle disease as a category doesn't get the same cultural visibility as rheumatoid arthritis or lupus, despite sharing the same fundamental problem: a body turning against itself. Rare disease awareness in this space remains thin, and myositis patients in many countries still spend years navigating a system that wasn't built to find them. In India, where specialist rheumatology access outside major cities is limited, the work of a myositis NGO in India or a healthcare NGO in India focused on rare conditions can compress the diagnostic timeline in ways that clinical infrastructure alone cannot. Myositis awareness campaign efforts in India have helped some patients reach diagnosis faster than they would have through standard referral chains. Better awareness, earlier referral to rheumatology, and faster diagnostic pathways would help. The years that slip by between the first symptom and diagnosis aren't just frustrating. They represent a time when the damage was continuing, unchecked.
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## Early Myositis Diagnosis
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What if the tiredness you dismiss, the stairs you now avoid, or the quiet struggle to lift your arms are not signs of ageing or overwork, but clues of something deeper within the body? **Myositis** often begins in these subtle, easily overlooked ways, asking for attention long before it demands urgency. Recognising these early symptoms can change the entire course of the illness, turning delay into diagnosis and uncertainty into timely care.
**What is Myositis disease?**
It is a group of rare autoimmune conditions where the body’s immune system mistakenly attacks its own muscles, leading to inflammation, weakness, and, in some cases, involvement of the skin, lungs, or swallowing muscles. Known medically as **inflammatory myopathy**, myositis is not a single illness but a spectrum that includes **Dermatomyositis**, **Polymyositis**, **Anti-synthetase syndrome**, and **Inclusion body myositis**.
For patients across India, the greatest challenge is not always treatment. It is recognition. The earliest signs of myositis often resemble fatigue, vitamin deficiency, ageing, post-viral weakness, or stress. As a result, many people move from one clinic to another before the correct **myositis diagnosis** is made. Yet evidence shows that starting **myositis treatment** within weeks of symptom onset can significantly improve muscle recovery and long-term function. Early diagnosis is not merely helpful. It is decisive.
**Why Myositis Is Commonly Missed in Early Stages**
In the Indian context, patients usually first visit a family physician with vague complaints: tiredness, muscle pain, difficulty climbing stairs, or trouble lifting objects. These symptoms overlap with common conditions such as anaemia, thyroid imbalance, viral fever, arthritis, or nutritional deficiency. Because myositis is rare among **autoimmune diseases in India**, suspicion is often low in the early phase.
Referral to a rheumatologist, neurologist, or dermatologist typically happens only after symptoms persist or worsen. By this time, muscle inflammation may already have caused significant damage.
**The Earliest Myositis Symptoms Patients Should Not Ignore**
The most important early feature is **proximal muscle weakness**. This affects muscles close to the trunk:
- Difficulty getting up from a chair or the floor
- Trouble climbing stairs
- Inability to lift arms to comb hair or reach shelves
- Neck weakness, making it hard to lift the head from a pillow
- Fatigue out of proportion to activity
In most forms of myositis, hands and feet are affected later. However, in **Inclusion body myositis**, weakness of grip, fingers, or knees may appear first.
Certain visible signs can make diagnosis easier when recognised early. In **Dermatomyositis**, distinctive rashes often appear before or alongside muscle weakness:
- Gottron’s papules on the knuckles
- A violet discolouration on the eyelids known as heliotrope rash
- A rash across the upper chest called the V-sign
- A rash across the shoulders and upper back called the shawl sign
Other symptoms that should raise suspicion include:
- Difficulty swallowing food or frequent choking
- Shortness of breath or persistent dry cough, seen in **Anti-synthetase syndrome**
- Joint pain, low-grade fever, and unexplained weight loss
When these signs appear together, early specialist consultation becomes crucial for accurate **myositis diagnosis**.
**How Doctors Confirm a Myositis Diagnosis**
No single test confirms myositis. Diagnosis relies on several converging findings from clinical examination, blood tests, imaging, and sometimes biopsy.
**1\. Muscle Enzyme Tests**
The most commonly measured enzyme is Creatine Kinase (CK or CPK). Normal levels are usually below 200 U/L. In myositis, levels often rise above 1000 U/L, indicating muscle damage. However, some patients, especially with dermatomyositis, may have only mild elevation. A normal CK does not rule out myositis.
**2\. Myositis Autoantibodies**
Around 15 to 17 specific antibodies are associated with myositis. These are present in roughly two-thirds of patients. While not essential for diagnosis, they help predict disease type, organ involvement, and response to treatment.
**3\. MRI of Muscles**
Muscle MRI is increasingly preferred because it is non-invasive. It shows muscle swelling and inflammation, helps identify which muscles are affected, and guides the biopsy site if needed.
**4\. Electromyography (EMG)**
EMG measures electrical activity in muscles and helps differentiate muscle disorders from nerve disorders. Though useful, it can be uncomfortable and is now often replaced by MRI in many centres.
**5\. Muscle or Skin Biopsy**
A biopsy remains the most definitive test. A small sample from the thigh or shoulder muscle is examined under a microscope to confirm inflammatory changes. In dermatomyositis, a skin biopsy from the rash may also help.
Doctors usually rely on four or five of these elements together rather than any single result to reach a confident diagnosis.
**Why Early Diagnosis Changes the Course of Myositis Treatment**
When inflammation continues unchecked, muscle fibres are gradually replaced by fat and scar tissue. This damage is often irreversible. Early **myositis treatment** aims to stop inflammation before this stage.
The first line of treatment is usually corticosteroids such as prednisone, which act quickly to reduce immune activity. To minimise long-term side effects, doctors add steroid-sparing drugs like methotrexate, azathioprine, or mycophenolate early in the course.
In severe cases or when swallowing or lung muscles are involved, advanced therapies such as intravenous immunoglobulin (IVIG) or biologics may be used. Alongside medication, physiotherapy begins early to preserve strength and prevent disability.
The sooner treatment begins, the greater the chance of regaining muscle strength and avoiding complications.
**Additional Tests Based on Symptoms**
Because myositis can affect more than muscles, additional tests may be required:
- Pulmonary function tests for breathing difficulty
- Swallow studies for dysphagia
- Cardiac evaluation if heart involvement is suspected
- Cancer screening in certain subtypes, especially dermatomyositis
This comprehensive approach ensures that treatment addresses the whole disease, not just muscle weakness.
**Living with Myositis: The Importance of Monitoring**
Myositis is a long-term condition with periods of flare-ups and remission. Regular follow-up with blood tests, imaging, and strength assessment allows doctors to adjust medications and detect complications early.
Supportive care is equally important. Physiotherapy, occupational therapy, speech therapy for swallowing, pain management, balanced nutrition, and emotional support all contribute to improved quality of life.
**Can Myositis Be Prevented?**
As an autoimmune disease, myositis cannot be fully prevented. However, certain practices may reduce risk or aid early detection:
- Sun protection, especially in dermatomyositis
- Avoiding smoking
- Maintaining good nutrition and sleep
- Seeking early medical advice when unexplained muscle weakness appears
- Reviewing medications to avoid drug-induced muscle damage
**What Early Recognition Means for Patients in India**
Awareness remains the strongest tool. When patients, families, and primary doctors recognise **myositis symptoms** early, referrals happen faster, tests are ordered sooner, and treatment begins before severe damage occurs.
In the landscape of **autoimmune diseases in India**, myositis is still under-recognised. Yet with better understanding of early signs and improved access to diagnostic tools, outcomes are steadily improving.
Early diagnosis transforms the story of myositis from one of prolonged uncertainty to one of timely intervention, preserved strength, and a better quality of life. Recognising the signs early is not only a medical advantage. It is a turning point in the patient’s journey from confusion to clarity, and from weakness to recovery.
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## Myositis Research Advances
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For many years, **myositis** was spoken of as a single, puzzling muscle disease. Today, research has unfolded it into a spectrum of distinct immune-driven conditions, each with its own behaviour, risks, and responses to therapy. What once sat in broad labels now stands on precise science. The journey from uncertainty to clarity is being shaped by discoveries in immunology, imaging, genetics, and patient-centred care.
At the heart of this progress lies a simple truth. The better the understanding of disease mechanisms, the more precise the treatment becomes.
### **From One Label to Many Distinct Disorders**
Earlier classifications revolved mainly around **Polymyositis** and **Dermatomyositis**. Research has since revealed that many patients previously diagnosed under these terms actually belong to newer, clearly defined categories such as immune-mediated necrotising myopathy, anti-synthetase syndrome, and **Inclusion Body Myositis**.
This reclassification is not academic. It determines which organs might be involved, which complications to expect, and which medicines are most likely to work.
### **The Rise of Myositis-Specific Autoantibodies**
One of the most significant breakthroughs has been the discovery of myositis-specific autoantibodies. Around 15–17 such antibodies are now recognised. These blood markers do more than confirm diagnosis. They predict:
- Likelihood of lung involvement
- Risk of associated cancer
- Severity of muscle disease
- Response to particular drugs
For example, patients with anti-MDA5 antibodies often present with severe lung disease, while anti-TIF1-gamma antibodies raise suspicion for underlying malignancy. Research is now focused on expanding access to these tests and understanding how antibody patterns evolve over time.
### **MRI Replacing Older Diagnostic Tools**
Magnetic resonance imaging has quietly transformed how doctors assess muscle inflammation. Earlier reliance on painful electromyography is giving way to detailed MRI scans that:
- Show muscle swelling and damage early
- Guide biopsy to the correct muscle site
- Monitor treatment response non-invasively
MRI patterns are now being studied to help differentiate subtypes of myositis even before biopsy.
### **Understanding the Interferon Pathway**
Modern research has identified the interferon pathway as a major driver of inflammation, particularly in **Dermatomyositis**. This discovery has opened the door to targeted therapies that block specific immune signals rather than suppressing the entire immune system.
Drugs that inhibit Janus Kinase (JAK inhibitors) are being studied for patients with difficult skin disease and lung involvement, showing promising early results.
### **Steroid-Sparing and Precision Immunotherapy**
Steroids remain important, but research now strongly supports early combination therapy to reduce long-term side effects. Studies comparing methotrexate, mycophenolate, azathioprine, tacrolimus, and cyclophosphamide are helping doctors choose treatment based on subtype rather than trial and error.
Biologic agents such as rituximab and abatacept are being explored for resistant cases. Intravenous immunoglobulin has gained strong evidence, especially after controlled trials showed rapid improvement in muscle strength and skin disease.
### **The Unique Challenge of Inclusion Body Myositis**
Among all forms, **Inclusion Body Myositis** remains the most difficult to treat. Research now suggests that IBM is not purely autoimmune but also degenerative, sharing features with neurodegenerative diseases. This has shifted focus towards:
- Muscle regeneration research
- Protein misfolding studies
- Exercise physiology and rehabilitation science
Rather than immunosuppression, research in IBM is looking at preserving function and slowing progression.
### **Cancer Link and Screening Protocols**
Research has firmly established a link between certain types of myositis and cancer. This has led to structured screening protocols within the first three years of diagnosis. Ongoing studies aim to understand why this association exists and whether early immune changes can signal hidden malignancy.
### **Exercise as Medicine**
Earlier advice recommended rest. Research now proves that supervised exercise reduces inflammation, improves mitochondrial function, and restores muscle endurance. Clinical trials are studying how different exercise patterns influence immune pathways in myositis patients.
Physiotherapy is no longer supportive care. It is an active part of treatment.
### **Patient Registries and Global Collaboration**
International registries are collecting long-term data from thousands of patients. These databases help researchers identify patterns in disease progression, treatment response, and quality of life. India is gradually contributing to such data through specialised centres and patient communities.
### **Clinical Trials and Future Therapies**
Current trials are investigating:
- Interferon-blocking drugs
- Advanced biologics targeting specific immune cells
- Cell-based therapies for severe disease
- Better treatments for swallowing and respiratory muscle weakness
The goal is clear. Move from broad immunosuppression to precise immune modulation.
### **Where Research is Heading**
The future of myositis research lies in:
- Earlier detection through biomarkers
- Personalised therapy based on antibody profile
- Safer long-term medications
- Improved rehabilitation science
- Greater patient awareness and access to specialised care
Myositis is no longer a mystery illness managed by guesswork. It is a well-defined group of immune disorders steadily yielding to science.
* * *
## **FAQs**
**Q1. Why are autoantibody tests important in myositis today?**
They help confirm the subtype, predict complications like lung disease or cancer risk, and guide doctors toward the most effective treatment.
**Q2. Are steroids still necessary with new research available?**
Yes, but they are used more carefully and combined early with other medicines to reduce long-term side effects.
**Q3. Can MRI replace muscle biopsy?**
MRI helps identify inflammation and guide biopsy, but biopsy is still required in many cases for definitive diagnosis.
**Q4. Why is inclusion body myositis harder to treat than other types?**
Because it involves both immune damage and degenerative muscle changes, making standard immunosuppressive treatments less effective.
**Q5. What role does exercise play according to recent research?**
Supervised exercise is now proven to improve strength, reduce inflammation, and slow functional decline, making it an essential part of treatment.
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## Nutrition and Myositis
English
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Living with myositis often feels like learning a new rhythm for the body. Energy fluctuates. Muscles tire easily. Inflammation lingers quietly beneath the surface. While medicines form the backbone of care for **myositis**, thoughtful nutrition becomes a daily ally that supports strength, steadies immunity, and eases the inflammatory burden that characterises conditions such as **dermatomyositis**, **polymyositis**, and **inclusion body myositis**.
There is no “myositis diet” carved in stone by science yet. Still, clinical experience and broader knowledge about inflammation, immunity, and muscle health offer practical, evidence-informed guidance that patients can adopt safely in everyday life.
### **Understanding the Link Between Food and Inflammation**
Myositis belongs to the family of autoimmune inflammatory muscle diseases. In such conditions, the immune system is already overactive. Certain dietary patterns can either calm or aggravate this inflammatory environment.
A key insight from medical research is that excess body fat behaves like an inflammatory tissue. Every additional fat cell contributes to the overall inflammatory load in the body. This is why maintaining a healthy weight is not merely about appearance. It directly influences disease burden and fatigue levels.
Foods that are natural, minimally processed, and rich in micronutrients tend to support immune balance, while heavily processed foods and excess sugars often worsen systemic inflammation.
### **Whole Foods Over Processed Foods**
A consistent recommendation for people with myositis is to favour whole, natural foods.
This means choosing:
- Fresh vegetables and fruits over packaged snacks
- Whole grains over refined flour products
- Home-cooked meals over ready-to-eat meals
- Natural ingredients over preserved and flavoured foods
Processed foods often contain preservatives, additives, and excess salt or sugar that disturb the gut microbiome. A disturbed gut environment has been linked to increased inflammation and immune dysregulation.
### **The Role of Protein in Muscle Health**
Muscle inflammation and weakness are central to **polymyositis**, **dermatomyositis**, and **inclusion body myositis**. While research does not conclusively prove that high protein intake alters disease activity, adequate protein is essential for:
- Muscle repair and maintenance
- Sustained energy levels
- Preventing muscle wasting
- Improving satiety and weight control
Indian dietary sources of good protein include dals, sprouts, paneer, curd, milk, nuts, seeds, eggs, fish, and lean meats. Distributing protein evenly across meals is often more helpful than consuming it all at once.
### **Antioxidants and Oxidative Stress**
Chronic inflammation in myositis generates oxidative stress at the cellular level. Antioxidants help neutralise this damage.
A simple strategy is to eat colourful meals. Different colours in fruits and vegetables represent different antioxidants such as carotenoids, anthocyanins, vitamin C, vitamin E, zinc, and selenium.
Seasonal fruits, leafy greens, carrots, beetroot, berries, citrus fruits, pumpkin, and nuts naturally provide these protective compounds.
### **Weight Management as Inflammation Control**
Because fat tissue contributes to inflammation, maintaining an appropriate body weight becomes part of symptom management.
Gentle calorie control through balanced meals, avoiding overeating, and limiting added sugars helps reduce the inflammatory load. This is especially important when reduced mobility from muscle weakness makes weight gain easier.
### **Foods That May Worsen Inflammation**
Certain foods are known to aggravate inflammation and should be limited:
- Ultra-processed foods and instant meals
- Excess sugar and sweetened beverages
- Processed red meat
- Excess salt and packaged food additives
- Alcohol, which interferes with medication and worsens dehydration
These foods not only increase inflammation but can also disturb gut health and energy levels.
### **Gluten, Dairy, and Individual Sensitivities**
Not every person with myositis needs to avoid gluten or dairy. These restrictions are necessary only if there is a diagnosed intolerance or celiac disease.
Unnecessary elimination can lead to nutritional deficiencies. It is always wiser to observe personal tolerance and consult a doctor before removing major food groups.
### **Hydration and Muscle Function**
Dehydration can worsen fatigue and muscle cramps. Adequate water intake, coconut water, buttermilk, and clear fluids help maintain electrolyte balance and support muscle function.
### **Vitamin D and Sunlight**
Vitamin D deficiency is common, particularly in urban India, where sun exposure is limited. Vitamin D receptors are present in muscle tissue, suggesting a role in muscle strength.
Checking levels and correcting deficiencies under medical supervision can be beneficial.
### **Creatine and Supplements**
Some patients explore creatine supplementation for muscle strength. There is little evidence of harm when kidney function is normal, but benefits vary. A supervised trial period of a few months is often suggested if patients wish to try it.
Supplements should never replace balanced meals.
### **A Practical Approach to Daily Eating**
Rather than following strict diet charts, patients benefit more from a practical rhythm:
- Eat freshly cooked meals
- Include vegetables in at least two meals
- Add a protein source in every meal
- Keep fruits as snacks instead of packaged foods
- Limit sugar to small quantities
- Drink enough fluids throughout the day
Nutrition alone cannot treat myositis. Medicines, physiotherapy, and regular medical care remain essential. Yet, diet quietly shapes the terrain in which recovery and management occur.
For individuals living with **myositis**, **dermatomyositis**, **polymyositis**, or **inclusion body myositis**, food becomes a gentle form of self care. Not restrictive. Not complicated. Simply supportive.
Small, consistent dietary choices made every day can ease fatigue, reduce inflammation, and help the body cope better with the demands of this condition.
* * *
**FAQs**
**Q1. Does what I eat really make a difference to my myositis symptoms?**
Yes, indirectly. While food does not treat the disease itself, a balanced diet helps control inflammation, supports muscle repair, improves energy levels, and prevents unwanted weight gain that can worsen fatigue.
**Q2. How should I plan my meals throughout the day if I feel easily fatigued?**
Small, regular meals with a mix of vegetables, protein, and whole grains work better than heavy meals. Spacing food throughout the day helps maintain energy without overwhelming the body.
**Q3. Do I need to avoid gluten and dairy completely?**
Only if you have a diagnosed intolerance or celiac disease. Many patients tolerate these foods well. Unnecessary restrictions can lead to nutritional gaps.
**Q4. Are packaged fruit juices and health drinks good options for quick nutrition?**
Not always. Many packaged juices and drinks contain high amounts of hidden sugar and additives that may increase inflammation. Fresh fruits and homemade drinks are better choices.
**Q5. Are supplements like vitamin D or creatine helpful?**
Vitamin D deficiency is common, and correcting it may support muscle strength. Creatine is sometimes tried for muscle function, but results vary. Always consult your doctor before starting supplements.
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## Understanding Myositis
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Understanding Myositis
Myositis is often used as an umbrella term for conditions that cause inflammation or injury in the muscles. In this guide, we focus on idiopathic inflammatory myopathies, a group of rare immune-mediated disorders that commonly affect skeletal muscles and may also involve the skin, lungs, joints, heart, or gastrointestinal system. These conditions can cause progressive weakness, fatigue, and functional difficulty, but the pattern varies widely across subtypes.
**What Is Myositis?**
The term myositis comes from “myo,” meaning muscle, and “-itis,” meaning inflammation. Medically, it refers to conditions in which the immune system may attack skeletal muscle fibres, causing damage, weakness, and functional impairment.
Inflammatory myopathies are autoimmune in nature, meaning the body’s defence system targets its own tissues instead of foreign invaders. While the precise triggers remain unclear, genetic susceptibility and environmental factors (such as infections or toxins) may contribute.
**Main Types of Inflammatory Myopathy**
Below are the most recognised forms of myositis:
**Polymyositis (PM)** – A less common diagnosis today, marked by symmetric proximal muscle weakness after other subtypes are excluded.
**Dermatomyositis (DM)** – Similar to PM, but also features distinctive skin rashes.
**Inclusion Body Myositis (IBM)** – A slowly progressive form more common in older adults, affecting both proximal and distal muscles.
**Immune-Mediated Necrotising Myopathy (IMNM)** – Marked by muscle cell death with relatively limited inflammation.
**Juvenile Myositis** – Occurs in children, typically with muscle weakness and characteristic rash patterns.
Each subtype has unique features, but most involve immune-mediated muscle damage or dysfunction.
**Recognising the Symptoms**
Myositis often begins insidiously, which is why early detection can be challenging. The symptoms may overlap with many common conditions, so understanding the pattern is vital for appropriate intervention.
**Muscle-Related Symptoms**
- Progressive muscle weakness, especially in muscles close to the torso (e.g., hips, shoulders).
- Difficulty with daily tasks such as getting up from a chair, climbing stairs, lifting objects or combing hair.
- Fatigue disproportionate to activity level.
- Occasional muscle pain and swelling.
**Systemic and Extra-Muscular Signs**
- Rashes such as heliotrope rash around the eyelids or Gottron’s papules on knuckles (seen in dermatomyositis).
- Shortness of breath or a persistent cough from lung involvement.
- Difficulty swallowing and other gastrointestinal involvement.
- Joint pain or arthritis-like symptoms.
- Unexplained fever, weight loss or general malaise.
Patients with IBM may notice subtle but progressive weakness in finger grip or feet before more proximal muscles are affected.
**The Diagnostic Process**
Diagnosing myositis is rarely straightforward, partly because it is rare and many clinicians may not encounter it routinely. It typically involves a combination of clinical examination, laboratory testing, imaging, and sometimes tissue studies.
**i. Initial Clinical Evaluation**
A careful medical history and physical examination are the first steps. The doctor will assess patterns of weakness, daily functional limitations, and any skin or respiratory symptoms.
**ii. Key Diagnostic Tests**
- Blood tests – Elevated muscle enzymes like creatine kinase (CK) often suggest muscle injury.
- Autoantibody panels – Help identify subtype-specific markers.
- Electromyography (EMG) – Measures electrical activity in muscles to distinguish myopathy from nerve disorders.
- Muscle MRI – Helps detect muscle inflammation, assess disease activity, and identify suitable biopsy sites.
- Muscle biopsy – May help confirm the diagnosis, classify the subtype, or rule out other causes, but is not required in every case.
A combination of these findings, not a single test result, generally leads to a confirmed myositis diagnosis.
**Treatment Options and Myositis Management**
There is no cure for most forms of inflammatory myopathy, but early and individualised treatment can significantly improve strength, reduce inflammation, and enhance quality of life.
**Medical Therapies**
- Corticosteroids – Often first-line to reduce inflammation.
- Immunosuppressants – Used to control immune activity when steroids alone are insufficient.
- Biologic agents – In selected cases for refractory disease.
- Intravenous immunoglobulin (IVIG) – Used in certain cases, particularly when other treatments are inadequate or not tolerated.
- Physical therapy – Maintains muscle function and prevents contractures.
Choosing the right regimen often requires specialists such as rheumatologists, neurologists, and dermatologists working together to coordinate care.
**Challenges Specific to Patients in India**
While myositis remains rare worldwide, patients in India may face additional hurdles:
- Delayed recognition due to limited awareness of rare autoimmune diseases.
- Access to specialised testing and rheumatology services concentrated in urban centres.
- Cost barriers for advanced diagnostics like MRI or autoantibody panels.
- Cultural tendencies to normalise fatigue or attribute symptoms to ageing.
These challenges emphasise the need for better education both within the medical community and the public.
**The Role of Myositis India in Patient Support**
Amid these challenges, **Myositis India** plays a critical role in bridging gaps in awareness and care. The organisation focuses on:
- Educating patients and families about symptoms, diagnostics, and treatments.
- Connecting individuals with specialist physicians and support networks.
- Sharing resources and guidance in accessible language for Indian patients.
- Advocating for research and greater understanding of rare autoimmune conditions.
- Creating a community where lived experiences are valued and shared.
For patients navigating the uncertainty of diagnosis and chronic management, this community provides not just information but reassurance and solidarity.
**Living with Myositis: Beyond Diagnosis**
A holistic approach to myositis includes physical care and emotional well-being. Patients benefit from:
- Regular exercise tailored by a physiotherapist
- Balanced nutrition to support muscle health
- Psychological support or counselling
- Participation in support groups
With early recognition, appropriate treatment, and supportive care, many people with inflammatory myopathies can maintain meaningful activity and quality of life.
* * *
**FAQs**
**Q1. Are autoimmune conditions like myositis common in India?**
Myositis is considered a rare autoimmune condition, but awareness and diagnosis are steadily increasing in India. As access to specialists, advanced testing, and patient education improves, more cases are being correctly identified. Earlier, many patients were either misdiagnosed or remained undiagnosed because symptoms were mistaken for fatigue, ageing, or general weakness.
**Q2. Is myositis hereditary?**
Myositis is not usually passed directly from parents to children. However, certain genetic factors may make some individuals more susceptible to developing autoimmune diseases in general. Environmental triggers such as infections, medications, or toxins may interact with this genetic predisposition to initiate the condition.
**Q3. Can myositis affect organs other than muscles?**
Yes. Although muscle weakness is the hallmark feature, several types of myositis can involve other organs. The skin is commonly affected in dermatomyositis, while lungs may be involved in anti-synthetase syndrome. Some patients may experience swallowing difficulties, joint pain, or even heart involvement, depending on the subtype.
**Q4. Should I restart normal activities after diagnosis?**
Returning to daily activities is encouraged, but it should be gradual and guided by medical advice. Overexertion can worsen fatigue and muscle weakness. Physiotherapists often design personalised exercise routines that help patients regain strength safely while respecting their body’s limits.
**Q5. Is remission possible?**
Yes, many patients achieve remission or stable disease control with early diagnosis and appropriate treatment. While a permanent cure may not be available, timely intervention, consistent follow-up, and lifestyle adjustments can allow individuals to lead active and fulfilling lives.
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## Myositis Awareness Campaigns
English
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Healthcare in India has made monumental strides over the last few decades, successfully tackling massive infectious diseases and scaling up generic drug production globally. However, an area that remains profoundly underserved is the landscape of rare, chronic conditions. When discussing **rare disease awareness**, certain illnesses are routinely overlooked because of their low statistical prevalence, despite having a devastating impact on patients' lives. Among these, myositis stands out as a collection of debilitating conditions that are frequently misunderstood and underdiagnosed.
In a country with a population exceeding 1.4 billion, the absolute number of individuals suffering from rare health conditions is significant, yet public and clinical understanding remains critically low. Launching a sustained, targeted **myositis awareness campaign india** wide is no longer optional—it is a public health necessity to save lives, preserve mobility, and build a robust healthcare safety net.
### **What is Myositis and How Does it Manifest?**
To address the massive clinical gap in the country, we must first answer a fundamental question: **what is myositis**? Derived from medical terminology, myositis literally means inflammation of the muscles. Rather than being a single, isolated illness, it is a complex **autoimmune muscle disease** characterized by progressive muscle weakness, swelling, and chronic pain. In these conditions, the body's immune system, which normally fights off external infections, mistakenly turns inward and attacks healthy muscle tissue.
When individuals first begin to notice changes in their bodies, they rarely suspect a serious autoimmune issue. Instead, they look for general **muscle weakness causes**, assuming their fatigue stems from a lack of sleep, aging, or minor nutritional deficiencies. This confusion is highly dangerous.
While typical **muscle weakness causes** might include temporary overexertion or standard osteoarthritis, this condition involves severe, symmetric, and progressive weakness of the proximal muscles—those closest to the trunk of the body, such as the hips, thighs, shoulders, and neck. Over time, patients find themselves unable to perform basic daily activities, like climbing stairs, lifting a grocery bag, or even standing up from a standard chair.
**Clinical Focus:** Because the early symptoms of muscle fatigue mimic common age-related wear-and-tear or vitamin deficiencies, patients in India routinely lose months or even years bouncing between general physicians before receiving an accurate specialist referral.
### **The Critical Need for Localized Campaigns**
The primary barrier to managing this illness in India is the profound delay in securing an accurate diagnosis. In rural and semi-urban landscapes, and even within major metropolitan centers, initial complaints are frequently misdiagnosed. By the time a patient is finally referred to a specialized rheumatologist or neurologist, significant and sometimes irreversible muscle wasting or fibrotic tissue damage may have already occurred.
Furthermore, specialized medical care is highly centralized in India. Major medical institutions capable of conducting advanced diagnostic evaluations—such as Electromyography (EMG), specialized muscle MRIs, and precise muscle biopsies—are located primarily in tier-1 cities. Public campaigns are essential to educate primary care physicians, general practitioners, and physical therapists at the grassroots level, enabling them to recognize early warning signs and make timely referrals.
### **Bridging the Gap: The Vital Role of NGOs**
Medical intervention is only one half of the battle; the other half is emotional, social, and financial support. This is where the intervention of a dedicated **healthcare NGO india** becomes indispensable. Treatment regimens for this severe **autoimmune muscle disease** are intense and prolonged, often requiring high-dose corticosteroids, immunosuppressants, or advanced biologics like Intravenous Immunoglobulin (IVIG). These therapeutics place a crushing financial burden on families, particularly given the historically low penetration of comprehensive health insurance across the country.
A specialized **myositis NGO india** plays a dual role:
- **A Lifeline for Patients:** They provide patients with verified information, psychological counseling, and peer support groups to fight the profound isolation that accompanies a rare diagnosis.
- **A Voice for Advocacy:** These organizations act as powerful advocacy bodies. An NGO can lobby for government subsidies, advocate for the inclusion of myositis under national rare disease policies, and fund localized medical research to better understand how the disease behaves within the Indian demographic.
### **Conclusion**
Raising the bar for **rare disease awareness** in India is a multifaceted challenge that requires a collaborative approach combining medical communities, patient advocacy groups, media outlets, and policymakers. By expanding the reach of a dedicated **myositis awareness campaign india** wide and empowering a localized **myositis NGO india**, we can accelerate the diagnostic timeline, lower financial burdens through early intervention, and ultimately improve the quality of life for thousands of silent sufferers across the nation.
## **Frequently Asked Questions (FAQs)**
### **1\. What is myositis and how does it differ from regular muscle pain?**
**What is myositis** is best explained as a chronic **autoimmune muscle disease** where the immune system attacks healthy muscle fibers, leading to progressive muscle weakness. Regular muscle pain (myalgia) is usually temporary, localized, and caused by overexertion, stress, or minor infections, whereas myositis causes long-term, disabling weakness, often without an obvious external cause.
### **2\. What are the most common muscle weakness causes that people confuse with myositis?**
Common **muscle weakness causes** include severe Vitamin D3 or B12 deficiencies, hypothyroidism, standard age-related muscle loss (sarcopenia), and chronic fatigue syndrome. Because these conditions are highly prevalent in India, doctors and patients frequently misattribute early myositis symptoms to these more common issues, delaying critical treatment.
### **3\. Why is rare disease awareness so low in India?**
**Rare disease awareness** remains low primarily because the healthcare system historically had to prioritize high-burden infectious diseases and maternal health. Additionally, rare diseases affect fewer people per capita, leading to less funding for medical training, public health campaigns, and specialized diagnostic infrastructure outside tier-1 cities.
### **4\. How can a healthcare NGO india assist a newly diagnosed patient?**
A **healthcare NGO india** can assist patients by offering access to discounted diagnostic tests, connecting them with specialized rheumatologists, and providing financial aid or subsidized medications. They also offer vital psychological support and patient education materials to help families navigate the complexities of managing a chronic illness.
### **5\. How can I support a myositis NGO india or a myositis awareness campaign india?**
You can support a **myositis NGO india** by volunteering your time, donating to help fund patient treatments, or sharing educational content on social media. Participating in or amplifying a local **myositis awareness campaign india** helps break the stigma, educates the public on early symptoms, and drives policymakers to include these conditions in national healthcare support frameworks.
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## Recognizing Myositis Symptoms
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The Journey to Diagnosis: How to Recognize Symptoms of Myositis and Seek Appropriate Medical Care in India
**Title -** The Journey to Diagnosis: How to Recognize Symptoms of Myositis and Seek Appropriate Medical Care in India
**Keywords -** autoimmune diseases India, myositis treatment, inflammatory myopathy, myositis diagnosis
**Descriptions -** Explore the journey to diagnosing myositis, including symptom recognition and guidance on seeking medical care in India for optimal health outcomes.
In the scenario of **autoimmune diseases in India**, **myositis** remains one of the least recognised and most frequently misdiagnosed. This rare **inflammatory myopathy** does not arrive with a single, dramatic symptom. Instead, it presents through gradual muscle weakness, unexplained fatigue, rashes, breathlessness, or difficulty swallowing; symptoms that often masquerade as more common illnesses.
Because of this quiet onset, many patients travel a long and confusing road before receiving an accurate **myositis diagnosis**. Recognising the early signs and knowing when and where to seek help can shorten this journey significantly and improve long-term outcomes.
## **Understanding What Makes Myositis Hard to Detect**
**Myositis** is not a single disease but a group of idiopathic inflammatory myopathies that can affect muscles, skin, lungs, joints, and even the heart. Its complexity lies in how differently it appears in each person.
- Symptoms develop gradually over weeks or months
- Muscle weakness is often mistaken for general tiredness or ageing
- Skin rashes may be treated as allergies or dermatological issues
- Breathlessness may be misdiagnosed as asthma, infection, or pneumonia
- Joint pain may resemble arthritis
- Swallowing difficulty may be attributed to gastric problems
This overlap with common conditions delays correct **myositis diagnosis**, especially when awareness among primary care settings is limited.
## **Early Symptoms of Myositis**
While symptoms vary, certain patterns are strongly suggestive of **inflammatory myopathy** and warrant medical evaluation.
- Difficulty climbing stairs or getting up from a chair
- Trouble lifting objects or raising arms to comb hair
- Persistent fatigue unrelated to workload
- Muscle pain with weakness (with or without pain)
- Distinctive rashes on hands, chest, eyelids, or back
- Shortness of breath without clear lung infection
- Difficulty swallowing solid foods
- Unexplained weight loss and low-grade fever
- Colour changes in fingers in cold weather (Raynaud’s phenomenon)
These are not ordinary signs of fatigue. They are signals that muscles themselves may be under immune attack.
## **Whom to Consult First in India**
Most patients begin with a general physician. The key is timely referral when symptoms persist.
- Start with a general physician for initial evaluation
- Request referral to a rheumatologist if muscle weakness is present
- A neurologist may be involved to rule out nerve disorders
- A dermatologist may identify characteristic rashes
- In cases of breathlessness, a pulmonologist may be required
In India, rheumatologists play a central role in confirming **myositis diagnosis** and guiding **myositis treatment**.
## **Tests That Lead to a Confirmed Myositis Diagnosis**
Diagnosis is not based on one test but a combination of clinical assessment and investigations.
- **Muscle enzyme blood tests** (especially Creatine Kinase/CK; often >1000)
- **Myositis autoantibody panel** (helps subtype identification and prognosis)
- **MRI of muscles** (detects muscle inflammation non-invasively)
- **EMG/NCS** (distinguishes muscle vs nerve origin of weakness)
- **Muscle biopsy or skin biopsy** (confirms inflammatory changes)
- **Lung scans** if breathlessness is present (to detect interstitial lung disease)
Not all patients show abnormal results in every test. Clinical judgement remains crucial.
## **Why Early Detection Matters**
Delays in identifying myositis allow inflammation to quietly damage muscles and organs.
- Prevents permanent muscle loss and disability
- Reduces risk of lung complications such as interstitial lung disease
- Helps initiate timely **myositis treatment** with steroids and immunosuppressants
- Improves response to physiotherapy and rehabilitation
- Prevents swallowing complications and malnutrition
- Reduces long-term medication burden through early control
- Preserves quality of life and independence
Early treatment does not cure myositis, but it changes the trajectory of the illness.
## **Challenges Unique to Patients in India**
Patients navigating **autoimmune diseases India** often face structural and informational barriers.
- Limited awareness about myositis among non-specialists
- Access to rheumatologists concentrated in urban centres
- High cost of diagnostic antibody panels and MRI scans
- Social tendency to dismiss fatigue as lifestyle-related
- Delay in seeking care due to family or work responsibilities
Awareness becomes the first form of empowerment.
## **Living Through the Waiting Period: What Patients Can Do**
While awaiting specialist consultation or reports, patients can take supportive steps.
- Avoid overexertion; pace daily activities
- Maintain a simple symptom diary to share with doctors
- Eat balanced meals to prevent weight and muscle loss
- Seek emotional support from family and friends
- Avoid self-medication or alternative therapies without guidance
These small measures protect the body while the diagnostic process unfolds.
## **The Role of Myositis India in This Journey**
For many patients, the period between first symptoms and confirmed diagnosis is lonely and confusing. This is where **Myositis India** plays a transformative role.
- Spreads awareness about myositis across India
- Connects patients with experienced rheumatologists and specialists
- Provides educational resources in simple language
- Builds a support community for patients and caregivers
- Encourages research and evidence-based understanding of the disease
- Offers guidance that bridges medical care and daily living
For someone navigating uncertainty, this community becomes a compass, offering both direction and hope.
## **When to Strongly Suspect Myositis**
Seek immediate specialist care if you notice:
- Progressive muscle weakness over weeks
- Rash with muscle fatigue
- Breathlessness with muscle symptoms
- Difficulty swallowing along with weakness
- Very high CK levels in routine blood tests
- No improvement despite treatment for other assumed conditions
**Myositis** rarely announces itself loudly. It unfolds slowly, quietly, often misunderstood. But the earlier its language is recognised, the gentler the journey becomes. Awareness, timely referrals, proper testing, and the right medical guidance can transform confusion into clarity.
And no one has to walk this path alone. With organisations like **Myositis India**, patients and families find not only information, but companionship, reassurance, and a shared strength that turns a rare diagnosis into a supported journey.
* * *
**FAQs**
**Q1. Can myositis begin without any visible muscle pain?**
Yes. Many people with myositis feel weakness far more than pain. You may notice that your body feels unusually tired during simple tasks like climbing stairs or lifting your arms, even though there is no soreness. This quiet weakness is often the earliest clue.
**Q2. If my blood tests are normal, can I still have myositis?**
Yes. While many patients show high Creatine Kinase levels, some forms such as dermatomyositis or anti-synthetase syndrome may present with near-normal enzyme levels. Doctors rely on a combination of clinical signs, imaging, antibodies, and sometimes biopsy rather than a single report.
**Q3. How is myositis different from general muscle fatigue or ageing?**
Ordinary fatigue improves with rest. Myositis-related weakness does not. It gradually worsens and begins to interfere with daily activities on both sides of the body, which is not typical of normal ageing or overwork.
**Q4. Is a muscle biopsy always necessary for diagnosis?**
Not always. With advances in muscle MRI and autoantibody testing, many patients can be diagnosed confidently without a biopsy. However, in uncertain cases, a biopsy provides definitive confirmation.
**Q5. How long does it usually take to get a confirmed myositis diagnosis in India?**
It varies widely. Some patients receive a diagnosis within weeks if symptoms are recognised early and referrals are prompt. Others may take months due to symptom overlap with common conditions. Early suspicion and consulting a rheumatologist significantly shortens this timeline.
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## Understanding Myositis
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Myositis Explained: The Meaning and Implications for Patients and Families
**Idiopathic inflammatory myopathies or Myositis** refer to a group of rare autoimmune diseases primarily characterised by muscle inflammation but can affect multiple organs. While muscle weakness is the hallmark symptom, myositis can also affect other organs, including the **skin, lungs, joints, heart, and gastrointestinal system**. The conditions are heterogeneous in symptoms and diagnostic test results, leading to variability among patients even with the same diagnosis.
**Types of Myositis**
There are 6 major types of Myositis:
1\. **Polymyositis (PM):** It is characterised by weakness and inflammation in multiple muscles. ("Poly" = many, "myo" = muscle, "itis" = inflammation)
2\. **Dermatomyositis (DM):** Includes skin inflammation along with muscle inflammation ("dermato" = skin).
3\. **Inclusion Body Myositis (IBM):** This type typically affects men over 50. Muscle weakness commonly involves hand grip and knee extensors.
4\. **Anti-Synthetase Syndrome (ASS):** This commonly affects the lungs, causing interstitial lung disease. It also involves muscles and skin, with rashes similar to dermatomyositis. Classic signs include:
■ **Mechanic’s hands** (rough, cracked skin on fingers)
■ Presence of certain **specific antibodies** in blood
■ Interstitial lung disease
5\. **Immune-Mediated Necrotizing Myopathy (IMNM):** IMNM presents itself with muscle weakness and is marked by very high blood levels of muscle breakdown markers.
6\. **Juvenile Dermatomyositis (JDM):** It occurs in children under 18 years of age where the child develops skin rash and muscle inflammation.
Myositis can coexist with other autoimmune disorders such as **lupus** and **scleroderma**. This overlap complicates diagnosis and management.
**Symptoms of Myositis**
● **Muscle Weakness**: Often develops gradually over weeks to months. Patients may find difficulty with activities like climbing stairs, rising from chairs, lifting objects, or holding items.
● **Muscle Pain and Fatigue**: Not all patients experience pain, but fatigue is common.
● **Skin Rashes**: Several distinctive rashes may appear:
○ **Gottron’s papules**: on the back of the hands
○ **V-sign**: rash over the upper chest
○ **Shawl sign**: rash over upper back and neck
○ **Malar rash**: on the face
○ **Heliotrope rash**: redness/swelling around eyelids
● **Lung Involvement**: Inflammation can cause shortness of breath and cough, often misdiagnosed as pneumonia.
● **Joint Involvement**: Arthritis-like symptoms with swelling, tenderness, and stiffness, commonly affecting knuckles and hands bilaterally.
● **Swallowing Difficulties**: Muscle inflammation can impair the swallowing apparatus, causing trouble swallowing solid foods more than liquids.
● **Vascular Symptoms**: Raynaud’s phenomenon, characterized by reversible fingertip color changes (white, red, or violet) triggered by cold exposure.
● **Heart Involvement**: Inflammation can affect the heart muscle, lining, or electrical system, causing chest pain, palpitations, or shortness of breath.
● **Systemic Symptoms at Onset**: Fever, weight loss, and severe fatigue are common initial presentations.
**Diagnosis of Myositis**
Initial evaluation for Myositis usually begins with a **general physician** or **primary care doctor** when the patient is presenting symptoms such as muscle weakness or rash. Early symptoms often mimic other illnesses, requiring further specialist referral.
Specialists involved in diagnosis typically include **rheumatologists**, **neurologists**, and **dermatologists**. In some countries, trained internal medicine doctors may also make the diagnosis.
The diagnostic tests could involve:
I. **Muscle Enzymes:** Muscle damage is measured. **Creatine Kinase (CK)** is most commonly elevated (>1000 in Myositis). Other enzymes include aldolase, AST, ALT, and LDH. Not all patients show elevated enzymes (~70-80% do).
II. **Electromyography (EMG) and Nerve Conduction Study (NCS):** Differentiates muscle weakness origin—muscle vs. nerve or neuromuscular junction. Useful to identify muscles for biopsy.
III. **Muscle MRI:** Non-invasive imaging showing muscle edema/swelling. Helps select biopsy site and differentiate Myositis subtypes. Increasingly preferred over EMG due to comfort.
IV. **Muscle biopsy/skin biopsy:** Confirms diagnosis by examining tissue pathology. Muscle biopsy sites selected based on EMG or MRI findings (commonly deltoid or thigh muscles). Skin biopsy used when rash is present.
V. **Myositis autoantibodies:** Panel of 15-17 antibodies; helpful for diagnosis, prognosis, and guiding treatment. Present in ~60-70% of cases but not mandatory for diagnosis.
**Care Approach for Myositis**
Managing Myositis along with daily routine comes with its own set of challenges:
● Lifestyle adjustments frequently involve **self-care and possible temporary work breaks** to manage symptoms effectively.
● **Fatigue and Muscle Endurance:** Fatigue and decreased muscle endurance are primary symptoms. Patients need to **learn their body's limits** through a process of trial and error, adjusting daily activity based on recent experiences to avoid overexertion.
● **Dietary Considerations:** General recommendations focus on:
■ Avoiding processed foods
■ Adopting a whole foods dietary approach
■ Maintaining a **normal body weight**, which is crucial because excess fat cells contribute to inflammation.
Protein intake is considered beneficial for satiety and energy but lacks direct evidence for disease-specific benefits.
● **Inflammation and Weight Control:** Myositis involves **inflammatory tissues**, so weight management may reduce the overall **inflammatory burden** on the body, which is particularly important when muscle strength is compromised.
● **Complementary Treatment**
○ **Acupuncture** is noted for empirical benefits in reducing muscle tension and promoting a sense of well-being, though rigorous studies are lacking.
○ **Creatine supplementation** is a muscle-enhancing option with minimal risk, though evidence of its effectiveness in polymyositis is sparse. A **three-month trial period** is suggested if patients choose to try it.
○ **Vitamin D** deficiency is common and potentially significant because Vitamin D receptors are present in muscle tissue. Optimising its levels may help muscle strength.
● **Holistic Self-Care Approaches:** One can consider **massage, meditation, and a holistic approach** as crucial adjuncts to medical treatment. Self-care is portrayed not only as symptom management but also as integral to the healing process.
**Practical Ways to Support a Person with Myositis**
Myositis does not affect only the person diagnosed. Families and caregivers often become silent partners in the journey.
● **Believe the fatigue and weakness:** Understand that these symptoms are real, fluctuating, and not visible from the outside. Avoid labelling the person as lazy or unmotivated on low energy days.
● **Help pace daily activities:** Encourage the patient to break tasks into smaller parts with rest intervals. Support them in spreading work across the week rather than finishing everything in one day.
● **Assist without taking away independence:** Offer help with physically demanding tasks such as lifting, climbing, or prolonged standing, but allow them to do what they comfortably can to maintain confidence and muscle use.
● **Be observant of subtle changes:** Notice increased difficulty in walking, swallowing, breathing, or speaking. Early observation can prevent complications and prompt timely medical attention.
● **Support medical routines:** Help track medicines, appointments, physiotherapy schedules, and test dates. Many patients feel overwhelmed managing these alone.
● **Create a fall-safe home environment:** Remove loose rugs, ensure good lighting, install handrails if needed, and arrange frequently used items within easy reach.
● **Encourage balanced nutrition and hydration:** Help prepare simple, nutritious meals and ensure regular fluid intake, especially when fatigue makes cooking difficult.
● **Promote gentle movement and exercise adherence:** Motivate the patient to continue prescribed exercises without pushing beyond their limits.
● **Offer emotional reassurance without constant reminders of illness:** Engage in normal conversations and activities to prevent the person from feeling defined by the disease.
● **Take care of your own well-being:** Share responsibilities with other family members, seek support groups, and take breaks to avoid caregiver burnout.
**FAQs**
**1) Can myositis go into remission?**
Yes, many patients achieve remission or low disease activity with timely treatment, though monitoring is required as relapses can occur.
**2) Is myositis contagious or hereditary?**
No, myositis is neither contagious nor directly inherited, though autoimmune tendencies may run in families.
**3) How long does treatment usually continue?**
Treatment is often long term and may continue for years, depending on disease activity and response to therapy.
**4) Can children with Juvenile Dermatomyositis recover fully?**
With early treatment, many children recover well and lead active lives, though regular follow up is essential.
**5) Does stress worsen myositis symptoms?**
Chronic stress can aggravate immune activity and fatigue, making stress management an important part of care.
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## Myositis Treatment Advances
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Myositis, medically known as **inflammatory myopathy**, represents a complex family of rare autoimmune disorders in which the body’s immune system turns against its own skeletal muscles. Over the past few decades, the understanding of this condition has transformed dramatically. What was once broadly labelled as polymyositis or dermatomyositis is now recognised as a spectrum of distinct subtypes, each with unique clinical behaviour, organ involvement, antibody profiles, and response to therapy.
For patients in India, where awareness of **autoimmune diseases** is still evolving, these advances are not merely academic. They directly influence how early a patient is diagnosed, how accurately the subtype is identified, and how effectively **myositis treatment** is planned.
### **From a Single Disease to a Spectrum**
Myositis was first described in 1863. By 1975, physicians recognised two main forms: polymyositis and dermatomyositis. Today, classification has expanded to include:
- Dermatomyositis (DM)
- Anti-synthetase syndrome (ASS)
- Immune-mediated necrotizing myopathy (IMNM)
- Inclusion body myositis (IBM)
Interestingly, what was once called polymyositis is now considered rare, with many past cases reclassified into newer subgroups based on autoantibody testing and biopsy findings.
This shift has changed treatment philosophy. Myositis is no longer treated as one disease but as multiple related disorders requiring individualised strategies.
### **Understanding Triggers and Risk Factors**
Modern research shows that myositis develops due to a combination of genetic susceptibility and environmental triggers.
Strongly supported triggers include:
- **Ultraviolet radiation**, especially linked to dermatomyositis. Incidence increases closer to the equator, making sun protection relevant in India.
- **Smoking**, closely associated with anti-synthetase syndrome and lung involvement.
- **Statins**, which in rare cases trigger autoimmune necrotizing myopathy.
- **Underlying cancers**, particularly in dermatomyositis and polymyositis, where 10 to 30 percent of patients may have associated malignancy.
Infections are frequently reported before symptom onset but remain inconsistently linked and unproven as direct causes.
This knowledge has led to preventive advice such as UV protection, smoking cessation, careful monitoring of statin-related symptoms, and mandatory cancer screening in new diagnoses.
### **Why Early Myositis Diagnosis Changes Outcomes**
One of the most important discoveries in recent decades is that **starting treatment within one month of symptom onset** significantly improves muscle recovery and long-term function.
Delayed diagnosis often leads to irreversible muscle damage, disability, and complications involving lungs or swallowing muscles. Tools such as:
- Myositis-specific autoantibody panels
- Muscle MRI
- EULAR/ACR 2017 classification criteria
- Focused cancer screening protocols
have improved diagnostic precision and allowed physicians to tailor therapy from the outset.
### **Steroids: Still the Backbone, but Used More Wisely**
Glucocorticoids revolutionised autoimmune treatment in the 1950s and remain the first-line therapy for most myositis subtypes.
Typical practice includes:
- Prednisone around 1 mg per kg per day
- Intravenous methylprednisolone pulses for severe cases such as dysphagia or respiratory weakness
Steroids act rapidly through both genomic and non-genomic pathways, suppressing multiple inflammatory cells at once. However, long-term use comes at a cost.
Up to 97 percent of patients experience steroid side effects, including:
- Osteoporosis and fractures
- Diabetes and hypertension
- Mood changes and weight gain
- Steroid-induced muscle atrophy
- Increased infection risk
This has driven a major shift towards **steroid-sparing strategies**.
### **The Rise of Steroid-Sparing Immunosuppressants**
To reduce steroid exposure while maintaining disease control, early combination therapy is now standard in many centres.
Common agents include:
\[table\]
These medications allow gradual tapering of steroids while preventing relapse.
### **Biologics and Targeted Therapies: A New Era**
Recent years have seen the entry of biologic agents and targeted immune therapies in refractory myositis.
- **Rituximab** has shown benefit in difficult cases, especially anti-synthetase syndrome with lung disease.
- **Abatacept** improves quality of life and disease activity.
- **JAK inhibitors** such as tofacitinib show promise in refractory skin disease and MDA5-associated lung disease.
- **IVIG** has emerged as a powerful option, especially in dermatomyositis, with faster action than steroids as demonstrated in the ProDERM trial.
IVIG is increasingly used upfront in severe cases or when steroid toxicity is a concern.
### **Inclusion Body Myositis: The Therapeutic Challenge**
IBM remains largely resistant to steroids and immunosuppressants. Management focuses on:
- Physiotherapy
- Fall prevention
- Swallowing care
- Assistive devices
Research continues, but current care is supportive rather than curative.
### **Cancer Screening as Part of Myositis Treatment**
A major advancement is recognising cancer screening as an integral part of myositis management, especially in dermatomyositis.
High-risk features include:
- Older age
- Dysphagia
- TIF1-gamma and NXP2 antibodies
- Severe skin disease
CT scans of chest, abdomen, and pelvis along with age-appropriate tests such as mammography, colonoscopy, Pap smear, and ovarian screening are recommended within the first three years of diagnosis.
### **The Essential Role of Physiotherapy**
Earlier, patients were advised rest. Now, evidence shows that structured exercise:
- Improves muscle strength and endurance
- Reduces inflammation
- Restores mitochondrial function
- Prevents disability
Physiotherapy begins alongside medical treatment, not after recovery.
### **Multidisciplinary Care: The Modern Model**
Effective myositis care now involves:
- Rheumatologists
- Neurologists
- Dermatologists
- Pulmonologists
- Physiotherapists
- Occupational therapists
- Psychologists
Tertiary centres and emerging Centres of Excellence for Autoimmunity in India are making such integrated care possible.
### **What These Advances Mean for Patients in India**
For Indian patients, these developments translate into:
- Earlier and more accurate myositis diagnosis
- Personalised treatment based on antibody profile and organ involvement
- Reduced steroid complications
- Better survival and quality of life
- Increased awareness of cancer association
- Greater role of physiotherapy and self-care
Awareness remains the first barrier. Many patients still reach specialists late because early symptoms are dismissed.
### **Looking Ahead: The Future of Myositis Treatment**
Research is now focusing on:
- Interferon-targeted therapies
- Better biologics for muscle disease
- Identifying consistent environmental triggers
- Expanding access to antibody testing and MRI diagnostics
- Clinical trials for refractory myositis
As understanding deepens, treatment is moving from broad immunosuppression to precise immune modulation.
Myositis is no longer an obscure, poorly understood muscle disease. It is a clearly defined spectrum of autoimmune disorders with evolving, evidence-based management strategies. Advances in antibody testing, imaging, cancer screening, steroid-sparing therapies, biologics, IVIG, and physiotherapy have dramatically improved patient outcomes.
For those living with **autoimmune diseases in India**, these advances offer hope. With early **myositis diagnosis**, tailored **myositis treatment**, and multidisciplinary support, patients today can expect better function, fewer complications, and a significantly improved quality of life compared to decades past.
* * *
### **FAQs**
**Q1. Why do doctors start treatment with steroids if they have so many side effects?**
Steroids act quickly and powerfully to control the intense muscle inflammation seen in inflammatory myopathy. They stabilise the disease while slower, safer immunosuppressive medicines begin to work. The goal is not long-term steroid use, but early control followed by gradual tapering with the help of steroid-sparing drugs.
**Q2. How do doctors decide which immunosuppressant or biologic medicine is right for a patient?**
Treatment choice depends on the myositis subtype, organ involvement such as lungs or skin, autoantibody profile, severity of muscle weakness, and the patient’s overall health. For example, mycophenolate is preferred in lung disease, while IVIG may be chosen in severe dermatomyositis. This personalised approach is a major advance in recent years.
**Q3. Is physiotherapy really as important as medicines in myositis?**
Yes. Research now shows that guided exercise improves muscle strength, reduces inflammation, and prevents long-term disability. Physiotherapy is started alongside medical treatment, not after recovery, and is considered a core part of management.
**Q4. Why is cancer screening necessary after a myositis diagnosis?**
Certain types of myositis, especially dermatomyositis, are strongly associated with hidden cancers. The immune system’s reaction to cancer cells may trigger muscle and skin inflammation. Early screening helps detect malignancy at a treatable stage and is now a routine part of care.
**Q5. Are newer treatments like IVIG and biologics available in India?**
Yes, many tertiary care hospitals and specialised centres in India now offer advanced therapies such as IVIG, rituximab, and other biologics for patients who do not respond to conventional treatment. Access may vary by location, but awareness and availability are steadily improving.
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## Myositis Treatment Journey
English
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Navigating Myositis Treatment in India: A Patient’s Journey
Myositis is a rare group of autoimmune conditions in which the body’s immune system mistakenly attacks its own muscles, leading to inflammation, progressive weakness, and profound fatigue. Though primarily a muscle disease, myositis can also affect the skin, lungs, joints, and other organs, making it a complex and often misunderstood illness. Its symptoms develop gradually and are frequently misread as routine tiredness, ageing, or minor dermatological concerns, which delays timely diagnosis. In India, limited awareness outside specialist practice means many patients move through multiple consultations before reaching the correct medical care. Understanding the nature of myositis is essential not only for early detection but also for appreciating the long and disciplined journey patients undertake towards management and remission.
**Understanding the Illness Before the Journey Begins**
Myositis is not a word many people recognise until it enters their home uninvited. It belongs to a group of rare autoimmune conditions known medically as idiopathic inflammatory myopathies (IIM), where the body’s immune system mistakenly attacks its own muscles. Over time, this leads to inflammation, weakness, fatigue, and in several cases, striking skin changes.
When people ask, “What is Myositis disease?”, the simplest answer is this: it is a disorder where muscles gradually lose strength because the immune system treats them as enemies.
But this definition, though medically accurate, does not capture the lived reality of the condition.
Myositis rarely arrives dramatically. It creeps in quietly.
**Common Myositis Symptoms People Overlook**
The early myositis symptoms are often mistaken for routine fatigue, ageing, skin allergy, or vitamin deficiency. This is where diagnosis gets delayed in India and elsewhere.
Typical signs include:
- Gradual muscle weakness in arms and legs
- Difficulty climbing stairs or rising from a chair
- Trouble lifting objects or combing hair
- Loss of grip strength
- Persistent fatigue and body pain
- Skin rashes that darken over time
- Redness on sun exposure
- A distinctive butterfly shaped rash across the cheeks and nose
- Swelling and stiffness in muscles
- Elevated CPK levels in blood tests
Because these symptoms appear slowly, patients often move from one doctor to another before reaching the right specialist.
**Why Myositis Diagnosis in India Is Challenging**
In India, awareness about inflammatory myopathies is still limited outside specialist circles. Patients are frequently treated for:
- Skin infections or allergies
- Vitamin deficiencies
- Age related weakness
- Stress or lifestyle fatigue
Correct diagnosis typically requires consultation with a rheumatologist or an experienced internal medicine specialist. Tests such as CPK levels, MRI of muscles, EMG, and autoantibody panels help confirm the disease.
And this delay in diagnosis is where many patient journeys begin to resemble one another.
**Myositis Treatment in India: What Management Looks Like**
Once identified, myositis treatment in India follows a structured path:
- Immunosuppressive medicines such as Mycophenolate Mofetil
- Steroids in early phases to control inflammation
- Regular CPK monitoring to assess muscle damage
- Physiotherapy to regain and preserve muscle strength
- Lifestyle regulation with diet, rest, and measured activity
- Continuous follow up to manage flare ups
Myositis is not cured. It is managed. Patients aim for remission, where symptoms are controlled but vigilance remains necessary.
This clinical understanding becomes far more meaningful when seen through the eyes of someone who has lived it.
**A Real Story: Mr. Ajay Shukla’s Journey with Myositis**
In May 2019, on an unusually hot night during a power outage, Mr. Ajay Shukla noticed something peculiar. Excessive sweating was followed by red, acne like rashes on his skin. What appeared trivial at first gradually darkened and spread across his chest, neck, and forehead.
Dermatological treatment followed. Ointments. Tablets. No relief.
Within two to three months, something more troubling began. His muscles started to weaken.
He found it harder to walk. Harder to lift his arms. Harder to perform tasks he had done effortlessly for years. Buttoning a shirt became laborious. Climbing stairs felt like scaling a hill.
Yet, like many families, the early signs were dismissed.
By September 2019, his condition had worsened significantly. The skin rashes intensified, especially under sunlight, and a clear butterfly rash appeared on his face.
A dermatologist again offered little clarity. Vitamin supplements were prescribed.
But the weakness progressed.
The Turning Point: Correct Diagnosis
Finally, he was referred to Dr. Sonal Mehra, an internal medicine specialist who recognised the constellation of symptoms immediately. Within a few months of onset, the correct diagnosis was made: autoimmune myositis.
This moment was both frightening and relieving. Frightening because it was chronic. Relieving because it finally had a name.
He was admitted to hospital as his muscle strength had declined to the point where standing and walking unaided was nearly impossible.
Treatment began with immunosuppressive therapy, particularly Mycophenolate Mofetil.
**Rehabilitation: The Slow Return to Movement**
Medication alone was not enough. Physiotherapy became central to recovery.
With the unwavering support of his wife, Mr. Shukla began gentle exercises. Muscles that felt as if they had rusted slowly relearned movement. Each day was an exercise in patience.
A month after hospitalisation, he resumed office work slowly and cautiously.
This phase taught him a crucial truth. Myositis treatment is a partnership between medicine, movement, and mindset.
**Living with Flare Ups and Monitoring CPK**
Between 2021 and 2022, he experienced flare ups. Blood reports showed elevated CPK levels, an indicator of muscle inflammation, though he did not always feel immediate worsening.
Medication adjustments were made. Regular monitoring became routine.
He learnt that remission does not mean absence of disease. It means control.
**Where He Stands Today**
Today, Mr. Ajay Shukla lives in remission. He continues medication. He exercises regularly. He respects his body’s limits. He watches for signs of flare ups.
Most importantly, he carries optimism.
Lessons from a Patient’s Journey
Mr. Shukla’s experience mirrors what many myositis patients in India face:
- Initial misdiagnosis as skin or vitamin issue
- Delay in reaching the right specialist
- Rapid progression of muscle weakness
- Emotional strain on family
- Slow but steady recovery through discipline
**The Role of Support Systems like Myositis India**
Organisations such as Myositis India play a pivotal role in bridging the awareness gap. They provide:
- Patient education resources
- Access to specialists and guidance
- Community support for patients and caregivers
- Awareness campaigns across India
- Emotional reassurance that patients are not alone
Myositis does not announce itself loudly. It arrives through rashes, fatigue, and weakening limbs. But with timely diagnosis, structured treatment, disciplined rehabilitation, and the quiet strength of family, it can be lived with dignity and control.
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## Myositis Patient Journeys
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
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Living with Myositis: Personal Stories and Insights from Patients Navigating Inflammatory Myopathy in the Indian Context
Living with an inflammatory myopathy such as myositis is rarely a straight road. It is a gradual unfolding. A body that once moved without thought begins to hesitate. Stairs feel taller. Chairs feel lower. A comb feels heavier than it should. And before a name is given to this quiet betrayal of muscle strength, confusion and self doubt often set in.
Across India, many people living with autoimmune diseases like Myositis still travel a long and uncertain path before receiving a correct diagnosis. Awareness is limited. Early symptoms are easily mistaken for fatigue, ageing, stress, nutritional deficiency, or even psychological distress. By the time the right tests are done and the right specialist is consulted, months may have passed.
The experience of myositis treatment in India is therefore not only medical. It is deeply personal, emotional, and social. It involves learning to live differently, to ask for help, to balance medicines with movement, and to rebuild confidence in a body that no longer behaves as it once did.
**The Common Journey Many Patients in India Experience**
For a large number of patients, the first symptom is subtle muscle weakness. There may be difficulty climbing stairs, getting up from the floor, lifting objects overhead, or even swallowing food. Some notice rashes. Others feel persistent fatigue that rest does not resolve.
The first doctor visit often leads to routine tests. Vitamin supplements may be prescribed. Some patients are told they are overworked or anxious. During this period, the disease continues to progress quietly.
A turning point usually comes when a doctor checks the creatine kinase level or recognises a pattern of proximal muscle weakness. Referral to a rheumatologist or neurologist follows. Further tests such as muscle MRI, autoantibody panels, or biopsy confirm the presence of inflammatory myopathy.
Then begins the long term journey of myositis treatment. Steroids are started. Immunosuppressive medicines are added. Physiotherapy becomes a regular part of life. Patients learn to pace their activities. Families learn to provide support without taking away independence.
In this process, community support becomes invaluable. Many patients find reassurance in hearing from others who have walked this path before them. Within the Myositis India community, such shared stories often become quiet sources of strength.
The journeys of three patients illustrate this lived reality in deeply human ways.
**Mr. Prashant Varma: When Symptoms Are Dismissed**
In August 2020, during the height of the COVID pandemic, Mr. Prashant Varma began noticing that his muscles felt sore and weak. Sitting down and standing up became difficult. Swallowing food became a challenge. What he managed to swallow would often come back up. One side of his jaw swelled, which he initially mistook for a dental problem.
Being physically active all his life, this change felt alarming.
He consulted doctors. COVID tests were done. Blood tests were done. Everything came back normal. He was told that the problem might be psychological. For a brief period, he stopped seeking medical help while his condition worsened.
Finally, another doctor decided to check his CK levels. The result was strikingly high. This prompted suspicion of myositis, and treatment began.
From his first symptom on 20 August 2020 to his diagnosis on 12 December 2020, he had consulted four doctors. Those months were marked by confusion, deterioration, and the emotional strain of not being believed.
His story reflects what many patients experience. Early symptoms are misunderstood. Diagnosis is delayed. By the time myositis treatment starts, the disease has already advanced. Yet, once the correct diagnosis was made, structured treatment and support helped stabilise his condition.
**Mr. Chintan Shinde: Growing Up with Myositis**
Mr. Chintan Shinde’s journey began much earlier, in 1991, when he was just seven years old. He remembers feeling exhausted after walking a short distance and his muscles would cramp. His parents were worried and consulted multiple doctors before a diagnosis was finally reached.
At that time, awareness about inflammatory myopathy was minimal. Treatment meant heavy doses of steroids and frequent physiotherapy visits. His paediatrician played a vital role by staying involved and supportive.
Despite pain and fatigue, Chintan continued schooling. He practised Taekwondo for three years. He cycled. He studied. He pushed through discomfort. He also remembers experiencing brain fog, which he managed with repeated revision and concentration exercises.
In his early twenties, he noticed something unusual while climbing stairs. His strength seemed to decrease and he suspected his polymyositis was returning. Doctors advised him to continue physiotherapy, as there were no additional treatment options for polymyositis at the time.
His story highlights resilience across decades. It shows how myositis treatment in earlier years relied heavily on steroids and physiotherapy, and how determination, routine, and family support helped him build a full academic and personal life despite the disease.
**Mrs. Jayasheela Kaluti: Living with Inclusion Body Myositis**
Mrs. Jayasheela Kaluti from Belgaum was diagnosed with Inclusion Body Myositis at NIMHANS Bengaluru about five years ago. Her story is shared by her husband, who has been a constant and primary caregiver and companion in her journey.
Before treatment guidance, she frequently lost balance while walking and found it difficult to get up from a seated position. Daily life required increasing assistance.
Following advice from specialists, the family adopted a routine of physiotherapy, yogasan, and supportive therapies. Over time, these measures helped her regain some independence. She can now do small cooking tasks and manage daily activities with limited support.
The improvement is not dramatic but meaningful. Her confidence has returned and routine has stabilised. This has helped restore the family’s hope.
Her family is now exploring advanced options such as CAR T cell therapy under medical guidance. Along the way, encouragement from other myositis warriors and support from doctors has strengthened their resolve.
Her story shows how, in conditions like IBM where medicines have limited effect, consistent physiotherapy, family support, and adaptive living can make a significant difference in quality of life.
**What These Stories Teach Us**
These three journeys differ in age, subtype, and timeline, yet they share common threads.
Delay in myositis diagnosis is frequent. Emotional strain is significant. Physiotherapy becomes central to life. Family support is indispensable and community encouragement matters deeply.
They also reflect how myositis treatment in India has evolved. From limited awareness and heavy steroid dependence to more structured care, specialist guidance, and patient communities that offer shared knowledge.
Living with inflammatory myopathy is not only about managing inflammation. It is about learning patience, redefining strength, and finding confidence in small daily victories.
For many patients, the road to stability begins not just with medicines, but with understanding, persistence, and connection with others who truly understand what living with myositis feels like.
Across journeys like these, the presence of a patient community often becomes as important as the prescription itself. Myositis India plays a quiet but powerful role in helping patients and families feel less alone. By offering reliable information, connecting patients with specialists and clinical trial centres, guiding them through medical terminology, and creating spaces where stories can be shared without judgement, the organisation becomes a bridge between diagnosis and hope. Patients, caregivers, and well wishers are encouraged to register, participate, and become part of this growing support network so that no one has to navigate myositis in isolation.
**FAQs**
Q1. How should daily activities be managed when living with myositis?
Energy levels in myositis fluctuate. It helps to plan the day in small segments, with rest periods between tasks. Avoid overexertion on good days, as this often leads to severe fatigue the next day.
Q2. Is exercise safe for someone with inflammatory myopathy?
Yes, when supervised and planned properly. Gentle resistance exercises, stretching, and guided physiotherapy improve muscle strength and endurance without worsening inflammation.
Q3. What kind of support do caregivers need to provide?
Caregivers should assist without taking away independence. Encouragement, help with physiotherapy routines, monitoring medicines, and emotional reassurance are often more valuable than physical assistance alone.
Q4. How can patients cope emotionally with a long term autoimmune condition?
Connecting with other patients, maintaining a routine, practising meditation or relaxation techniques, and seeking counselling when needed can help manage the emotional weight of the condition.
Q5. What lifestyle habits can make living with myositis easier over time?
Balanced nutrition, regular physiotherapy, adequate sleep, sun protection in dermatomyositis, and consistent follow up with doctors help maintain stability and prevent flare ups.
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## Myositis Symptoms Guide
English
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Recognising the Symptoms of Myositis: A Guide for Early Detection
A slight difficulty while climbing stairs. A heaviness in the arms while combing hair. A kind of fatigue that rest does not seem to fix.
Most people dismiss these as ageing, stress, or lack of exercise. Months pass. Sometimes years. And only then comes a diagnosis that reframes everything: myositis.
What is Myositis?
Myositis refers to a group of rare autoimmune muscle diseases in which the immune system mistakenly attacks muscle tissue, causing inflammation and progressive weakness.
While muscles are primarily affected, other organs may also be involved, including the:
- Skin
- Lungs
- Joints
- Heart
- Gastrointestinal system (particularly swallowing muscles)
Because symptoms often develop gradually and overlap with more common conditions, diagnosis is frequently delayed.
Types of Myositis
Myositis is not a single condition but a group of related disorders. Common subtypes include:
- Dermatomyositis (DM)
- Polymyositis (PM) (now less commonly used as a distinct diagnosis)
- Inclusion Body Myositis (IBM)
- Immune-Mediated Necrotizing Myopathy (IMNM)
- Antisynthetase Syndrome (ASS)
Each subtype has distinct features, but muscle weakness is a central symptom across most forms.
The Most Important Symptom: Muscle Weakness
One of the most important and often misunderstood symptoms of myositis is muscle weakness—not pain.
Patients typically describe:
- Difficulty climbing stairs
- Trouble getting up from a chair
- Struggling to lift objects overhead
- Fatigue while doing routine activities like combing hair
This weakness:
- Usually affects muscles closest to the centre of the body (shoulders, hips, thighs)
- Is often symmetrical (affecting both sides)
- Progresses gradually over time
A common clinical sign is needing to use hands to push off the thighs while standing up.
Fatigue and Functional Changes
Fatigue in myositis is often disproportionate to activity. Even minimal effort can feel exhausting, and rest may not fully restore energy.
Over time, this may lead to:
- Slower movement
- Changes in posture
- Difficulty rising from the floor
- A waddling gait in some individuals
Because these changes develop gradually, they are often overlooked in the early stages.
Visible Symptoms: Especially in Dermatomyositis
Some forms of myositis, particularly dermatomyositis, present with characteristic skin findings:
Heliotrope rash: violet or dusky rash around the eyes
Gottron’s papules: scaly patches over the knuckles
V-sign rash: rash over the chest
Shawl sign: rash over shoulders and upper back
These skin changes, when seen alongside muscle weakness, are important diagnostic clues.
Other associated symptoms may include:
- Low-grade fever
- Weight loss
- Joint pain
- Breathlessness
Swallowing and Breathing Symptoms
In some patients, muscles involved in swallowing or breathing may be affected.
Warning signs include:
- Difficulty swallowing (dysphagia)
- Choking while eating
- Nasal-sounding speech
- Persistent cough
- Unexplained breathlessness
These symptoms require prompt medical evaluation.
Symptom Progression: What to Look For
**Early stage**
- Gradual, symmetrical proximal muscle weakness
- Fatigue out of proportion to activity
- Difficulty with stairs, lifting, or rising
**Progression**
- Skin rashes (in dermatomyositis)
- Systemic symptoms (fever, weight loss, joint pain)
- Shortness of breath
**Advanced stage**
- Swallowing difficulty
- Respiratory muscle involvement
**How Doctors Diagnose Myositis**
Myositis diagnosis is multi-step and never based on a single test.
It typically involves a combination of:
1. Blood Tests (Muscle Enzymes)
Creatine Kinase (CK) is commonly elevated
Other enzymes: aldolase, AST, ALT, LDH
Important note: some patients may have normal or only mildly elevated CK levels
2. Electromyography (EMG)
Helps distinguish muscle disease from nerve-related conditions
Can guide biopsy site selection
3. Muscle MRI
Detects inflammation (muscle edema)
Increasingly used as a non-invasive tool
Helps identify suitable biopsy sites
4. Muscle Biopsy
Often considered the definitive diagnostic test
Examines muscle tissue under a microscope
5. Skin Biopsy
May support diagnosis in dermatomyositis when rash is present
6. Myositis-Specific Autoantibodies
Found in a significant proportion of patients (roughly 60–70%)
Help identify subtypes and predict complications
Their absence does not rule out myositis
Diagnosis is based on a combination of clinical findings and investigations, rather than a fixed number of tests.
Why Early Recognition Matters
Untreated myositis can lead to:
Permanent muscle damage
Loss of mobility
Complications involving lungs, heart, or swallowing
Early diagnosis allows:
Timely initiation of immunosuppressive treatment
Better preservation of muscle strength
Reduced risk of complications
Improved long-term independence and quality of life
It also avoids prolonged periods of ineffective treatments such as:
Repeated physiotherapy without diagnosis
Symptomatic treatment for fatigue or pain alone
When Should You Seek Medical Advice?
Muscle weakness should not be ignored if it is:
- Progressive
- Symmetrical
- Affecting daily activities
- Not improving with rest
If tasks like climbing stairs, getting up from a chair, or lifting your arms become difficult without clear reason, a medical evaluation is warranted.
Living with Myositis
Myositis can feel isolating, especially because it is rare and often misunderstood.
Support systems matter. Patient communities and organisations such as Myositis India help by:
- Spreading awareness
- Connecting patients with specialists
- Offering reliable information
- Building a support network
Early awareness combined with the right medical care can significantly improve outcomes.
FAQs
Q1. Can myositis start without obvious symptoms?
Yes. Early symptoms may be subtle, such as fatigue or mild weakness, and can go unnoticed.
Q2. Is muscle pain a key symptom?
Not always. Weakness is often more prominent than pain.
Q3. Can blood tests be normal?
Yes. Some patients may have normal or mildly elevated muscle enzymes, especially in certain subtypes.
Q4. How is it different from normal weakness?
Myositis-related weakness is progressive, symmetrical, and does not improve with rest.
Q5. Is myositis hereditary?
It is not typically inherited directly, and routine family screening is not required.
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## Lifestyle in Myositis
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
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[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/blog/the-role-of-lifestyle-in-managing-myositis-an-evidence-based-guide-for-patients-in-india#)
The Role of Lifestyle in Managing Myositis • Credit: The Role of Lifestyle in Managing Myositis
Living with myositis is not just about managing a medical condition. It involves adapting daily life to work with the body, not against it. Alongside treatment, how one moves, rests, eats, and manages stress can play an important role in improving quality of life.
Myositis refers to a group of rare autoimmune diseases that primarily affect the muscles but can also involve the lungs, skin, joints, heart, and parts of the gastrointestinal system. Symptoms such as muscle weakness and fatigue can fluctuate over time, which means patients often experience varying energy levels from day to day.
Understanding how to respond to these changes is an important part of long-term management.
Listening to Your Body: Activity and Energy Management
Muscle strength and endurance in myositis can vary significantly. Activities that feel manageable on one day may feel exhausting on another.
Rather than pushing for consistency, patients benefit from pacing their energy:
Breaking tasks into smaller steps
Taking planned rest breaks
Spreading physically demanding activities across the week
Physiotherapy and guided movement are often helpful, but overexertion can worsen fatigue. The goal is not intensity, but consistency within individual limits.
Work and Daily Routine
Myositis often affects people during their working years. Many individuals continue working, but may need adjustments such as:
Flexible working hours
Scheduled breaks
Work-from-home options
Modified workloads
These changes are not setbacks. They are strategies to sustain long-term productivity and well-being.
Exercise: What is Safe and Helpful?
Exercise is now recognised as an important part of managing myositis when done appropriately.
Research supports:
Strength (resistance) training to maintain muscle mass
Aerobic activity to improve stamina and cardiovascular health
Flexibility and balance exercises to support mobility
The exact type, intensity, and duration should always be individualised based on:
Disease activity
Muscle strength
Lung or heart involvement
General physical activity guidelines (such as aiming for regular moderate activity across the week) can serve as a long-term goal, but must be adapted in consultation with a healthcare provider.
Diet and Nutrition in Myositis
There is no specific diet that cures or controls myositis, and research in this area is still evolving. However, good nutrition supports overall health, muscle maintenance, and treatment tolerance.
Key Principles
1. Focus on whole foods
Prioritise fresh, minimally processed foods over packaged or ultra-processed options.
2. Maintain a healthy body weight
Excess body fat is associated with a more pro-inflammatory metabolic state and may make symptom management more difficult.
3. Ensure adequate protein intake
Protein supports muscle repair and maintenance. Good sources include:
Dals and legumes
Dairy (milk, curd, paneer)
Eggs
Fish and lean meats
Nuts and seeds
Vegetarian diets can meet protein needs with careful planning.
4. Include healthy fats
Omega-3 fatty acids, found in:
Fatty fish
Flaxseeds and chia seeds
Walnuts
may support overall inflammatory balance.
5. Get enough Vitamin D
Vitamin D plays an important role in bone and muscle health. Deficiency is common in chronic illnesses and may be worsened by long-term steroid use.
Supplementation should only be taken under medical supervision.
6. Eat a variety of fruits and vegetables
These provide antioxidants and micronutrients that support overall health.
Foods to Limit
Certain dietary patterns may negatively affect overall health or interact with treatment:
Highly processed and packaged foods
Excess added sugars
Excess salt
Alcohol (can interfere with medications)
What about gluten?
Gluten does not need to be avoided unless:
You have coeliac disease, or
A doctor has identified a sensitivity
Complementary Practices and Holistic Care
Practices such as:
Meditation
Breathing exercises
Massage
Yoga
Acupuncture
are sometimes used by patients to manage stress and improve well-being.
Some individuals report benefits such as better sleep or reduced muscle tension. However, scientific evidence specific to myositis remains limited. These approaches should be viewed as supportive tools, not replacements for medical treatment.
Self-Care as Part of Treatment
In myositis, self-care is not optional. It is part of managing the condition.
Structured rest, balanced activity, emotional support, and stress management can help patients:
Cope better with fatigue
Improve daily functioning
Maintain a sense of control over their condition
While these approaches may not directly change disease activity, they can significantly improve quality of life.
Living with Myositis
Managing myositis requires a team-based approach, including:
Doctors
Physiotherapists
Dietitians
Caregivers
Research on lifestyle interventions is still growing, and clearer guidelines will emerge over time. Until then, combining medical treatment with thoughtful lifestyle choices offers the most practical path forward.
Organisations like Myositis India play an important role in supporting patients, building awareness, and encouraging research in this space.
FAQs
Q1. Can I exercise if I have myositis?
Yes, with proper guidance. Structured, moderate exercise has been shown to improve strength and stamina without worsening disease when tailored to the individual.
Q2. Is there a diet that can control myositis?
No specific diet has been proven to control the disease. A balanced, nutrient-rich diet supports overall health and recovery.
Q3. Why do I feel extreme fatigue even without much activity?
Fatigue in myositis is linked to inflammation, muscle weakness, and the body’s immune response, not just physical exertion.
Q4. Can I continue working after diagnosis?
Many people do. Adjustments such as flexible hours or reduced workload can help sustain long-term work participation.
Q5. Do practices like yoga or meditation help?
They may improve well-being and stress management. However, they should be used alongside, not instead of, medical treatment.
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## Nutrition in Myositis Management
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## Myositis Prevention Tips
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myositis prevention
## Can Myositis Be Prevented? Tips to Reduce Risk and Stay Healthy
Myositis is an autoimmune condition that causes muscle inflammation and weakness. While there is no guaranteed way to prevent it, certain healthy habits can help reduce the risk and support overall well-being.
* * *
## Is Myositis Preventable?
Since myositis is often linked to autoimmune responses, complete prevention may not be possible. However, maintaining a healthy lifestyle can lower the chances of triggering symptoms.
* * *
## Strengthen Your Immune System
A strong immune system plays a key role in preventing many health conditions.
- Eat a balanced and nutritious diet
- Stay physically active
- Get enough sleep
- Manage stress effectively
* * *
## Avoid Environmental Triggers
Some environmental factors may contribute to autoimmune responses.
- Limit exposure to harmful chemicals
- Avoid smoking and pollution
- Stay protected from infections
* * *
## Maintain Muscle Health
Keeping your muscles strong and flexible is essential.
- Engage in regular low-impact exercise
- Stretch daily
- Avoid prolonged inactivity
* * *
## Regular Health Checkups
Early detection can help manage conditions effectively.
- Routine blood tests
- Monitor unusual muscle weakness
- Consult a doctor if symptoms appear
* * *
## Healthy Lifestyle Choices
Simple daily habits can make a big difference.
- Stay hydrated
- Maintain a healthy weight
- Follow a consistent routine
* * *
## Conclusion
Although myositis cannot always be prevented, adopting healthy lifestyle practices can significantly reduce risks and improve overall quality of life. Prevention starts with awareness and consistent care.
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## Myositis Care Tips
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[Register](https://myositisindia.org/register)
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Living with Myositis: Daily Care, Diet, and Lifestyle Tips
## Living with Myositis: Daily Care, Diet, and Lifestyle Tips
Myositis is a chronic condition that requires long-term management. While medical treatment plays a key role, lifestyle changes can significantly improve daily life and reduce symptoms.
* * *
## Importance of Daily Care
Managing myositis starts with building a daily routine that supports your physical and mental health.
- Maintain a consistent sleep schedule
- Avoid overexertion
- Track your symptoms regularly
* * *
## Best Diet for Myositis
A balanced diet can help reduce inflammation and improve muscle strength.
### Recommended Foods:
- Fruits and vegetables rich in antioxidants
- Lean proteins like fish and chicken
- Whole grains
- Healthy fats like nuts and olive oil
### Foods to Avoid:
- Processed foods
- Excess sugar
- Fried and oily items
* * *
## Exercise and Physical Activity
Regular physical activity helps maintain muscle strength and flexibility.
- Low-impact exercises like walking or swimming
- Stretching and yoga
- Guided physical therapy
* * *
## Managing Fatigue
Fatigue is a common symptom of myositis.
- Take short breaks during the day
- Prioritize important tasks
- Stay hydrated
* * *
## Emotional Well-being
Living with a chronic illness can affect mental health.
- Join support groups
- Practice meditation
- Stay connected with family and friends
* * *
## Conclusion
With the right lifestyle changes and medical support, living with myositis becomes more manageable. Small daily improvements can make a big difference.
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## Myositis Early Signs
English
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Early Signs of Myositis: Symptoms You Should Not Ignore
## Early Signs of Myositis You Should Not Ignore
Myositis often develops gradually, making early symptoms easy to overlook. Recognizing these signs can help in early diagnosis and better treatment outcomes.
* * *
## What Are the Early Signs?
The first symptoms may be mild but worsen over time.
- Muscle weakness in arms and legs
- Difficulty climbing stairs
- Trouble lifting objects
- Fatigue and low stamina
* * *
## Muscle Weakness
Muscle weakness is one of the most common early symptoms.
- Affects shoulders, hips, and thighs
- Makes daily activities harder
- Gradually increases over time
* * *
## Fatigue and Tiredness
Persistent fatigue is another key sign.
- Feeling tired even after rest
- Reduced energy levels
- Difficulty completing routine tasks
* * *
## Skin Changes
In some cases (dermatomyositis):
- Red or purple rashes
- Swelling in affected areas
* * *
## When to See a Doctor
Seek medical advice if symptoms persist:
- Ongoing muscle weakness
- Difficulty swallowing
- Sudden weight loss
* * *
## Diagnosis and Next Steps
Early diagnosis helps in effective management.
- Blood tests
- MRI scans
- Muscle biopsy
* * *
## Conclusion
Ignoring early signs of myositis can delay treatment. Being aware of symptoms ensures timely care and better health outcomes.
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## Understanding Myositis
English
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Understanding Myositis
## Understanding Myositis: Causes, Symptoms, and Treatment Options
Myositis is a group of rare autoimmune diseases that cause inflammation of the muscles. This condition can lead to muscle weakness, pain, and fatigue, making everyday activities difficult. Early diagnosis and proper treatment can help manage symptoms and improve quality of life.
* * *
## What is Myositis?
Myositis refers to inflammation of the muscles, usually caused by the immune system mistakenly attacking healthy muscle tissue. It can affect people of all ages, although some types are more common in adults or children.
* * *
## Causes of Myositis
The exact cause of myositis is not always known, but several factors may contribute:
- Autoimmune response where the body attacks its own muscles
- Genetic predisposition
- Viral infections
- Environmental triggers
- Certain medications
* * *
## Common Symptoms of Myositis
Symptoms can vary depending on the type of myositis, but common signs include:
- Muscle weakness, especially in the hips, thighs, shoulders, and arms
- Difficulty climbing stairs or lifting objects
- Fatigue and low energy levels
- Muscle pain or tenderness
- Trouble swallowing (in some cases)
- Skin rashes (in dermatomyositis)
* * *
## Types of Myositis
There are several types of myositis, including:
- **Polymyositis** – Affects multiple muscles, usually in adults
- **Dermatomyositis** – Includes muscle weakness and skin rash
- **Inclusion Body Myositis** – Common in older adults and progresses slowly
- **Juvenile Myositis** – Occurs in children
* * *
## Diagnosis of Myositis
Diagnosing myositis involves multiple tests, such as:
- Blood tests to check muscle enzymes
- MRI scans to detect inflammation
- Muscle biopsy for confirmation
- Electromyography (EMG) to assess muscle function
* * *
## Treatment Options for Myositis
While there is no complete cure, treatment can help control symptoms:
- **Medications** – Corticosteroids and immunosuppressants
- **Physical therapy** – Improves strength and flexibility
- **Lifestyle changes** – Balanced diet and regular exercise
- **Supportive care** – Managing fatigue and daily activities
* * *
## Living with Myositis
Managing myositis requires a long-term approach. With proper medical care, lifestyle adjustments, and support, many people can lead active and fulfilling lives.
* * *
## Conclusion
Understanding myositis is essential for early detection and effective treatment. If you experience persistent muscle weakness or fatigue, consult a healthcare professional for proper diagnosis and care.
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## Dr. Anushka Aggarwal
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-anushka-aggarwal#)
# Dr. Anushka Aggarwal
Medical Advisor
New Delhi
2024-20252023-2024
MBBS from Maulana Azad Medical College, Delhi MD Medicine from Lady Hardinge Medical College, Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital, Delhi Committed to Myositis care and awareness in India. Actively involved in academic and clinical aspects of Myositis research
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## Dr. Chengappa Kg
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
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# Dr. Chengappa Kg
Medical Advisor
Mysuru
2023-20242024-2025
Rheumatologist with over eight years of experience. I have been working at a tertiary care hospital that caters to many patients with idiopathic inflammatory myositis and overlap myopathies. My core areas of interest are outcome measures in myositis and in understanding the damage progression because of muscle inflammation in myositis.
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## Dr. Liza Rajasekhar
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
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📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-liza-rajasekhar#)
# Dr. Liza Rajasekhar
Medical Advisor
Hyderabad
2023-20242024-2025
Dr. Liza Rajasekhar is a renowned professor and Head of Department at the Department of Clinical Immunology and Rheumatology at Nizam’s Institute of Medical Sciences, Hyderabad. She has been awarded numerous prestigious awards in recognition of her achievements in the field of rheumatology. She has also served as a mentor and role model to her students and colleagues, helping them to hone their skills and knowledge.
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Dr. Liza Rajasekhar \| Myositis Specialist India \| NIMS
## Dr. Mahabalehwar - Medical Advisor
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-mahabalehwar#)
# Dr. Mahabalehwar
Medical Advisor
Mysore
2023-20242024-2025
Asst Professor of Rheumatology, JSS Academy of Higher Education & Research, Mysore MBBS, MD Medicine, DM Rheumatology and Clinical Immunology, Madras Medical College. Member of many Rheumatology Organisations with active participation in research work. Currently working on a project on Juvenile Dermatomyositis.
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## Dr. Neeraj Jain
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-neeraj-jain#)
# Dr. Neeraj Jain
Medical Advisor
New Delhi
2023-20242024-2025
He is Member of Indian Rheumatology Association and Member, Executive committee, Delhi Rheumatology Association, New Delhi. He is the Chief Editor of 1st Book on Biologics in Rheumatological disorders published by Springer Nature. He has more than 45 national and international publications and has been principal investigators in various clinical trials
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## Dr. Pankti Mehta
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
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📢ANNOUNCEMENT
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# Dr. Pankti Mehta
Medical Advisor
Toronto
2023-20242024-2025
Currently working as Clinical Fellow, Rheumatology Division, Department of Medicine, University of Toronto. Her keen areas of interest include Lupus, Myositis, and the study of biomarkers and infections in Rheumatology. She has actively contributed to the social media committees at Rheumatology (Oxford), Indian Journal of Rheumatology, and Indian Rheumatology Association.
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## Myositis Specialist
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
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[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-rohit-aggarwal#)
# Dr. Rohit Aggarwal
Medical Advisor
USA
2023-2024
Dr. Aggarwal is a professor of medicine and medical director at a major medical center and myositis center of excellence in Pittsburgh USA He specializes in studying and treating inflammatory muscle diseases or myositis
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Dr. Rohit Aggarwal – Myositis Specialist & Medical Director USA
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## Dr. Sundeep Kumar Upadhyana
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/medical-advisory-board/dr-sundeep-kumar-upadhyana#)
# Dr. Sundeep Kumar Upadhyana
Medical Advisor
New Delhi
2023-20242024-2025
Indraprastha Apollo Hospital, New Delhi. Headed many clinical research programmes for Biologics, actively involved in research. Published many research papers have co-authored several book chapters. More than 20 years of experience handling all spectrum of Rheumatological diseases. Fields of core interest include Psoriatic Arthritis, Inflammatory myositis among others.
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## Dr. Vishnu - Expert Neurologist
English
[Register](https://myositisindia.org/register)
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# Dr. Vishnu
Medical Advisor
New Delhi
2023-20242024-2025
Academic neurologist working as associate Professor at AIIMS New Delhi. In charge of AIIMS Comprehensive Neuromuscular Disorders clinic where they manage both acquired and inherited Neuromuscular disorders. Also, a faculty fellow of MRC funded ICGNMD (International centre for Genomic Medicine in Neuromuscular diseases). Actively involved in research activities and patient care.
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## Ajay's Myositis Journey
English
[Register](https://myositisindia.org/register)
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[Back to all stories](https://myositisindia.org/success-stories)
I became so weak, I couldn’t even comb my hair or do basic things like get dressed or make a meal. It was like my body suddenly refused to cooperate, and I had no idea why.
When I went to the dermatologist, he thought it was acne and sent me off with sunscreen. I felt so frustrated because deep down, I knew something was wrong. Then, I saw an orthopaedic doctor for the muscle weakness, and he said I had osteoporosis and needed calcium supplements. I felt like no one was really hearing me, and meanwhile, I was getting worse.
"No matter how hard the journey may seem, there is hope and strength to be found in the support of loved ones and proper treatment."
It wasn’t until I went to Jaypee Hospital that I finally found someone who understood. I was referred to Dr. Sonal Mehra, a rheumatologist, and when she went over my symptoms, I could feel a huge weight lifting off my shoulders. She knew exactly what was going on. Hearing her say “You’re a textbook case of myositis” was strange—on one hand, I was relieved to finally have a name for what was happening to me, but I was also scared because I didn’t know what it meant for my future.
I was admitted to the hospital and discharged after three days, thinking I’d be okay. But just ten days later, I had a fall due to muscle weakness, and it was a hard one. I ended up with a brain hematoma, and that was a real low point for me. It was like I was losing control over everything. But I got through it, and after I recovered, I was put on a high dose of steroids for a year. Slowly, I started to feel better. I got stronger bit by bit. Today, I’m incredibly thankful to say that I’m living a pretty normal life again. I work, I spend time with my loved ones, and most importantly, I’ve learned to appreciate the small things that I used to take for granted. I still see my doctors regularly and follow their advice closely because I know how quickly things can change. For anyone going through this or something similar: I get it. I know how scary and overwhelming it feels. But I promise, there is light at the end of the tunnel. It’s not easy, and it can take time, but you’re not alone in this. With the right treatment and care, you can come out the other side. And I really hope that one day, with medical advancements, we can cure myositis for good. Just hang in there.
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
Ask Us · Book AppointmentMyositis Chatbot
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## Damchen's Myositis Journey
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/mrs-damchen#)
[Back to all stories](https://myositisindia.org/success-stories)
Since then, Damchen has been fighting through the constant flare ups, changes in medications, and their side effects that the disease brought along. Everyday activities like standing up from her chair, walking, and even eating grew challenging
“In fact, doctor,” said Damchen. “My weight shrunk to a mere thirty six kilos. I was reduced to nothing more than a skeleton.”
Despite everything that Polymyositis threw at her, Damchen decided to fight her ailment, and with a smile on her face, she said - “Doctor, you will be surprised to know that I even went on hikes and treks despite my disease!” Today, Damchen continues to fight her disease and has shown utmost resilience throughout her journey with myositis
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Prashant Verma's Recovery Story
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/mr-prashant-verma#)
[Back to all stories](https://myositisindia.org/success-stories)
At first, he brushed it off as post-gym session fatigue, but the symptoms persisted and worsened with time. Swelling in his face and difficulty eating and swallowing soon followed. Concerned, he sought medical help, visiting several doctors, but none could pinpoint the issue. The timing of his symptoms coincided with the COVID-19 pandemic, leading to evaluations for the virus and its potential complications. When all COVID-related tests came back negative, he faced a frustrating period of uncertainty. The medical professionals he consulted initially believed it might be a psychological problem, leaving Prashant sir in a state of distress as his condition deteriorated further. After months of uncertainty, he was eventually referred to a Rheumatologist who, after extensive testing and evaluation, diagnosed him with Myositis. By the time the diagnosis was made, almost 3-4 months had elapsed since the onset of his symptoms. He was finally diagnosed on 1st of December 2020. Treatment commenced promptly after the diagnosis, and initially, Prashant sir experienced relief. He felt like he had conquered the disease, but fate had different plans. On another occasion, while taking medications for another illness, he suffered a severe relapse with even more debilitating symptoms. He found himself almost immobile, relying on a caretaker for basic tasks like eating and moving. The once independent and confident person now felt completely dependent on others. It was a crushing blow, and he struggled both physically and emotionally during this time. The situation worsened when Prashant sir contracted COVID-19 shortly after starting a higher drug called Rituximab. The virus further compromised his health, and during this trying period, his family members were isolated due to COVID precautions. This isolation was unbearable, and he was reluctant to be admitted alone into an isolation room. The experience was perhaps the most tumultuous phase of his life, with fear, uncertainty, and physical suffering looming large. Despite the challenges, Prashant sir continued with the treatment under the guidance of his doctors. Slowly, the storm began to subside, and he was discharged home. However, the road to recovery was arduous, and he still couldn't regain his strength and independence. Mentally, he was in a dark place, contemplating giving up. It was during this dark phase that he came across a story of a Tokyo-Olympics Volleyball player who had also battled Myositis. The athlete's determination and eventual triumph inspired Prashant sir deeply. That tale of resilience ignited a fire within him, and he decided to fight back with everything he had. He began incorporating physiotherapy and exercises into his treatment routine, determined to regain his life. With each passing day, Prashant sir made steady progress. Slowly but surely, he started to move his limbs, swallow, and work. The spark of life returned, and he was on the path to recovery. Supported by his family, friends, and medical team, he found renewed hope in life. Today, we are overjoyed to report that Prashant sir has made an incredible recovery. His determination knows no bounds, and he is even planning to scale Mt. Kalsubai, the highest peak in Maharashtra. His story is a testament to the power of perseverance and the support of loved ones. Looking back at his journey, Prashant sir credits his recovery to the unwavering support of his family, friends, and the skilled medical professionals who guided him throughout. Now, he has made it his mission to help other patients going through similar experiences, offering guidance and support during this challenging phase of their lives. We are honored to be associated with Prashant sir and commend his indomitable spirit in the face of Myositis. His remarkable fight against the odds serves as an inspiration to us all.
## More patient stories
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
- [\\
\\
Polymyositis Warrior Story: Damchen’s Journey of Strength & Resilience\\
\\
After visiting several physicians and undergoing many tests, Damchen was diagnosed with the disease ‘Polymyositis’, a type of inflammatory myopathy, in 2012.](https://myositisindia.org/success-stories/mrs-damchen)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Saurabh Sarin's Story
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/mr-saurabh-sarin#)
[Back to all stories](https://myositisindia.org/success-stories)
Currently residing in Berlin, Germany, Mr. Saurabh’s struggle began around the end of October 2022. It began with extreme pain in muscles and general fatigue and weakness. Since we had just come out of a global pandemic, Mr Saurabh decided to be cautious and visited a general physician. The doctor also attributed his symptoms to a viral infection and sent him home with some medications for the same. But even after this the pain and other symptoms persisted. Initially, he did not give much heed to the pain, but eventually it grew to an extent where it restricted him from doing basic daily activities as well, such as eating with a spoon or even drinking water. That is when his general physician suggested he visit a neurologist, as his symptoms could be due to a nerve compression or some other problem related to his spine. In his attempt to get an appointment with a specialist in Germany, Mr. Saurabh found out that the waiting time for that appointment is approximately 10 months. Due to his worsening symptoms, Mr Saurabh decided not to wait back in Germany, but instead to come back to India to get some medical aid. On getting back here, he started the process again by first visiting a general physician and a neurologist. They gave him some painkillers to begin with while they performed a few tests to see what the problem was. The medications helped a little but the doctors soon found out that there was nothing wrong with Mr. Saurabh’s spine. That is when they suspected Myositis and suggested him to visit a Rheumatologist, who after running a few tests diagnosed Mr. Saurabh with a special kind of Myositis in which he had Anti-jo 1 antibodies in his body. Immediately started him on Prednisolone, a steroid and Mycophenolate mofetil, which is an immunosuppressant. This is also the time when, in his efforts to find some resources and to understand his condition better, Mr. Saurabh came across Myositis India Org. He contacted the organisation with regards to his disease and also had a one-to-one session with Dr. Rohit Aggarwal, who provided him guidance on his further course of treatment and After getting his treatment, Mr. Saurabh went back to Germany, but on his return, he realised that the diagnosis and treatment he had received in India would not be considered there. So, he had to go through the procedure of diagnosing his disease for the second time in Germany. The entire process was very tiresome and disheartening. But Mr. Saurabh considered himself lucky that he was one of the few patients who didn’t have to struggle for relatively long, and got his diagnosis relatively quick, thanks to the doctors he had consulted back in India. For a few months, Mr. Saurabh had relief from his symptoms and everything was looking good. He believed himself to have gotten over the hard part of the disease. But, as soon as the dose for his medication was lowered, his symptoms would get worse and he would have to face the same difficulties again. During this period, when Mr. Saurabh visited his doctors in Germany again, they suggested he start a stronger and more aggressive medication for his disease. The side-effects for these medications would be serious and on consultation with his doctors back in India, including Dr.Rohit Aggarwal, he realised that it would be easier for him to handle and go through his treatments in India, than in Germany. In Germany, it was just him and his wife who had to take on the whole ordeal by themselves. But in India, they had their family and friends and an entire support system which could help Mr. Saurabh through this hardship. Because of this, he decided to move back to India for good and get all his further treatment here. Currently still on his treatment journey against this rare disease of Myositis, Mr. Saurabh is just as optimistic and hopeful as ever. He has made a great recovery from all his symptoms and is more than ready to face whatever challenges lie ahead of him. He gives full credit to his family and social circle, especially his wife and his sister for providing him with unwavering support throughout this ordeal. He believes since myositis is such a rare disease it is his duty to help spread the word about it so that the awareness in the general public increases and it gets easier for patients to get their diagnosis. Apart from spreading awareness, Mr. Saurabh also wants to help his fellow patients by letting them know that they are not alone in this journey and that there is a bunch of people out there who are more than willing to help them overcome this disease. We are grateful to Mr. Saurabh for sharing his experience with us and salute his generosity and altruism in helping others who might be going through something similar. He is indeed a great inspiration for all of us.
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
- [\\
\\
Polymyositis Warrior Story: Damchen’s Journey of Strength & Resilience\\
\\
After visiting several physicians and undergoing many tests, Damchen was diagnosed with the disease ‘Polymyositis’, a type of inflammatory myopathy, in 2012.](https://myositisindia.org/success-stories/mrs-damchen)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Chintan Shinde's Journey
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/mr-chintan-shinde#)
[Back to all stories](https://myositisindia.org/success-stories)
Going from not having much information about what myositis is in 1991 to learning to cope with it throughout his life makes his story one of a kind. Here he is to share his story and bring greater awareness to the world. It all began in 1991 when his parents noticed him getting tired for walking short distances. It took multiple visits to different doctors to obtain a diagnosis, but the paediatrician he eventually saw was exceptional and showed a genuine interest in his journey to recovery. Right after the diagnosis, he was started on steroids and began physiotherapy. Since receiving the diagnosis, he has been proactive in seeking various methods to manage and improve his condition, including acupressure, taekwondo, and cycling even though even though some of these activities have been painful on him. But as he graduated through classes, climbing stairs to reach his classroom was one of the challenges he faced due to the disease process. However, after few years of treatment, he came to realise he could walk longer distances without experiencing muscle cramping. Despite these improvements the few limitations he has are that he couldn't drive, as he couldn't balance a two-wheeler or press the clutch in a car. Nevertheless, he has been working on improving these abilities and can now manage more effectively. Throughout his journey, Chintan has found that coffee alleviates some of the muscle soreness after challenging days. At the end of the day, he strives to achieve independence, which he did and is pursuing. His story, evolving from a lack of understanding about myositis in 1991 to coping with it throughout his life, stands as a unique testament.
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
- [\\
\\
Polymyositis Warrior Story: Damchen’s Journey of Strength & Resilience\\
\\
After visiting several physicians and undergoing many tests, Damchen was diagnosed with the disease ‘Polymyositis’, a type of inflammatory myopathy, in 2012.](https://myositisindia.org/success-stories/mrs-damchen)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Sunil's Myositis Journey
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/mr-sunil#)
[Back to all stories](https://myositisindia.org/success-stories)
We are chosen for this battle because we are warriors, capable of fighting and overcoming any disease
It began with muscle pain, 12 Kg weight loss, inflammation, skin rashes, fatigue, and weakness. At first, I shrugged it off as everyday tiredness and sought help from a general physician. Despite taking antibiotics and painkillers, my symptoms worsened. Eating and swallowing became challenging, and my skin turned red with sun exposure. Even as the pain in my shoulders and thighs grew unbearable, I pushed on, struggling through daily tasks like eating, which took me hours to complete. By March 2023, my physician referred me to a rheumatologist. This decision which marked the beginning of my journey towards a correct diagnosis. After a comprehensive examination, the rheumatologist ordered tests specific to myositis. These tests were financially draining for me. The test came out to be positive for ANA profile, high TIF1 gamma antigen levels, and thrombocytopenia (i.e. very low platelet count). I was advised hospitalisation, but due to financial constraints, I opted for medication instead. My treatment regimen included Prednisolone, Mycophenolate Mofetil (which is an immunosuppressant), with weekly doctor visits. These drugs worked slowly for me and my health continued to decline day by day. Despite the immense pain, I maintained my positivity, although my fiancée was fully aware of the gravity of my condition. My parents, unfamiliar with myositis, mistook it for a common fever, making it difficult for me to explain the severity. Basic activities like walking, standing, and eating were monumental tasks for me. Even typing a leave request for work was tough for me due to inflamed fingers, and I had to stop riding my bike. Nevertheless, I persisted, personally buying my medications even on my toughest days. On July 5th, 2023, I lost consciousness and was hospitalised for 15 days during which I underwent intensive treatments, including IVIG therapy. I had a feeding tube inserted and endured painful procedures like bone marrow and muscle biopsies, and PET scans. During these tough times my family and friends never left my side. Post-discharge, I was prescribed Rituximab which caused stomach irritation, depression, acne, severe hair loss, blurry vision, and insomnia. After a brief rest, I returned to work, adapting to my new reality. I realised that not everyone’s life is same, and not my every day is same. We must face our critical situations head-on. I learned to listen to my body, follow my medication and physiotherapy routine, and attend health checkups alone but cheerfully. I learned to live with myositis and now I'm all about helping out my fellow myositis warriors! I attended every seminar about myositis in Hyderabad and, at IRACON2023, met Dr. Rohit Agarwal, who introduced Myositis India community to me. From my story, the key takeaway is the importance of correct diagnosis for effective treatment in the early stages. I now contribute to creating awareness by editing posts for Myositis India. It's a small step, but it matters. Raising awareness and advocating for myositis is crucial. Here are a few lessons from my experience: Early Diagnosis is the key: Don’t ignore symptoms. Seek specialised medical advice early. Support Systems Matter: Lean on family, friends, and support communities for strength. Advocacy Helps: Sharing your story and raising awareness can help others in their journey. Stay Positive: A positive attitude can make a significant difference in coping with the disease. Adapt and Persevere: Embrace your new reality, adapt to changes, and never give up. If you or someone you know is battling myositis, remember you’re not alone. Support and resources are available, and together, we can raise awareness, support each other, and fight this battle with resilience and hope. Thank you for reading my story. Let’s continue to stand strong and support one another. I believe recovery is possible with a strong motive and a positive attitude.
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Polymyositis Warrior Story: Damchen’s Journey of Strength & Resilience\\
\\
After visiting several physicians and undergoing many tests, Damchen was diagnosed with the disease ‘Polymyositis’, a type of inflammatory myopathy, in 2012.](https://myositisindia.org/success-stories/mrs-damchen)
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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Original text
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## Shally Puri's Journey
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/success-stories/shally-puri#)
[Back to all stories](https://myositisindia.org/success-stories)
After getting COVID in 2020 I got 90% frozen shoulders and also I was not able to gain weight. I consulted a physician and they told me that it is one of the side effect of covid and some nutritional deficiencies, so you will get better after one year with supplements. After one year my symptoms improved, but I was still underweight and not fully recovered and had weakness in my body.
“Listen to your body, get the right diagnosis. Mental health is key in fighting myositis. Stay strong, recovery is possible. 💪”
In 2021 I got pregnant and I faced many complications in pregnancy like liver cholestasis, pre-eclampsia, gestational diabetes and my baby was born prematurely and was in NICU for a month- now she is thankfully a healthy child. After my delivery in 2022 my symptoms related to muscle stiffness and weakness were getting worse. My gynecologist told me that it could be because I already had weakness and after delivery it is common in some women, so again they gave me supplements for 6 months. My symptoms then improved but I still was not fully recovered. In January 2023 I was not able to stand from sitting position and also could not get up from chair so I consulted an orthopedic surgeon and I told him I think I have myositis but they were not fully convinced. When I did not recover after their medication I requested them to test me for myositis. They did an EMG/NCV test and my EMG results were abnormal so again they suggested some blood tests that clearly showed myositis. Finally I knew what is going on in my body and I was right about my illness. After my diagnosis I was admitted to hospital for 3 days to get a high dose of steroid to suppress my inflammation and after three days my test results were normal. Now I am on medication and my symptoms are getting better with physical exercise, lifestyle changes and medication. If I got the right treatment three years ago, me and my child may not have suffered so please don't ignore any symptoms because your body always give you signs if something is not right. You also need to have the proper diagnosis if your symptoms are not improved after supplementation/medication given by your doctor. Listen to your body and learn more about this. Also, accepting this disease is really hard but with a strong mindset and positivity you can win any battle, believe me it really works. Mental health is really important in the fight with myositis, so never ignore this. If you are mentally healthy then it will cure 50% of your problem. I feel so much gratitude that I finally know about my disease and I know I will soon get full recovery with strong mindset and with the right treatment, because if I can give birth to a child in this condition then my body can do any magic to make full recovery from this disease.. so be strong! 💪
## More patient stories
- [\\
\\
Prashant Verma’s Myositis Journey: From Struggle to Strength\\
\\
An Encounter with our Patient Ambassador Mr.Prashant Verma. A tale of resilience and triumph. We interviewed our patient, Mr.Prashant Verma. His story of disease and an inspiring recovery is really worth sharing. Prashant sir's ordeal began in August 2020 when he started experiencing weakness and pain in his limbs.](https://myositisindia.org/success-stories/mr-prashant-verma)
- [\\
\\
Saurabh’s Myositis Journey: From Misdiagnosis to Hope\\
\\
A gist of our interview with Mr. Saurabh Sarin. The story of Mr. Saurabh is one of struggle and hardships. But just like every cloud has a silver lining, so does his story. Which is why, it is an honour to be able to share his experiences with the world.](https://myositisindia.org/success-stories/mr-saurabh-sarin)
- [\\
\\
Chintan’s Polymyositis Journey: Living Strong Since Childhood\\
\\
I remember getting tired from walking and my muscles beginning to cramp even after shorter distances," says our patient ambassador, Chintan, who has had polymyositis since he was 7 years old.](https://myositisindia.org/success-stories/mr-chintan-shinde)
- [\\
\\
Myositis Warrior Sunil: A Journey of Strength, Struggle & Hope\\
\\
Hello everyone, I’m Sunil a 25-year-old who once had my sights set firmly on my dreams and career goals. However, in 2023, my path took an unexpected turn when I was diagnosed with myositis, a condition I knew little about but soon had to confront head-on.](https://myositisindia.org/success-stories/mr-sunil)
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India 2025 Winners
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/case-presentation/winners/2025#)
# Competition 2025winners
Winners and runners-up from the Myositis India case presentation competition 2025.
2025
## Case Presentation Competition 2025 Winners
- 
Winner
### Dr. Pridhivi Bhargavi
Senior Resident
Department of Medicine
AIIMS New Delhi
- 
1ST RUNNER UP
### Dr. Nidhi Goel
1st year SR
Army Hospital (Research and Referral)
New Delhi
- 
2ND RUNNER UP
### Dr. Israrul Haque
Ex Senior Resident Rheumatology, AIIMS New Delhi
DM resident Clinical Immunology and Rheumatology
IPGMER, Kolkata
Ask Us · Book AppointmentMyositis Chatbot
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## Myositis India 2023 Winners
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/activities/case-presentation/winners/2023#)
# Competition 2023winners
Winners and runners-up from the Myositis India case presentation competition 2023.
2023
## Case Presentation Competition 2023 Winners
- 
Winner
### Dr. Alekhya Amudalapalli
DM Resident
Department of Clinical Immunology and Rheumatology
Institute of Medical Sciences and SUM Hospital, Bhubaneswar
- 
RUNNER UP
### Dr. Hiren Kalyani
DrNB Trainee (2022-2025)
Department of Rheumatology
Max Super Speciality Hospital, Saket, New Delhi
- 
RUNNER UP
### Dr. Harsh Jain
3rd year resident
Department of Rheumatology
Army Hospital, Delhi
Ask Us · Book AppointmentMyositis Chatbot
## Sartaj Akhtar Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/sartaj-akhtar#)
Team Member
# Sartaj Akhtar
IT Head profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Web developer & digital marketing expert passionate about creating user-friendly experiences.
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
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## Rutvij Tope Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/rutvij-tope#)
Team Member
# Rutvij Tope
Content Creation profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Doctor at BJGMC and Sassoon Hospital Pune I've been volunteering for Myositis India since Avid reader writer tennis player and amateur pianist
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Kshitij Kanuga's Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/kshitij-kanuga#)
Team Member
# Kshitij Kanuga
Webinars profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Hey I am Kshitij Kanuga from NHLMMC Ahmedabad
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Gokul: Myositis Advocate
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/gokul#)
Team Member
# Gokul
Content Distribution profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
As the Head of Social Media and Content Distribution at Myositis India, I have had the privilege of leveraging digital platforms to amplify awareness about myositis and connect individuals across the globe. Through my efforts, I strive to foster an inclusive online space where patients, caregivers, and medical professionals can come together to share knowledge and find support.
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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Gokul \| Myositis India Team
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## Rishi - Team Member
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/rishi#)
Team Member
# Rishi
Patient Services profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Intern Doctor at BJGMC and Sassoon General Hospital Pune Volunteer at Myositis India since Golfer footballer film enthusiast
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Team Member: Vanshaj
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/vanshaj#)
Team Member
# Vanshaj
Academics profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
I’ve been actively involved with Myositis India for over a year, and this journey has given me invaluable insights into patient care and the crucial role of community support in managing a rare muscle diseases like myositis. At the organization, I coordinate all academic activities, such as case presentation competition.
### Current Roles
[Core Team (Primary)](https://myositisindia.org/about/team/core-team)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Chintan Shinde Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/mr-chintan-shinde#)
Team Member
# Mr. Chintan Shinde
Director profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Chintan Shinde is an entrepreneur passionate about impact research and innovation. As someone who was diagnosed with polymyositis at the age of 7, Chintan has a keen interest in developing assistive technologies.
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Mr. Prashant Varma
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/mr-prashant-varma#)
Team Member
# Mr. Prashant Varma
Director profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
I am Prashant Varma, from Chhatrapati Sambhaji Nagar formarly known as Aurangabad Maharashtra. By Profession I am Post Graduate in Civil Engineering and holding following responsibilities in profession and Social organizations.
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Myositis Care Advocate
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-anushka-aggarwal#)
Team Member
# Dr. Anushka Aggarwal
Director and MAB Liaison profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
MBBS from Maulana Azad Medical College Delhi MD Medicine from Lady Hardinge Medical College Delhi DrNB Rheumatology resident from Indraprastha Apollo Hospital Delhi Committed to Myositis care and awareness in India Actively involved in academic
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Dr. Shreya Sridhar
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-shreya-sridhar#)
Team Member
# Dr. Shreya Sridhar
Director and Senior Manager profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Hey everyone This is Dr Shreya Sridhar an intern at SIMSRC Bangalore Working with Myositis India has been a wholesome experience I dance during my free time and wish to pursue Residency in the United
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Dr. Parth Ladha
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-parth-ladha#)
Team Member
# Dr. Parth Ladha
Director and Senior Manager profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Hello I m Dr Parth Ladha based in Pune India Engaging with patients and managing volunteers has been a rewarding journey for me as I coordinate activities within our patient organization This role has provided
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Rahul Aggarwal Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/mr-rahul-aggarwal#)
Team Member
# Mr. Rahul Aggarwal
Executive Director profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Rahul Aggarwal is a Chartered Accountant from the Institute of Chartered Accountants of India and holds an MBA from Alliance Manchester Business School UK He holds more than years of experience in Business Advisory Services
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Dollma Rana - Director
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/ms-dollma-rana#)
Team Member
# Ms. Dollma Rana
Director & Head of Communications profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Dollma is a seasoned professional with a strong background in operations management With a keen eye for detail and a commitment to operational excellence she is well-equipped to lead and optimize our day-to-day operations at
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Dr. Rohit - Myositis Expert
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-rohit#)
Team Member
# Dr. Rohit
Counsultant profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Dr Aggarwal is a professor of medicine and medical director at a major medical center and myositis center of excellence in Pittsburgh USA He specializes in studying and treating inflammatory muscle diseases or myositis
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
## Mr. Saurabh Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/mr-saurabh#)
Team Member
# Mr. Saurabh
Marketing Expert profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Saurabh is a highly experienced digital marketing expert with a proven track record of driving success for businesses of all sizes He is a valuable asset to Myositis India a leading company that provides top-notch
### Current Roles
[Board Members (Primary)](https://myositisindia.org/about/team/board-members)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Rimzim Mathur Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/rimzim-mathur#)
Team Member
# Rimzim Mathur
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Rimzim is a seasoned professional in the field of partnership management and resource mobilization With a proven track record of successful collaborations and fundraising initiatives she is well-equipped to drive our mission forward
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
## Srijan Mittal Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/srijan-mittal#)
Team Member
# Srijan Mittal
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Greetings I am Srijan Mittal doing my MBBS from MAMC New Delhi I am passionate about Research and application of mathematics to biology and application of data science in public health
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Volunteer Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/anushka-wahile#)
Team Member
# Anushka Wahile
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Currently, a MBBS student, pursuing my degree in the Philippines, from Davao Medical School Foundation. I'm very much very much dedicated to my studies, but I also am very enthusiastic about my cocurriculars. I am currently the Chairperson of the Academics Committee in my college and have volunteered with multiple organisations previously in India and in the Philippines as well.
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Aniket's Volunteer Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/aniket#)
Team Member
# Aniket
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
A final year medical student with a passionate commitment to becoming a compassionate and well-equipped doctor. My journey in medicine has been driven by a deep empathy for those battling diseases and a fervent desire to see patients overcome their health challenges. The process of healing and witnessing patients' recovery holds a special place in my heart.
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Medical Officer Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-ishan-tungar#)
Team Member
# Dr. Ishan Tungar
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Dr Ishan Tungar MBBS I recently graduated from BJ Government Medical College Pune and am currently working as a Medical Officer while pursuing the USMLE journey Myositis India has been a valuable platform in raising
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Suhani Jain Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/suhani-jain#)
Team Member
# Suhani Jain
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Education - MBBS from Grant Government Medical College Mumbai
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
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## Shrut Chaniyara Profile
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/shrut-chaniyara#)
Team Member
# Shrut Chaniyara
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
MBBS graduate from GCS Medical College Ahmedabad Volunteering with Myositis India since June contributing to patient support and awareness initiatives This role has provided valuable learning and community engagement opportunities Currently applying for residency in
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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Original text
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## Myositis India Team Member
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/maurya-devang-patel#)
Team Member
# Maurya Devang Patel
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
Intern at Smt NHL MMC Ahmedabad MedTech enthusiast Working to bridge the gap between cross-disciplinary interests and credible academic work
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot
Select LanguageAbkhazAcehneseAcholiAfarAfrikaansAlbanianAlurAmharicArabicArmenianAssameseAvarAwadhiAymaraAzerbaijaniBalineseBaluchiBambaraBaouléBashkirBasqueBatak KaroBatak SimalungunBatak TobaBelarusianBembaBengaliBetawiBhojpuriBikolBosnianBretonBulgarianBuryatCantoneseCatalanCebuanoChamorroChechenChichewaChinese (Simplified)Chinese (Traditional)ChuukeseChuvashCorsicanCrimean Tatar (Cyrillic)Crimean Tatar (Latin)CroatianCzechDanishDariDhivehiDinkaDogriDombeDutchDyulaDzongkhaEnglishEsperantoEstonianEweFaroeseFijianFilipinoFinnishFonFrenchFrench (Canada)FrisianFriulianFulaniGaGalicianGeorgianGermanGreekGuaraniGujaratiHaitian CreoleHakha ChinHausaHawaiianHebrewHiligaynonHindiHmongHungarianHunsrikIbanIcelandicIgboIlocanoIndonesianInuktut (Latin)Inuktut (Syllabics)IrishItalianJamaican PatoisJapaneseJavaneseJingpoKalaallisutKannadaKanuriKapampanganKazakhKhasiKhmerKigaKikongoKinyarwandaKitubaKokborokKomiKonkaniKoreanKrioKurdish (Kurmanji)Kurdish (Sorani)KyrgyzLaoLatgalianLatinLatvianLigurianLimburgishLingalaLithuanianLombardLugandaLuoLuxembourgishMacedonianMadureseMaithiliMakassarMalagasyMalayMalay (Jawi)MalayalamMalteseMamManxMaoriMarathiMarshalleseMarwadiMauritian CreoleMeadow MariMeiteilon (Manipuri)MinangMizoMongolianMyanmar (Burmese)Nahuatl (Eastern Huasteca)NdauNdebele (South)Nepalbhasa (Newari)NepaliNKoNorwegianNuerOccitanOdia (Oriya)OromoOssetianPangasinanPapiamentoPashtoPersianPolishPortuguese (Brazil)Portuguese (Portugal)Punjabi (Gurmukhi)Punjabi (Shahmukhi)QuechuaQʼeqchiʼRomaniRomanianRundiRussianSami (North)SamoanSangoSanskritSantali (Latin)Santali (Ol Chiki)Scots GaelicSepediSerbianSesothoSeychellois CreoleShanShonaSicilianSilesianSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSusuSwahiliSwatiSwedishTahitianTajikTamazightTamazight (Tifinagh)TamilTatarTeluguTetumThaiTibetanTigrinyaTivTok PisinTonganTshilubaTsongaTswanaTuluTumbukaTurkishTurkmenTuvanTwiUdmurtUkrainianUrduUyghurUzbekVendaVenetianVietnameseWarayWelshWolofXhosaYakutYiddishYorubaYucatec MayaZapotecZulu
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## Dr. Swaraj Salunke
English
[Register](https://myositisindia.org/register)
[Appointment](https://myositisindia.org/request-support-session)
[Donate](https://myositisindia.org/donate)
📢ANNOUNCEMENT
[Ongoing Clinical Trials](https://myositisindia.org/clinical-trials) [🤝AstraZeneca joins hands with Myositis India.](https://myositisindia.org/about/team/member/dr-swaraj-salunke#)
Team Member
# Dr. Swaraj Salunke
Volunteer profile and role details.
[Back to team categories](https://myositisindia.org/about/team)
## Profile Overview
I am a MBBS Intern at B J Government Medical College Pune Interacting with patients and supporting them as a team is a fulfilling experience I value patient education advocacy and research Being part of
### Current Roles
[Volunteers (Primary)](https://myositisindia.org/about/team/volunteers)
### Contact & Links
Ask Us · Book AppointmentMyositis Chatbot